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11/19/2008 09:10
jaime1978
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Jen,

you said exactly what I just said the other day to a friend. Some people are insistant that I test my kids NOW. I can barely take care of them on good days, this past couple weeks we've had the flu, and it's been every ounce of me to keep it somewhat together. I NEED to get well to be of any use to anyone else in my family. I'm not sure I don't know if I could properly care for my kids if they started treatment and ended up how I am, because as we know, treatment usually you feel worse before better. Now don't get me wrong, I'm CERTAINLY not saying that if they start becoming symptomatic I would not get them into treatment asap, that's a different story. But worrying over if they have it or not isn't going to do me any good at this point.

As with SO many things in my life now, I can't worry and think about it ahead of time. I have to deal with it as it's dealt to me.

The old "one day at a time" thing.

I hope by the time any of us has to deal with this, if we do have to, that things on the lyme front will have dramatically changed. I've seen it happen already in the past 2 years that I've been in the "world of lyme", so hopefully if and when I have to deal with my kids being infected, it will be a lot easier to get them the proper treatment. It will be a lot easier to get a doctor to hear me out.

Of course, my attitude with doctors anymore is that I go in thinking that I know more about this than they do, and I let them know it too, lol.

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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11/20/2008 06:23
dharma79
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Thanks Jaime.

I feel a little better.

I know that I am relentless in my pursuit of righteousness(sp?) once I have championed a cause...and I get the impression that there are more than a few fellow warriors out there and I do believe that we can help make things better for the next generation of Lymies...whether they are our children or someone elses.

The truth is out there! LOL I love David Dachovny!

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11/20/2008 06:28
Julie4848
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Jaime:

FLU my god kiddo....Drink Tea, eat chicken soup if you can...It has hit up here also pretty hard (early for chicago)...

Praying for you

Julie

Lyme will not win, we will and we WILL…

Popular posts by Julie4848
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11/20/2008 17:16
beauty4ashes
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Oh, Jaime, I hope you get over that yucky flu soon!

I know what you are syaing, too, trying to keep up with the kids & everything on GOOD days, let alone when you are really suffering what feels like a slow death on many others, am I right?? OMG some days I can barely crawl to the bathroom, let alone think about going anywhere!

And yes, as moms, we for sure have to take care of ourselves, or else we're just no good ues to anyone else. I plan on having my kids tested, hopefully hubby too, but for now I'm the one who is showing signs (most of them to boot!), and so we obviously need to tackle me first right now. I'm with you, if it becomes clear that the kids aresymptomatic then by all means they will be taken in ASAP whether I'm dragging my butt or not.

It is tough being sick like this, and I know going through treatment will likely be tougher (I start in 2 weeks after getting back from the vaca), and although taking care of our kids is a big job, and some days, they even help take care of ME (now that's a tough thing to swallow!), but they are also my livelihood (sp? stupid Lyme brain AGAIN!)..... I know, at least for myself, that I fight a lot harder because of them.

God bless us all in this battle,... for sure!! (((BIG BIG HUGS)))

I'm F.I.N.E.
Frustrated, Irritated, Nonfunctional & Everything hurts!!

Sarcasm: Embrace it!
______________________

"Always hold your head up, but be careful to keep your nose at a friendly level" - Max L. Foreman
______________________

I know God will not give me anything I can't handle.
I just wish he didn't trust me so much.
- Mother Teresa
______________________

"There's always light at the end of every tunnel, just pray it's not a train! "
______________________

Faith makes things possible, not easy!
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11/20/2008 19:21
seymour7
Posts: 131
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I have read this thread from the beginning.I have much sympathy for those that could have passed lyme to your kids.The truth is,you did not know- it could never be your fault.

I am 33 and have had lyme for almost 15 yrs.I dont have any kids yet (except my 4legged kids)but realize it will be a hard decision knowing that I could pass on the lyme to my baby.Thats not even to mention I may have already passed it to my future husband.My fiance said he would have kids since the beginning when we met over 11 yrs ago.I was young then and not ready to care for someone else.

Now Im getting older,but unfortunately feel as though I cant even care for myself,let alone someone else.I know this sounds negative-and Im not hoping to gain pity-Im just telling you how I feel.

Have been thru the typical dr's for yrs-one actually did properly diagnose me.Now I must try the natural route,and hopefully that will take me to a better place.

Thank you for bringing up this topic.Take care all.susan

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11/20/2008 19:39
beauty4ashes
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Susan, I'm glad you joined us on this thread! Don't worry about anything.... when you have Lyme, hun, it's a "pity party" for all involved! *throws confetti* Not, LOL

But really sweetie, that's what this group is for,.. sharing experiences, laughing together, crying together, even venting together. In all those things we support eachother by sharing what's going on with us, our struggles both emotionally and physically, by listening to others when they share & supporting them in their battles. We all need to unload and be lifted up by our peers who understand what we're going through, and only other Lymies will really, truly ever know what it is like. Some may try, but it's just not the same.

I am glad you have shared your feelings. Now we can support you in that way, too! I look at it kind of like this way (because I'm one of those odd ducks that often sees things from a cliche' (sp?) point of view, LOL). We are all in this great battle, each fighting from another angle, and many times needing "back-up" from other troops. If you need us, blow that bugle! Or else we're never going to know that you need us there, right? Oooooh, I hope that didn't sound as dumb as I think it did, LOL,... Well, I think everybody will understand what I'm trying to say here.

And, JMHO, but I think you are on the right track going the natural route now. There have been SO many people on this board who have improved by leaps and bounds on a natural protocol! I'm going that route myself, and am excited about it. Still going to be a long road to recovery, but I truly believe it's the healthiest path to take with this...

(((BIG HUGS)))

Tahnee

Post edited by: beauty4ashes, at: 11/20/2008 19:41

*ugh* Darn Lyme-Brain and typos! SO frustrating, LOL!!

Post edited by: beauty4ashes, at: 11/20/2008 19:42

Cripes! Still missed a bunch! Okay, last attempt, after that, ya'll just have to suffer with the booboos, LOL!

Post edited by: beauty4ashes, at: 11/20/2008 19:45

I'm F.I.N.E.
Frustrated, Irritated, Nonfunctional & Everything hurts!!

Sarcasm: Embrace it!
______________________

"Always hold your head up, but be careful to keep your nose at a friendly level" - Max L. Foreman
______________________

I know God will not give me anything I can't handle.
I just wish he didn't trust me so much.
- Mother Teresa
______________________

"There's always light at the end of every tunnel, just pray it's not a train! "
______________________

Faith makes things possible, not easy!
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11/20/2008 19:55
seymour7
Posts: 131
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Thank you for your kind response.Sometimes theres so many things going on, you dont know where to begin.Its get so overwhelming.Hope you have a nice vacation and everyone has a good night.
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11/20/2008 23:44
beauty4ashes
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Posts: 665
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Seymour, I understand what you mean. It is very overwhelming. For myself, life is already so crazy, and on top of it I've been sick for so long. But, now knowing why I'm always getting so sick, I have been researching like crazy to learn all that I can about this disease, and it is just plain overwhelming... it's loike sometimes I just have to stop & take a breather because it's like, "whoa, too much information!". It honestly feels like it starts to consume you.... at least that's how it can feel to me sometimes. I just try to take everything in stride, and do my best to hang on for the ride. Good or bad, I'm in it for the long haul.

Here for you, too, hun, so if you need a shoulder, you're in a good place for that.

Thank you for the well wishes, too. I appreciate that! We don't leave until next Wednesday, but then we'll be gone for 11 days so I might be a bit more scarce between now & then, and I probably won't be on at all during the vaca, but will again when I return. That's also when I'll be starting my treatment, when I get back so I'm sure I will be seeking out a lot more support then also.

Sleep well & (((HUGS)))

I'm F.I.N.E.
Frustrated, Irritated, Nonfunctional & Everything hurts!!

Sarcasm: Embrace it!
______________________

"Always hold your head up, but be careful to keep your nose at a friendly level" - Max L. Foreman
______________________

I know God will not give me anything I can't handle.
I just wish he didn't trust me so much.
- Mother Teresa
______________________

"There's always light at the end of every tunnel, just pray it's not a train! "
______________________

Faith makes things possible, not easy!
Reply  


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