So, my question is,.. are there other members here who passed on Lyme to their kids inutero (sp? Lyme-brain), and how did you recognize it?

Or,.. if you know you got your Lyme after having contracted Lyme, but passed it on to your kids, again,... What signs did you first start recognizing in your kids? Or, your spouse for that matter?

I don't know if I am thinking I am picking up on possible Lyme symptoms or not in my kids, but I have this past year especially, been noticing a lot of fatigue & aches/pains, sleepiness, insomnia, etc. in my older two.... However, they are both 'tweens' (10 1/2 & 12 y/o) are going through puberty, including both started menstrating within 2 weeks of eachother back in February. So, it could just be puberty, too. I sure hope anyway!

Never thought I'd say that! LOL

Anyway, just some thoughts I've been pondering and thought I'd see what kind of feedback I'd get on it.

I'm F.I.N.E.
Frustrated, Irritated, Nonfunctional & Everything hurts!!

Sarcasm: Embrace it!
______________________

"Always hold your head up, but be careful to keep your nose at a friendly level" - Max L. Foreman
______________________

I know God will not give me anything I can't handle.
I just wish he didn't trust me so much.
- Mother Teresa
______________________

"There's always light at the end of every tunnel, just pray it's not a train! "
______________________

Faith makes things possible, not easy!

Sorry to say that there is a chance. However, there is a greater chance of passing when you are pregnant and get bit as opposed to having and passing...but again it depends on the person.

I was lucky to be on some degree of treatment with each pregnancy. My oldest, I was even able to have the placenta tested, and it was clear. As far as the twins, i was really really healthy, but they breast fed for nearly 2 years, and I was only on abx for 1 of those years. And with the last, my symptoms resurfaced with a vengence...but they put me on abx since I had to have my GB removed. And I have been sick ever since...

I have had the girls tested not through igenex, but so far they are ok. My oldest has a wicked strong immune system and the twins seem to be following. Altho, one of them has had some issues and now has a rash that I used to get all the time...but since I didnt immunize, and their systems are strong, I think they are ok...

As for your girls. hun it wouldnt hurt to get them checked. Female, puberty, and active Lyme is like the worst case scenario. That's what happened to me and it has been a fight my entire life. So please, get them checked - or at least talk to your LLMD about it...better safe then sorry. And getting them on some alt therapies probably wont hurt.

Wish I had some thing better to say...but it is what it is. Dont risk it with them.

Christine

Jen

I have ALL the same questions and concerns and am eager to hear what other members have to say on this...

And as an aside...a friend of mine who has Lyme did mention to me that her LLMD does believe it can be passed inutero(?sp also lol) and that it has been her experience that the Lyme often doesn't present in these children until the hormones of puberty kick in.

Again, please keep in mind, that this is all heresay. But it scares the crap out of me and I'd like some answers too!

Yes, I am going to talk to my LLMD when we get back from our vaca. I'll be going back in to start treatment then (still have to post on this morning's appt) so I don't have to worry about herxing on the vaca.

And that way, I can look at our funds and prepare for more testing. I want hubby done, too. But for now, we're getting started with me since I'm the worst. My LLMD is very reasonable, but it still ran me about $600 between the two visits Friday & today. But, he spent two hurs with me on each visit so that's 4 hours of PHENOMINAL attention & compassion, comprehensive tests, and a slew of labwork, including my Igenex, which was $245 all by itself.

It seems puberty brings out the worst in a lot of conditions...

I have already been watching my youngest who has Neurofibromatosis... it is also known for 'progressing' once puberty hits, and she just turned 9 and sure enough I am finding signs of dermal fibromas so have to get her back in for another MRI and a follow-up with her pediatric-oncologist.

Dharma, what you said about the LLMD and Lyme symptoms not presenting until puberty in those kids exposed to Lyme inutero (sp? Me again too, maybe I should look the darn word up at this point, LOL!)... I'm already having a 'weepy' sort of day,.. little things making me tear up, and so that, and because I already have suspicions... wow, Niagra Falls!!

But, I'm glad you told me that,... this is the kind of info I'm in search of so I can be somewhat familiar when I bring it up to my LLMD in a couple of weeks. So, THANK YOU!!

(((BIG, BIG HUGS))) ladies,.. Love you!!!!

I'm F.I.N.E.
Frustrated, Irritated, Nonfunctional & Everything hurts!!

Sarcasm: Embrace it!
______________________

"Always hold your head up, but be careful to keep your nose at a friendly level" - Max L. Foreman
______________________

I know God will not give me anything I can't handle.
I just wish he didn't trust me so much.
- Mother Teresa
______________________

"There's always light at the end of every tunnel, just pray it's not a train! "
______________________

Faith makes things possible, not easy!

It's scary, I know, but not knowing is what is so frightening. If I knew I could maybe try to be prepared some how...put money away for treatment along with college, make sure I have a Lyme literate peditrician...I think I'll do those things anyway now that I think more of it.

It's just terrifying and inhumane if anyone knows the truth about the extents of this illness and are not sharing with the public.

I guess my point is...sorry if I made you upset...

But please know that I am right there with you!

HUGS!

unfortunatly it's a strong possiblity for us moms to pass it to our children. DO NOT beat yourself up over this, you did NOT know. I have been thru these emotions of guilt, saddness, despair, as I wouldn't wish this on my worst enemy, let alone my own children. and it's likely I unknowingly have infected them. It breaks my heart. Everytime my daughter complains about noise bothering her, or my son says his feet are tickling him (as in RLS), i have an anxiety attack.

most lyme specialists say not to treat lyme unless you are symptomatic. Some people can live with this thier whole lives and never be affected. I pray hard that all of our children have that life.

The good news is that we are being educated about this disease, so those who come after us will likely have an "easier" time. if my kids start showing strange symptoms that persist, lyme won't be my last option, it will be my first thing to check. Also, they say that kids deal with this better, get well easier, etc.

One of the best things we can do for our kids is to try to keep them healthy. eat well, exercise, vitamins, supplements, etc. As I know all too well, infection can trigger a downhill slide. as can stress. I know it's impossible to avoid these things, but I try my best with my kids.

it's so hard to differentiate between "normal kids stuff" and possible lyme symptoms. I know I was worried sick about my daughter, for a year getting dressed was a battle, socks bothered her, clothes bothered her, she'd only wear a certain kind of fabric, etc. I don't know if it's a hypersensitivity, or what. I took her to a neurologist at the time, his answer was ritalin...i said no. it's since gotten less severe, and now my son does the same thing, at about the same age. other parents I've talked to have similar issues. of course, this is just one example of a few things that concern me .... and the lyme thinking in me starts to wonder, well, maybe those other kids have LD too.... it's possible.

i know it's a mothers worst nightmare, I just have to keep believing everything happens for a reason. otherwise I might just loose my mind.

big hugs to you

j

We've listened to these stupid doctors tell us it was all in our heads and there was nothing wrong with us for so long, we've become brainwashed, till we revolted and said, "NO, Damnit!! It's NOT all in my head, and I'm gonna find a way to prove it to you!" And that's what we've done. So this place has become our refuge, and our place of solace. And it's wonderful that we have such spectacular group leaders and such wonderful support. But we also can't forget that there's either info out there that has been still hidden from us or hasn't been discovered. So, we just can't go around blaming ourselves for things we couldn't control and can't now change. Give yourself a break, and just attack this next thing the way you've attacked your own care, hun. You and EVERYONE else out there...Dharma and everyone else who's dealing with this particular issue. And everyone who will in the future. K?

I know that this is one thing I have in the back of my mind. I don't yet have children, and for me, it's almost a moral/ethical question of should I? Is it better to adopt, and could I even qualify? Will someone look at us and say, you have a medical condition that is incurable and deadly (cuz when it comes to adoption, they'll use it against me, instead of saying it's curable, right? anything they can use against you they will, and somehow miraculously, they'll actually have the accurate info instead of all the bullshit they feed us, dontcha think??), and couldn't you even pass it on to your husband? Well, then where's the kid gonna go when you two die from this? Or what's gonna happen when you are both incapable of caring for it cuz you're too sick to do anything? Yeah, there's a lot of concerns for me. And if we have a child, I'm risking passing it to my hubby AND my child...So what's the best choice? Just have pets? I mean, the ONE thing in this entire world I've EVER, EVER wanted more than anything is kids. I can remember from the time I was like 9 or 10, I wanted to grow up and get married and have kids. Not have a career, I mean my life has DEFINITELY not turned out the way I would have expected. So, now what do I learn from this? LOL...yeah, haven't figured that one out yet!

Anyway...those are my thoughts on the subject. Can't beat yourself up over it. And for me, IDK yet! *hugs* to all!

Jen