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"I have lyme" (Ethan01)

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grandmasylvia"MDJ has been "a soft place to fall" for me as Dr Phil says. I have this very painful rare disease Dercum's Disease and take comfort in finding others here who share their knowledge and compassion. Many
members have helped me just by understanding my anguish and validating
my pain. We are working together to encourage research toward a cure.
" (grandmasylvia)

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Lyme Disease ForumsGeneral & SupportUpdate Rifampin,Tetracycline, Plaquenil
01/09/2011 08:11 AM
ptm82379
 
Posts: 194
Member

It has been a while since I had seen any improvement.

So far I have treated for Lyme, Babesia, and now I am beginning treatment for Bartonella.

I have tried Ceftin, Zithromax, Flagyl, Doxycicline, Clindamycin, Quinine, Clarithrimycin, and Plaquenil.

I am in my 7th month.

Currently I am treating Bartonella with 600 mg Rifampin, 1500 mg tetracycline and plaquenil (not sure of dose) but 2 times per day.

I saw improvement on ceftin (very little)

Flagyl (miserable herxes) but I felt it did alot of work

Now on the Rifampin I am feeling much better. I still have off days but I feel that I am thinking clearer and my Tinnitus is getting much better (almost gone) I'm not even a week into this protocol yet so hopefully things will continue to improve.

My hopes and prayers are for my eyes to recover.

They have bothered me for 16 years. I have seen some improvement with them but not much.

Pray for my eyes, guys.

Thanks for listening.

Reply

01/09/2011 08:34 AM  Top
shorelinelyme
shorelinelymePosts: 1252
Senior Member

ptm,

So glad to hear that you're feeling better on Rifampin...It does pack a powerful punch!

We will absolutely pray for your eyes...and hope they improve for you soon.

Hugs,

Jackie


01/09/2011 01:06 PM  Top
ptm82379
 
Posts: 194
Member

Thanks Jackie!

01/09/2011 01:35 PM  Top
wlkthlne
wlkthlne
 
Posts: 1605
Senior Member

I for sure will pray for your eyes...Boy do I know about the eyes...you got more years on that than me!

I have found the Doxy-Rif combo to help greatly with the eye's...

May you find the same! keep at it!

wlkthlneCool

Anything I post or respond to comes from a Lyme and Bart victim himself. I am NOT a doctor. I do my own research for ME...I may share my findings and will post them. They are for general talk and vent...If a group leader feels the info is worth saving somewhere, they are more than welcome to do with it as they like. Wlk=)

01/09/2011 05:01 PM  Top
ptm82379
 
Posts: 194
Member

Thanks wlkthlne! It will work...I can feel it
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