I've been under treatment with ABX for 3 months now with no results and I'm sick of taking all this junk knowing it's probably not going to do anything. I had a bad experience with my first LLMD and now my 2nd LLMD is telling me to order supplements which I can't afford.

On top of this we are figuring out that my husband with the brain tumor has got to have Lyme disease with the symptoms he has. He's really sick and we don't have the money to get him treatment. PERIOD. We can't even afford my treatment.

I get calls from bill collectors and credit agencies day and night (8 am to 9 pm) 7 days a week. I can't even answer my phone. Every bill I open is either a collection agent or a shut off notice. My husband is trying though disabled, to work for friends to bring in extra money but it's not enough.

We have to go to Boston in 3 weeks for his brain tumor and have no idea how we're going to pay to get there. We don't have a friend in the world that would or could pick us up at the train station if we can afford a train. Driving kills us. We're thinking that this time we may have to drive and sleep in the car at a rest area because we can't afford a hotel.

The few credit cards I was saving a little credit on for emergencies have all sent me notices that they've lowered my credit limit to my current balance because they ran my credit report. How special. Now I don't even have anything for emergencies, and I'm only talking maybe $200 total, but that's alot of money to me.

I'm so depressed I have barely been able to get out of bed except to swallow the junk thats supposed to make me better. Zithromax, Mepron and Artemisinin, oh and the acidophilus. I forgot that one that I can't afford either.

Anyone see why I haven't been writing anything lately. I'M OUT OF HOPE!!! Here's another collection agent now. Gotta go hang up on them. Bye.

Cindy

*♥´¨)
¸.•♥ ´¸.•*♥´¨ ♥•*¨)
(¸.•´ ; (¸ ;.♥•Wolfpack♥



COMMITMENT: "True commitment begins when we reach the point of not knowing how we can possibly go on, and decide to do it anyway."

The gray ribbon is to honor my husband's fight with a brain tumor and his ongoing courage to keep his hope and faith so brilliant!

UNDER OUR SKIN VIDEO TRAILER ABOUT LYME DISEASE
WARNING: May contain disturbing content to some
www.youtube.com/watch?v=sxWgS0XLVqw

If you can find one tiny ray of hope---- try to hang on to it.

I don't know what to tell you to do....the only thing I can think of that might be of immediate help is to apply for Food Stamps.

I'll say a prayer for you. (I know you're not a Christian...I hope you don't think I'm being disrespectful). That's just what works for me....praying to God with all of my heart.

I have just signed up on this forum.

After 20 years of fatigue that was so bad I could not drive for falling alseep I tested positive for lyme.

I feel bad for you and wish I could help.

I can't say that after trying antibiotics for over a year it helped me much.

I have the numb fingers and neck pain but I am not sure if mine is from lyme.

I had a pinched nerve a few years before the test with IGENEX.

Is there some type of financial help with medications that is listed on the lymenet group?

If you need to see a Dr and cannot get help close by you can fly free with Angel flight.

They are great.

Cats Claw didn't to anything for me.

So far not even a rife machine has helped. Sometimes I wonder if my test could be false positive but I did have some bands that were borrelia only plus the IGG was CDC positive.

None of my tests showed co infections and I did get treated with a rotation of a combination of antibiotics. I think I felt better after doing that but nothing great.

I sure hope you and your husband can recover.

I take that back and I am going to be stateing it as a fact you are both going to feel great, and recover completely.

Blessings,

sandy

Many Hugs

Julie

I'm so sorry you're going thru all of this. I think you may have mis understood the "if you don't have anything nice to say don't say anything at all". The problem was the personal attacks on people. Please read my recent post something like "I don't want this to go unnoticed" kind of explains.

I want people to be able to come here for support, to vent, to make friends, etc, not have to worry about having a personal attack on them.

I can understand your situation. Sadly, it's MUCH too common with lymies. It's not fair, it's not right, I'm trying to keep it clean, but if I said what I really wanted to, don't think it would be appreciated on a public forum. Basically I'm ticked , but put in a much more powerful word there.

My best friend, her son, and husband are all sick, disabled from this disease. They are likely loosing thier home right before Christmas.

Each week i try to get enough change together to buy a mega millions ticket (I don't even have a freakin dollar to do it with, I have to find change), in hopes that I can win it, not just to help my family, but so many other lymies. Of course it's usually someone who doesn't really NEED it who wins, but I can tell you this much, should I ever win, I know I could do a lot of good and help a lot of people.

I used to be the person out there doing charity work. I would take my kids when they were younger....well, their still young, 6 and 5, but anyhow, we'd deliver meals on wheels before I got too sick to do it. My daughter and I would make jewelry to sell at craft shows raising money for people with cancer, not for thier meds, but just money to do with what they wanted. one year we raised $500 for a 5 year old boy whose meds were $1000 a day, they obviously couldn't afford a thing for Christmas, and we gave them that money. I wanted to show my kids that even though mommy is sick, we aren't the only ones (this was before I knew I had lyme).

Now, the tables have turned. We can't afford Christmas for our kids, and my daughter had a long term substitute teacher this year, her regular one had a baby ....well, this woman is an angel, when school first started, I told both kids teachers about my lyme, and how they might have some issues in school becuase all they know is sick mom, mom coming home surgery after surgery, drainage tubes all over, and going to PA every month for lyme doc appt.

anyhow, this teacher called me up 2 weeks ago one night, and said there is a lady who every year "adopts" a couple families for Christmas. Basically she and others buy gifts, get gift cards, make meals etc, for families in need.

I was touched. And thankful that my kids will have a Christmas.

There are people out there willing and able to help. I really wish there was something I could do for you, and so many others in the same position. If you need to talk, please pm me anytime.

love,

j

I'm sooooooo incredibly sorry you are going through this right now. I will tell you something, and I'll say it in public, as you put all of this out there, I wouldn't normally say this in public, tho. I just filed for bankruptcy. I have no income, and my hubby's income is just simply not enough. My case is basically open and shut. It hurts the ego like you have no idea. But we didn't have a choice. We have nothing. We won't really have a Christmas, we weren't going to be able to afford my next meds. I scrounged up enough to be able to buy my next bottle of Lauricidin. We had to hire a lawyer, and he's allowing us 3 months to pay off a rather substantial bill. Just the court costs is $300...And his, I'm not even going to say. But we can afford it, with not having to pay the credit card bills.

Perhaps you should consider applying for bankruptcy or something like that? It sucks, but in your situation, I can't see how you wouldn't get it. Also, aren't you on SSDI? If so, don't they cover medical expenses? I'm confused as to why you are having so much trouble getting your meds. Don't get me wrong, I'm not questioning you, I'm so concerned, I can hardly see straight! I thought that SSDI had medicaid or medicare, and that they covered your meds. One of my friends is on it and I didn't think she was paying for her meds. She's also getting food stamps. I'm wondering why it's working so differently for you. I think there must be more out there for you that you haven't explored. Don't be afraid to go find it all--everything you can get. Heck, go to a food bank and get food. They are available! Please, don't sit around and wait to die!

I'm here for you if you need to talk! *hugs*

jen

I have no problem either saying this...I had to file for bankruptcy 4 years ago due to my divorce 10 years ago. He was to have medical insurance on me, I had to have emergency surgery 44,000 plus other bills he left me with, over a hundred thousand, I could not pay this...I hated doing it I really did, but I had to do what I had to do. I was stuck with some which I am still paying for but nothing like before...

People will tell you it will ruin your credit, NO...Months later got a good job, had to buy a car interest rate was 3.0 no problem getting a loan...

If that is what needs to be done to survive, go for it, heck its not like you bought diamonds and a fur coat, you have medical bills that need to be paid....I don't feel bad about it, I did not cause it, my illiness and my ex did...And I got stuck with it all...

Much luck in all this.

Julie

That really sucks, hun. I agree. We were somewhat irresponsible, but yes, my first marriage is mostly responsible for my bankruptcy as well, as I was left with bills I didn't actually owe, just to get out of the marriage. That's all water under the bridge now, and it is what it is...I CAN'T feel bad about it, because it's what I have to do to live, and to get my health back to where it needs to be. Otherwise, I'm afraid I may die. I REFUSE to die!!!

I'm sorry you had to deal with that, too, Julie...I really am. Cindy, I hope you can find a way out of this, hun.

*hugs* to all of you guys struggling this holiday season.

Jen

Don't be sorry, I just had to do what I had to do...I remebmer the day I had to tell Jim (as he is very good with money etc) I felt so awful I was crying my eyes out...He was very undertanding...then the police showed up at our door with a court order from Master Card, that is when I knew I had to do something....

Mine was pretty cheep 500.00 total done within 3 months....I did feel like "Dirt" but my health had to come first and formost...I even told the judge that, he was so very understanding, he saw what was charged on the cards 75% medical expenses, the rest the Ass of an ex husband....He got stuck with NOTHING...

Oh well that is my dirty laundry out in the open...LOL

Julie