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Related topics: LLMD Controversy, Lyme Awareness,

05/16/2007 06:21
jaime1978
Lime Green Ribbon
Posts: 1094
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Just wondering, as some people saw Dr. Oz on the Oprah show yessterday and he was discussing Lyme. She blew it off as not a big deal, but he seems like a good allie (sp?)

Wonder about Montel, as he has MS....but maybe he doesn't. Maybe he really has lyme.

I am sure there are many celebs that we could catch the attention of for help. Even news stations to run stories.

We need to educate people that lyme is not a 6 weeks of antibiotics cure. I think between us and lymenet.org folks we have a large group of people who have been sick for a long time...me, 20 years! And no treatment yet, still working on that.

And of course we need to make it clear to the group that fights our precious LLMD's and trys to revoke thier licences for treating us the way we need to be treated, that it takes much more than 6 weeks.

I am new to this, and don't have all the info and answers, but I know of many who have already been down this road.

What do you think? What should we do? what's the first step?

I know if I don't get the right treatment, I will be in a wheelchair by the time I'm 35.

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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06/20/2007 00:51
Bettyg
Green Ribbon
Posts: 187
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jaime,

when you're on lymenet, go to activism and skim thru all the pages there, it will have posts who we have contacted in the past. these are the folks i can think of off the top of my head!

oprah many times without a blink of the eye,

montel,

LARRY KING LIVE....i led a campaign on this for 2-3 mo.;

tried CNN correspondent, greta ________;

wrote steven speilberg, and got the letter thru to him from an employee who is a nephew of my classmate!

we've tried more talk show hosts.

********************************

changing subjects but along this line...

be sure to read in activism ROBIN123's post about taping a 1 hr. special on lyme 2 wks. ago that will air at unknown time/date in future. there were 3 adults; 1 child. other 2 adults had very prestigious jobs bringing that in with their lyme disease. she was really pleased with how it went. be sure to check that post and she will post airing date/time especially in CALIFORNIA where they taped it!

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