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"MDJunction to me is a life saver... when i first was diagnosed with Scheuermann's Disease i wrote a message to a page i found on google, hoping that they could help me.... you'd never know it but that weird feeling (you know that one where it feels like someone actually cares) came over me when i opened my email next day to find that someone on the other side of the world (at the American Medical Library)had read my message while i was sleeping, and there low and behold was the address to MDJunction.... well it is everything to me, i live it breathe it and love it!!!!! I have found many people who are struggling with similar issues banding together to help each other. It is the best place in the world, and i couldn't think of another place to go to meet so many lovely people....

thanks MDJunction
" (cinderella)
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12/01/2008 11:17
RubiaFaerie
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Posts: 17
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Thanks Fluffy,

the dr. visit went south quickly. I forgot all my notes and list of symptoms and as described in my other responses to this post the dr quickly went down the road of thinking it was more likely depression than lyme even though i have a lot of the symptoms, they were all "soft symptoms" not enough to warrant treatment, and they might be caused by depression. she ordered for me to have the lime titer through labcorp and said if it was negative we'll explore more into the depression possibility. at this point i started tuning out and was thinking i'll just try my dr with all the info I have, at least she knows me and should listen to me more instead of jumpimg to that concllusion.

Thanks for the support though and for the next visit hopefully i remember all i need hehe! my memory is lousy now :o/

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12/01/2008 12:07
fluffyluggage
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WAIT!!! Was this at an LLMD? Are you kidding me? Labcorp doesn't report all bands. Don't waste your money. The ONLY labs in this country that are worth spending the money on are Fry and Igenex. Don't bother. Get a second opinion from an actual LLMD. Cuz this clearly wasn't a TRUE LLMD! That's crazy!!!!!! What a jerk! I would have walked out if I were you. You are MUCH better person than I!

Girl, you have to find you a REAL LLMD and stop messing around with this. Don't do what I did and wait 14 years to get to the bottom of this. As far as I'm concerned, there's no such thing as "soft symptoms"! That's assinign!!!!!!!!!!!!!!

UGH. I'm so sick of hearing the same stories over and over again. You've got to get some REAL help here, or you'll end up in my position, and I'll be darned if I'm gonna let this happen to anyone if I can keep from it. Get up off your booty and start fighting now, cuz no one else can or will! I'm sorry to seem pushy, but trust me, you don't want to end up where I am! PLEASE fight for yourself, hun. You must! I'm so sorry this didn't go well, but you've got to get back on your feet and find someone to listen. Don't let them tell you it's something it's not! Talk to Jaime, tell her where you are, and get a list of LLMD's near you. Go find one, and get your diagnosis and start treatment. PLEASE don't let this wait!

*hugs*

Jen

Just because it's impossible doesn't mean it can't happen.

I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help.

I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!

The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.

Popular posts by fluffyluggage
    feeling alone
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12/01/2008 12:57
RubiaFaerie
Lime Green Ribbon
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It's ok, you don't sound pushy :o) you sound like you care! The dr. mentioned above wasn't a LLMD, but was recommended to me by someone who has lyme and runs the hospital. I guess he had the bulleyes rash. And don't woryr, with all that i've read about labcorp, I didn't even go. I figured I'd do that if my dr. wanted to but only cause I trust her drawing my blood, but I will mention to her the two labs that should be used. I'm going to try once more with my regular doctor, with the information I know and will print out. If that visit goes south, then I will see a LLMD. We are very tight on money and are about to buy our first place so I'm trying to explore the ones covered by insurance first. The appt. with my regular doctor is tomorrow, so I will let you know how that goes. Hopefully it goes better otherwise I'll hunt down one of the LLMD's. I have a small list, you would think there would be more in central NJ being we're high in the lyme area... it's frustrating! Keep your fingers crossed my normal doctor actually listens to me...

Thanks for your support!

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12/01/2008 21:33
fluffyluggage
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Posts: 1278
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Oh, I totally understand, don't get me wrong. Heck, I'm not even seeing a doc, except for my primary care stuff, cuz we're so freakin broke! I'm glad you understand, I really am, I don't want to come off like a loony-toones! LOL I know it's frustrating, trust me, I really do. I totally sympathize, I'm in your boat, trust me, I get it all...everything! *hugs* And if you want to talk, anytime, just PM me. I'm here!

Jen

Just because it's impossible doesn't mean it can't happen.

I'm not a doc, so anything I say is my opinion only. Nothing I say is meant as offense, I offer what I can as help.

I believe in educating myself on all my medical issues and being my own advocate, for no one else with do that on my behalf. I recommend we all do the same!

The definition of insanity is doing the same thing over and over again and expecting different results. Perhaps I truly am insane for expecting these docs to listen to me when I say the same things repeatedly to no avail? LOL. I am tired of seeking out new docs and getting the same result time and again...Forgive me if I seem bitter some days.

Popular posts by fluffyluggage
    feeling alone
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