Lyme Disease Support Group

Ok, I thought my regular doc was going to order

just a lyme titer...to my surprise, this is what

the script said for the blood order.

EIA, Reflex to Western Blot

(IgG, lgM) 1529T

Is this good....does this mean it's not just an

Elisa test, is this more reliable?? I was so

excited when I saw Western Blot on there.

anyonw know what this all means?? [b]

have you gotten your results yet? After 7 years since exposure, and one false neg (too soon after the bite), my lyme titer showed equivocal. The nurse called to say it was NEG. I called back and insisted a Western blot be added on only to discover it was NOT neg, but equivocal--a western blot had already been suggested by the lab! I'm glad I called back. This was 2 days ago. Now I'm in for a battle to get a LLMD here in Savannah area (although my PCP really does seem to be open to lots of ideas) and especially bluechoice HMO to pay for iv therapy.

Questions: anybody know about Sav area docs? Bluechoice HMO pay policies? Is this Western blot going to show false-neg, do you guys think?

I'm glad I found your site.

turns out he only ordered ELisa test...if that was positive then western blot...go figure, elisa was neg.

BUT good news here....I found 2 LLMD's in PA that accept my insurance, so I wll be getting in with them asap and geting this under way!!!!! I'm so scared, as so many get worse on treatment before they get better...not sure I can handle much more pain, and fatigue!

I'm so happy you found the 2 llmds!!!Hurray!! I know it will be worse before it is better, but just think, it could just be worse with no HOPE of getting better if it were another dx. My western blot will be back friday, with any luck. I asked my pcp to give me oral antibiotics until we get the other results back. I havent't heard back from him about that. It would have made since to give me that so it was out of the way for insurance purposes--they'll want oral before oking iv therapy i'm sure.

Well, i'll let you know about the WB results. I'm so happy for you though!!!

The wb was back thursday. Nurse says it's negative. I asked for specific info regarding bands, etc., not just positive or neg. Got no where. Made appt for tuesday with doc. I'm going to ask to be referred to an infectious disease specialist here (Dr. Roth) and hope to get somewhere with him.

I don't understand what was going to happen with reg doctor----equivocal lyme titer, neg wb---was that going to be "it"?

I feel like I live in a third world country. An obgyn I know told me this am that lyme is endemic in our area. Nothing from any gov agency shows this online.

How are things with you?

Good luck with your Tuesday appt, hopefully the doc will be more cooperative than the nurse and will be able to provide you with more information.

It's amazing , the split opinions regarding lyme.

Part of the problem is the labs regular docs use... I hear you want your blood sent to Igenix lab in CA. And of course, I know LLMD's order a whole slew of tests. I did get an appt. with one!!! And he takes my insurance.... they are going to send me an order for labwork to get done here, and sent to them, so he'll have it when I get there. Something like 11 tubes of blood or something! So it's not just a WB

I've been feeling lousy lately, not sure why. Pain levels are up, energy levles way down.

Thanks guys for your support.

I'm hopeful that the infectious diease md will be better prepared and I do intend to demand (I hate that word) my blood work go to IX this time.

I'm basically sitting here feeling horrible waiting for appt tues. I may actually show up tomorrow and have a sit-in until I get appt with other doc. I think 7 years is long enough to wait my turn to be taken care of!

Hope you feel better soon Jaime.

I know how you're feeling. I've had this for 20 years, but the past 10 have been miserable. I'm so depressed over it all. I feel bad for my kids. I do a lot with them,...but would like to do more, and have more patience...and they probably have it too you know.... have to see what happens at my appt. and then go get them tested. Poor little things.

Hang in there....don't over do it.... lay down with a heating pad... if you have any pain meds take some of those... (I'm out of mine or I would be...been a rough month).... muscle relaxers seem to help a little too.

Hi! I have CFIDS & FMS and have had them for 12 years.

In late 2005 I was diagonosed with Lyme Disease too.

I was living in CT then for a total of 6 years. I just

moved to Savannah, GA and am trying so hard to find a

Doctor here! Any sugestions? Thank you so much!!

Warmly, beckybeader