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DannetteWrites Posts: 69
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Hi. I'm Steve. I'm Dannette's fiancee. I am posting this for her because she is in the hospital with no access. Dannette was taken off all her meds for safety tests. Her white blood cell count came back critically low. Now everything has stopped. Lyme treatment, everything. Any tips on getting that WBC count back up?
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kristielyme25 Posts: 473
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Steve- please let DEC know that she is in my thoughts, and I hate that she had to stop treatment... Some things that might help boost her WBC count are: B12- helps WBCs mature and multiply Vitamin C- promotes WBC production Zinc- aids in WBC production, and helps WBCs be more effective in fighting infections, but can cause stomach upset... It would be best to get some of these vitamins/minerals from food, but I HIGHLY recommend doing sublingual B12. Not only will it help with the WBC situation, but it can help with the severe fatigue that comes along with lyme... Again, please let her know that I am thinking about her, and I hope she can resume treatment soon! Sending positive thoughts, and big hugs! Kristie I am not a medical doctor YET...my opinions are not approved by the FDA! ;)
“If you will call your troubles experiences, and remember that every experience develops some latent force within you, you will grow vigorous and happy, however adverse your circumstances may seem to be.”
-John Heywood
"Between you and every goal that you wish to achieve, there is a series of obstacles, and the bigger the goal, the bigger the obstacles. Your decision to be, have and do something out of the ordinary entails facing difficulties and challenges that are out of the ordinary as well. Sometimes your greatest asset is simply your ability to stay with it longer than anyone else."
~ Brian Tracy
~k~ |
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kristielyme25 Posts: 473
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doing some methylfolate might not be a bad idea either...it helps the action of the B12, and has helped me with brain fog and mood. It's a great natural anti-depressant! I've only been taking it a week or so and have noticed an improvement in my mood!  I am not a medical doctor YET...my opinions are not approved by the FDA! ;)
“If you will call your troubles experiences, and remember that every experience develops some latent force within you, you will grow vigorous and happy, however adverse your circumstances may seem to be.”
-John Heywood
"Between you and every goal that you wish to achieve, there is a series of obstacles, and the bigger the goal, the bigger the obstacles. Your decision to be, have and do something out of the ordinary entails facing difficulties and challenges that are out of the ordinary as well. Sometimes your greatest asset is simply your ability to stay with it longer than anyone else."
~ Brian Tracy
~k~ |
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Bettyg Posts: 27293
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steve, thanks for posting for dannette; follow kristie's advise; she has medical background experience. the rest of us don't here. please give her an extra hug/kiss from me/board members; we're so sorry to read of her being in the hospital. best wishes for her being up and at em again. bettyg, iowa leader BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader
NOTE: I DO "NOT" USE CHAT thanks!
**************************************
NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)
http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-
Any information provided should not be used to take the place of advice from your personal physician or other professional.
Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.
43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more. |
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littletree Posts: 96
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hey Steve, sorry to hear about Dannette, hang in there, our prayers are with you. |
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cmany Posts: 6253
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Hey Steve - if you get the B12 for her - make sure its the Methyl kind not the Cyan - there are 2 and the Methyl is much better for absorption...cant remember the full spelling - but when you look at the ingredients, the b12 will say from - you want the kind that begins with the M... I have been wondering how she is doing...please keep us posted...we are here pulling for her... And on a side note... Thank you so much for doing this for her...I know her situation is rough...and your being there for her to help her through means more then you will ever know... If at anytime you need more info, PLEASE don't hesitate to ask...we're not just here for her - but for you too!!! Christine [b]Group Leader Disclaimer[/b]
First and foremost - I am NOT a doctor, anything I share is based on experience & research. I strongly encourage you to discuss any and all information that I share with a health care provider.
************************
"I'm not afraid to take a stand
Everybody come take my hand
We'll walk this road together, through the storm
Whatever weather, cold or warm
Just let you know that, you're not alone
Holla if you feel that you've been down the same road...
And I just can't keep living this way
So starting today, I'm breaking out of this cage
I'm standing up, Imma face my demons
I'm manning up, Imma hold my ground
I've had enough, now I'm so fed up
Time to put my life back together right now" Eminem Not Afraid |
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TaraT Posts: 4164
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I missed this post in the middle of all of my busy moving and unpacking etc...I am so sorry to hear of her being in the hospital. I hope she recovers quickly. Do the docs think this is from lyme treatment or is there something going on there? I'm not sure but doesn't plasma have wbc's in it? I have no idea but for some reason was thinking that. I was hospitalized last year with blood transfusions. I know the fatigue doesn't go away when you get enough blood flowing either. Lyme sucks the vitality out of us all. *HUGS* to you ...I know this is hard for you too. WE ARE HERE!! Post edited by: TaraT, at: 12/05/2010 05:35 PM With Him we "live" no matter the circumstances. At His feet peace of mind can be found. Peace that passes all understanding is my quest now and forever.
Numbers 6:24-26
"The LORD bless you and keep you;the LORD make his face shine upon you and be gracious to you; the LORD turn his face toward you and give you peace." |
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kristielyme25 Posts: 473
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I agree with Christine...I should have clarified that she needs to get the methylcobalamin B12... I highly recommend the Source Naturals brand, and the cherry flavor takes away some of the bitterness, although you shouldn't taste it too much since it needs to be dissolved slowly under the tongue... FYI- my LLMD recommends taking 5 mg (5000 mcg) daily, and that is what I take. Please send her my love! I am not a medical doctor YET...my opinions are not approved by the FDA! ;)
“If you will call your troubles experiences, and remember that every experience develops some latent force within you, you will grow vigorous and happy, however adverse your circumstances may seem to be.”
-John Heywood
"Between you and every goal that you wish to achieve, there is a series of obstacles, and the bigger the goal, the bigger the obstacles. Your decision to be, have and do something out of the ordinary entails facing difficulties and challenges that are out of the ordinary as well. Sometimes your greatest asset is simply your ability to stay with it longer than anyone else."
~ Brian Tracy
~k~ |
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DannetteWrites Posts: 69
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Hi. Thank you for all these replies. I am not really computer literate but I am trying to learn. Please forgive any mistakes here. Like I am not sure how you talk to just one person? I guess I just answer the questions I see and hope for the best. Dannette is in the hospital because the low WBC led to an infection - started in her kidneys and spread. She is real sick right now but is getting good care. I hope we can pick up the Lyme meds again once that is dealt with. She gets really depressed sometimes. Her LLMD is not helping really with this. She is the doom and gloom type that believes Lyme is forever and that it you accept that things just get worse. Dannette says some syptom is getting worse and the LLMD says tough, live with it. I can't accept that. I hear there is no cure, but surely people do get better? Do get healthier? Do improve? Are there no success stories at all? I'll print this page out here when I figure it out and take it to her so she'll know people care. And I'll start buying this stuff. Thank you very kindly, Steve edited it breaking it up so all of us neuros can read it. bettyg, iowa leader Post edited by: Bettyg, at: 12/05/2010 09:40 PM |
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Tarlach Posts: 35
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That's really unusual for an LLMD to say that people don't recover. LOTS of people recover, especially if you know what to target first. I'm not sure what the actual numbers are, but at least half the lymies I know (who have been treating it for a long time) are either in remission or close to it. The people I see struggling the most are: People who don't know what they have and self treat the wrong infection/problem (I will say that many who get better do a lot of educated self-treating). or Have an LLMD who doesn't look for other problems (ie viruses, immune modulation, parasites, methylation, toxicity etc, etc) or treats them with a really narrow focus (doesn't think outside the box). Even the best LLMDs can take a while when you're narrowing down the most important factors to your treatment. It's not so much that some treatments work and others don't, but rather what you're infected with and what species it is. I also think that other issues are often missed, such as bio-films, cysts, immune support, herbal support (thank god my doc does both), viruses and parasites, diet, and toxicity. All the meanwhile, when this detective work is going on between the patient and doctor, the patient suffers.. a lot. Dr H. was right when he said that Lyme patients are some of the sickest people in the world. I read somewhere that they want to change the term for Chronic Lyme to Chronic Multiple Infection Syndrome... or some other. I tend to agree that most people would fit this category more accurately and I think it would foster more affective treatment. Get her immune system up, I wonder if Transfer Factor from Advanced Nutritionals would fit the ticket (in addition to what was already mentioned). Post edited by: Tarlach, at: 12/05/2010 08:13 PM Post edited by: Tarlach, at: 12/05/2010 08:16 PM |
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