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Lyme Disease ForumsGeneral & SupportAm I Expecting Too Much Too Soon?
12/02/2010 02:44 PM
Natsmom
Posts: 100
Member

Hi,

I've been on antibiotics for just a few days shy of 2 months. First, Doxy for 5 weeks, and then Omnicef and Azithrymycin ever since.

The only thing that has improved is upper abdominal pain.

Everything else still....sucks Sad

I feel just awful.

Is this typical, or should I have seen better improvement by now?

Is there anybody here who can share how long it took for them to begin feeling better?

Or is everybody here pretty much still sick?

Thanks for listening.

Reply

12/02/2010 03:07 PM  Top
Bettyg
 
Posts: 26651
VIP Member
I'm an Advocate

mom,

have LONG have you been sick?| that's the key answer to me. the longer you have been sick, the longer it will take to KILL OFF CHETES in your entire body.

everyone is different. it's TOO SOON to see improvements in my non-medical opinion. sorry Smile

bettyg, iowa leader

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

12/02/2010 03:10 PM  Top
TaraT
TaraT
 
Posts: 4164
VIP Member

If you have co-infections, then you may not be getting better because the co-infections need separate treatment FIRST.
With Him we "live" no matter the circumstances. At His feet peace of mind can be found. Peace that passes all understanding is my quest now and forever.

Numbers 6:24-26
"The LORD bless you and keep you;the LORD make his face shine upon you and be gracious to you; the LORD turn his face toward you and give you peace."

12/02/2010 04:08 PM  Top
Natsmom
Posts: 100
Member

Bettyg, I've been so sick for 5 years, but was just diagnosed properly this summer.

Tarat, I was tested through Igenex for all co-infections, but they were all negative. I do realize that doesn't mean I don't still have them, though.

Maybe I should talk to my LLMD about treating for them anyway?

I was hoping that my high CD-57 results would've been on my side and helped me fight this quicker. No such luck.


12/02/2010 04:36 PM  Top
waxby
waxbyPosts: 4132
VIP Member

~~~Hello natsmom,

~~~RE your "Am I Expecting Too Much Too Soon?" ~~~Yes.

~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell

12/02/2010 04:58 PM  Top
missy33
 
Posts: 752
Member

Really?? Too soon for results???? I was hoping to feel a little better by Christmas Sad But this does make me feel a little better because I am not seeing the results I expected in my children after two months and I was afraid they werent being treated with the right meds.

Natsmom, looks like we are in the same boat. I guess as long as I do not get any worse I can deal. Just the head aches that make it impossible to function!

Here's to hoping for a quicker than norm recovery.... good luck!


12/02/2010 05:14 PM  Top
waxby
waxbyPosts: 4132
VIP Member

~~~Everyone reacts differently.Some within hours or days and some not positively for a year or more.

~~~The important thing is to stay patiently vigilent.Doing whatever you can to keep your immune system strong,keep an excellent diet,proper rest,good attitude.

~~~Try adding different things such as herbs,supplements,etc.Ponder the mysteries.Tickle yourself.

```````~~~in my straight jacket~~~out on a limb~~~lookin like a cocoon~~~hangin by a thread~~~waitin for a butterfly~~~under the moon~~~Lovey-Dovey,Mitchell~~~

~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell

12/02/2010 05:23 PM  Top
missy33
 
Posts: 752
Member

I like you Waxby Smile

12/02/2010 05:24 PM  Top
TaraT
TaraT
 
Posts: 4164
VIP Member

haha especially the part about "tickling yourself" I picture a feather duster....
With Him we "live" no matter the circumstances. At His feet peace of mind can be found. Peace that passes all understanding is my quest now and forever.

Numbers 6:24-26
"The LORD bless you and keep you;the LORD make his face shine upon you and be gracious to you; the LORD turn his face toward you and give you peace."

12/02/2010 05:33 PM  Top
hopesalive
hopesalive
 
Posts: 1129
Senior Member

This is one more thing I have been thinking about.

I really have no way to know how long I have been sick

Have I been sick since a teen-ager, when the "hypersomnia" and strange nightmares began?

Have I been sick since my mid-twenties, then again in my mid-thirties, when I searched and searched for a doctor to help me with my energy levels?

Have I been sick since I got my first symptom outside of extreme fatigue and hyper somnia, which was my very first migraine, with aura?

OR have a been sick since approximately three years ago when first unemployed, when I attributed all symptoms to the "stress" of being unemployed?

I have no way of knowing.

I do know that I have been in remission at times.

I have had months where I felt better, then "trauma" or "stress" would send me spiraling and I would be diagnosed as having depression (twice) or PTSD (once).

Looking back, I definitely felt worse after these traumatic events, including after those deaths in the family, a car accident, then after our fire.

After all of the above I "bounced back" to tolerable levels of living which I mean to say a decent "quality of life."

But it has been worse, and no more remission since three years ago.

And even worse in the past six months.

I used to have such high energy in the summers, almost felt like a "normal" person again, and I still haven't figured out if it was because I could sleep more or due to the sunshine.

Three summers ago that stopped, and I feel the same all year long.

I have no idea how treatment will go for me, but I am not only preparing my body, I am preparing my mind that it WILL go well, and I WILL beat this damn thing!

It would just be nice to know exactly how long I have been sick.

But there is no real way I will ever know. Just guesses.

I hope you all start feeling better from your treatment VERY soon!

Best Wishes,

Hope :)

"Hope is a good thing, maybe the best of things, and no good thing ever dies."
~~The Shawshank Redemption~~

Igenex IGG: Negative
**23-25 KDA IND
**31 KSD IND
**41 KDA ++
45 KDA +
58 KDA ++
66 KDA +

Igenex IGM: Positive
18 KDA ++
**31 KDA IND
**34 KDA ++
**39 KDA IND
**41 KDA +++
66 KDA +
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