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11/06/2008 06:48
Jenn56
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Lyme community loses a hero and friend

November 05th, 2008 | Category: Celebrities, Patient Stories

Posted by: Andy

Leslie Rae Wermers, 7/7/1967 - 11/2/2008

The Lyme community has lost an important hero and friend–and so did I. Leslie Wermers, 41, died in her sleep on November 2nd from complications of Lyme disease. Leslie was a tireless worker on behalf of the Minnesota and national Lyme communities and a dear friend to so many. She gave everything she had to help others who were sick, and everything she had was an abundant reserve of love and support–even as her own health waned.

The first time I heard from Leslie was in an email several years ago during production of UNDER OUR SKIN. She said that watching the film trailer changed her life:

“You see, Andy, I had no will to live. I was so sick, with no answers and just wanted it to end. That was until I saw the trailer. You have given me so much joy….Your documentary saved my life.”

Since then, Leslie became our greatest film fan and an undying activist. I finally met her at the Iowa Lyme memorial which we covered for our film. Though she herself drove for four hours to be there, she gave our crew a hero’s welcome. Here are some video excerpts from our interview with Leslie. Her words are chilling and prophetic.

And here is Leslie as she appears in an excerpt from UNDER OUR SKIN.

Later, Leslie and her sister Tracie (who also has Lyme and worked with Leslie on behalf of Lyme sufferers) sent us a picture of their take on the film’s widely-used graphic of Mandy in the pool. Leslie wrote: “Tracie and I thought that this photo represents our passion to continue to help you finish this project, that will save so many lives.”

Leslie’s sense of humor and gusto were legendary. Over the next few years hers was a familiar voice in our office–calling regularly to tell us how much she appreciated our work, how we were her “angels,” and how much she “loved” us. But her love didn’t stop here. It was extended to so many people nationwide who were sick and struggling with Lyme. Leslie and Tracie started the support group Minnesota Lymefighters Advocacy. Suffering from Lyme induced insomnia, she had late-night conversations with people across the country–many of whom she had never met–offering them words of encouragement, hope and affection. It is a testament to her profound affect on so many and the devastating emptiness she leaves that so many have been moved by her passing, never having even met her.

Leslie’s death leaves a deep hole in my heart and in so many others. Her indomitable spirit and passion for life were equaled only by her anger at the injustices wrought by Lyme ignorance and her dedication to help heal. May this be a lesson–and Leslie’s legacy–for all of us.

Andy Abrahams Wilson

Producer/Director

UNDER OUR SKIN

Leslie’s Obituary

Leslie Rae Wermers Remembered on YouTube

--

3 Comments so far

Eileen McInerney November 5th, 2008 9:29 pm

My condolences to Tracie on losing her sister and to the rest of their family. We’ve lost another great person to this horrible disease.

Andy, thanks for helping to try and stop the madness going on in mainstream medicine. And madness can = murder.

Dawn Irons, Editor PHA November 6th, 2008 12:14 am

Tracie–

My heart goes out to you-…

I remember all the encouraging letters and photos you and Leslie would send telling to keep up the work with the PHA and that it was helping get the word out…especially on the days I wondered if it was helping at all– your notes would show up just when I needed the encouragement the most.

I am heart-sick for your personal loss and the loss to the whole Lyme community– Leslie was such a vibrant FIGHTER and an inspiration for us all…

She had such spirit about her!

There is a huge hole in the heart of the Lyme world over this loss. Please know we are mourning with you and keeping you close in our prayers as you grieve.

We love you Tracie!!

Dawn

Mandy Hughes November 6th, 2008 1:04 am

I thank God for people like Leslie…I was fortunate to know her and to be able to call her my friend. We spoke nearly every other day…she was a wonderful person who always made me laugh and I miss her dearly…

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11/06/2008 07:50
Jenn56
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RIP LESLIE,Yes guys she was a friend from MD junction,,I just cant believe it,It only proves that no 2 people with lyme are the same,She was a friend of mine that i met here,Im lost 4 words..
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11/06/2008 08:03
Julie4848
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How very sad. A good frined of mine Jan (used to be on MD) knows her well lives by her. I will pray for her family.

Julie

Lyme will not win, we will and we WILL…

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11/06/2008 10:25
beauty4ashes
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That is heartbreaking.....

She obviously made a difference though. We should all be inspired to help continue her efforts. The voice of Lyme suffers must be heard, and Leslie's passing must not be in vain.

My prayers are with the family also. (((hugs)))

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11/09/2008 08:52
Jenn56
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RIP,Leslie,,
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