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05/10/2007 20:56
erleichda
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My LLMD treats Lyme with antibiotics, but waits awhile before testing for coinfections. I have neurological problems: 3 types of neuropathy that have gotten much worse in a very short period of time. The damage it's done is permanent...once nerves die, they do not come back to life.

Does anyone know if neurological problems are a result of a coinfection, or might the antibiotic treatment help stop the spread of the neuropathy? Just wondering if anyone has been in a similar situation.

Thanks!

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05/11/2007 17:22
lateeda
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absolutely.....Co infections do cause neurological and central nervous system. I am the mother of two adult kids with Lyme. My daughter, 31, has MS symptoms due to the co infections from Lyme. She has tremers, weakness on one whole side of her body, drooping of her eye, and constant pain and weakness in her legs. MY ADVICE...GET THE FULL TESTING DONE!!

She is one massive abibiotics. My son, 28, Doesn't have the same symptoms, his are more with the headaches, stomach, liver and bladder, sinus, and throat. He too, is on massive antibiotics, all due to co infections.

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05/11/2007 21:34
erleichda
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Thank you for answering and I'm very sorry for your son and daughter. I know that I did not ask my question properly because I didn't look up the terminology first. I'm going to try again:

Lyme disease is the borrelia burgdorferi infection. Antibiotics are used to fight it. Can borrelia burgdorferi cause neurological problems, or is it a coinfection that causes them? Both? In my defense, I have only seen the doctor once and he swept in and out and I couldn't get a word in edgewise. I see him again on Tuesday and I will make him listen to me. But it would help if I could find an answer to this.

He's not going to do ANY testing until I've had a month of antibiotics. Then he uses Igenex, for which I am relieved. But if antiobiotics do not help with the neurological issues, I'd like to know what WILL help.

Thanks again.

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05/12/2007 06:22
lateeda
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Yes,here are a couple of web sites on the subject.

www.lymeinfo.net

www.nationalmssociety.org

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05/13/2007 17:53
lymebytes
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Hi, there is hope! I have had extreme neruo pain from head to toe. Neuro issues are a Lyme symptom as well as a Bartonella symptom.

Seeing an LLMD is important and of course being put on the right combo of antibiotics can alleviate neuro symptoms completely.

Since the major onset of my LD/co-infections (diagnosed for years w/Fibro by the way) I feared most my nervous system would be permanently damaged. I have been in treatment for 10 months and most of my neruo symptoms are gone, although they will flare with a herx.

Also, as recommended by Dr. Burrascano's treatment guidelines for neuro symptoms - I have faithfully done methylcobalamin (b12) injections at first everyday, now 3 times a week. Methylcobalamin injectables can only be purchased at compound pharmacies, not "corner" pharmacies. Methylcobalamin is much different than cyancobalamin b12 (available at all pharmacies) as it has shown over time to heal the myelin sheath, cure bells palsy and more. It comes in high doses (Burrascano recommends 25mg per day for 6 months) which would be equivalent to 25 shots per day of cyancobalamin.

Read my LD story & others - learn all about tick borne disease: http://www.truthaboutlymedisease.com/ LD Video: http://tinyurl.com/65yn8v
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05/13/2007 18:02
lymebytes
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Oh - also Biaxin is a great antibiotic and seems to have done wonders for me. Many will tell you Biaxin is the best antibiotic there is. I have taken it with Amoxi. Do not believe that your nerve pain is perm, it can go away with treatment. To learn more about LD read all that is available here: http://www.truthaboutlymedisease.com/

Take care.

Read my LD story & others - learn all about tick borne disease: http://www.truthaboutlymedisease.com/ LD Video: http://tinyurl.com/65yn8v
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05/14/2007 14:08
erleichda
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Thank you all SO MUCH for your help! This is exactly what I was looking for. With me, the nerve pain is bad but what's worse is I've lost feeling in my arms and legs. I have limited function in my hands. My left leg and arm have so much damage - it feels like when your leg or arm falls asleep and you can't use them until they come back. The small fiber neuropathy causes the stabbing pain and severe burning, and the large fiber causes all the numbness and tingling. Then I also have autonomic nervous system neuropathy, the worse symptom being almost no motility in my digestive system. I've lost more than 100 lbs. for no reason and I'm still losing. These are just the neuropathic symptoms. I've got a whole slew of "fibro" symptoms too, but it's the permanence of the neuropathic symptoms that scares me. That's why I want to get a jump on this, before I lose more limbs and organs. Thanks again, so much. And if anyone else wants to jump in on this, please do!
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08/30/2008 10:58
wellinwisconsin
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HI,

I am not sure that your nerves are "dead". Check out the device called the "ReBuilder". It talks about treating neuropathy. I bought one but it is too soon to tell if it is working. (just 1 1/2 weeks). I know your post was more than a year ago so hope you are doing better. I have nerve pain in my feet and hands. I took a very high dose of Samento (I thought I was supposed to take 5 dropperfuls, not drops 3 times a day) and got a lot of relief from my nerve pain for about 2 weeks. I am looking into whether it is safe to experiment with higher doses of this to help my nerve pain. Good luck! If you found any solutions for your neuropathy, please share.

Take care.

Shauna (wellinwisconin)

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08/30/2008 16:37
Gregory
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i also would like to know abought nerve damage as thats my lingering symptom arms and left neck bells left side b12 shots once a week and b6 pills ????????????????????? greg

Popular posts by Gregory
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08/31/2008 16:07
fin24

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for arm ansd neck type nerve pain have you been screened by MRI for CHIARI and/or disc problems?? just a thought

many radiologists dont look for it or dismiss it--if you have had recent MRIs have them reread to look for this specifically and meanwhile go to

www.chiariinstitute.com and see what they say about your sx!!! many with Lyme develop Chiari or the Lyme makes it worse

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