Lyme Disease Support Group

I am to take this w/ my abx Cleocin and Zithromax.

Dosage is 40 mg every 8 hours.

I would appreciate hearing any feedback from anyone else who has used this-good/bad.

Thank you in advance for your help.

bolded meds; supplements extended list on her other post, used quotes to enlarge text for me. bettyg, iowa leader

Post edited by: Bettyg, at: 11/21/2010 04:29 PM

I looked up the Marshall protocal, remember this name in there...

Here is paste...may also want to read the link..

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Did you also take Benicar?

Benicar is in a class of medications called Angiotensin Receptor Blockers or ARBs for short.

Benicar's primary use has been to treat high blood pressure but it has a very mild effect on high blood pressure and studies are showing it protects against inflammation in major organs.

I believe this was added a few years back. This is essential to the protocol.

Yes, Vitamin D has to be avoided or limited.

Dr. Marshall developed this protocol to cure the patient of the disease, not just put them in remission or get them symptom free.

Many people, as you know, relapse after treatment.

The protocol can take anywhere from 1 to 3 years to fully rid the body of the bacteria.

His goal was to not make the patient feel better or be able to manage their symptoms, it was to cure the patient and kill all the bacteria.

Maybe you were not on it long enough.

http://www.drugtalk.com/benicar/drugthread.php/t- 477134.html

good luck, wlkthlne

broke up long solid text paragraph into short readable ones for neuro lyme folks to comprehend; emphasized thigns, and used quotes to enlarge text for me. bettyg, iowa leader

Post edited by: Bettyg, at: 11/21/2010 04:25 PM

However, I think you are supposed to do benicar with only a low dose of minocycline, not with all the antibiotics that you are on.

Definitely avoid all vitamin d foods and from what I understand as much fluorescent lighting as well.

Apparently, the benicar helps to reduce your inflammation and you will see that when the high levels of sick vit d comes down.

There is vit d and vit d 1-25 which is indicative of a repressed immune system.

There is an entire website developed for the marshall protocol and a support group of marshall protocol users.

The members range from cancer to auto immune to lyme disease and all noticed a sensitivity toward light after starting the benicar.

I am willing to try it, but can't find a doctor who promotes marshall protocol.

It was also written about in a pretty famous lyme book written by Brian Rosner who has lyme himself.

emphasized important points, used quotes to enlarge text for me. bettyg, iowa leader

Post edited by: Bettyg, at: 11/21/2010 04:28 PM

after learning i had lyme disease 6.5 yrs. ago, i went to a BEGINNER llmd being taught by lyme patients, 1 a veternary with extensive medical experience.

i did NOT FOLLOW MP treatment, but was put on benicar with pulsed doxy and biaxin. think i might have been on it 6-8 months; NO CHANGES WHATSOEVER!

trevor marshall is NOT A MEDICAL DR! at this minute, lyme fog, can't remember what his background is; far from medical dr. it was developed for HIMSELF, a sarcoidosis patient!!

his mp bulletin board is monitored byHIM; private messages are NOT PRIVATE; he reads them all; is very rude and a bully on posts. i was on there 4-6 months so i know 1st hand.

many of his moderators quit due to his behavior and told me many tiems of his reading ALL PMS to all people.

when they pmed me, they all stated. DELETE IMMEDIATELY; he reads them.

i had 6+ friends in the area suppport group who started mp treatment, ALL ending up with BAD HEART PROBLEMS that could not be fixed.

so research very carefully; i understand he's changed things somewhat; haven't kept in touch with anyone from 6 yrs. ago.

go to lymenet.org and use their SEARCH feature there where you will be bombarded with posts about the mp and feedback!!

if you do a search, search in middle of upper top area ; here's how:

marshall protocol

medical

subject

any date

leave membership no. blank, click search

you should get MANY posts; read them!!

they had some on there who used mp...

bettyg, iowa leader

i noticed you posted the same questions on lymenet, would you copy EACH of your post links from LYMENET here for betty to be able to read about the MP protocol.

she'll learn alot more ... thanks 4 islands

they have many MEDICAL background folks at that board; we do not.

bettyg, iowa leader