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NJVin Posts: 14
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hi everyone. I don't post often, but really would value some insight and experiences: I have Lyme, and probably have had it for about 2yrs now. Finally found a LLMD who was willing to treat me and thus was started on Biaxin and Suprax about 6weeks ago. About 2 months before that I started the Buhner Protocol (which by the way made me feel ALOT better). Since I still had neuro symptoms (dizziness, tingling, some headaches and such) I started on the antibiotics. I may have had some minor herxing in the 2nd week, but nothing crazy. However now, 5-6 weeks out, I am so lethargic it is crazy. I also feel like I am fighting a cold (scratchy throat, nasal drip, and stuffiness), as well as some muscle soreness. My question is: does the lethargy, muscle soreness and cold symptoms sound like a cold, or could it be a delayed-onset herx reaction? Thanks in advance~! Vin broke up solid text into short paragraphs for neuros to read like me. bettyg, Post edited by: Bettyg, at: 11/05/2010 02:15 AM
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Natsmom Posts: 100
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I don't know the answer to your question, but I was slammed with worse symptoms once I hit 4 weeks of abx. I thought the first couple of weeks was bad, but when week 4 got here, it has been nothing short of hell on earth ( lethargy, soreness, weakness, burning, low grade fever, head pressure, etc etc etc ). I'm not sure I can do this. I can't feel this bad for months and months and months and maybe years and "hope" it makes me feel better in the end. Ironically, there is a 17 year old boy in my town who is dying of Leukemia, has about 1-3 weeks left, and he feels better than I do. I have the utmost respect for those who went before me and endured this nightmare. I sure hope you feel better. You may just have a mix of herxing on top of a cold. |
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lindaca Posts: 1009
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It could be a growth cycle, the bugs replicate, usually in 3-4 week cycles, and then you can get slammed with symptoms. Weather changes also affect a lot of people. It could also be that the meds have just reached a certain concentration in your body, so they're more effective at killing the bugs. I wouldn't rule out a virus of some sort either (cold, flu). Either way, all you can really do is detox and boost your immune system. |
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NJVin Posts: 14
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Thanks for everyone's responses thus far! I'm hoping it is a herx. Till this round of biaxin/suprax, I've only had doxy 2 seperate times for 4-6 weeks each and one round of ceftin for like 3-4 weeks. My LLMD was surpriised I've had a lyme diagnosis for 2yrs and so few antibiotics. So, I'm hoping this combo (has me on it for at least 2 months) will be what I need. As I said I'm still taking the Buhner core protocol. I'm also taking teasel (9 drops a day), Houttuynia (15 drops a day), and some magnesium, zinx and Vit C and D. This lethargy is the worst. Though the low level dizziness is a VERY annoying symptom. Any further suggestions are appreciated! Vin Post edited by: Bettyg, at: 11/05/2010 02:18 AM |
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Bettyg Posts: 26472
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hi vin  please remember to break up your posts into 1-2 sentences max and HIT ENTER TWICE after each short paragraph; we thank you for helping us. i edited your 2 above so i could read and comprehend them. thank you. go to ILADS CONFERENCE POST from me in support; then go towards bottom where imention SCOTT FORSGREN; go to his site and print it off. HERXING INFO/RECIPE,etc! from latest oct. 2010 conference of our llmds bettyg, iowa leader BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader
NOTE: I DO "NOT" USE CHAT thanks!
**************************************
NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)
http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-
Any information provided should not be used to take the place of advice from your personal physician or other professional.
Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.
43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more. |
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18YearQuest Posts: 44
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My wife's been on Rocephin IV for the 4th week this week, and it was hell. She had 2 weeks of Flagyl as well (weeks 2 & 3). Definitely this past week has been the most difficult, especially with mental functioning, concentration, and anxiety. So, this seems to coincide with the 3-4 week cycle. I wonder how coinfections play into this cycle, though. She has Babesiosis, and mycoplasma fermentans incognitus. broke up post into short paragraphs; used quotes for larger text for reading for neuros like me. bettyg, iowa leader Post edited by: Bettyg, at: 11/07/2010 02:08 AM |
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cmany Posts: 6197
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Herxing can happen ANYTIME!!!You need to be detoxing... Half your weight in ounces of plain or quality mineral water (minerals occur naturally) + 1-3 cups of water with Lemon or Lime added - fresh is best too... Detox teas (Traditional Medicinals has a tasty options)... keep some activated charcoal on hand for real bad herxs - but it must be taken 2 hours before or after anything else... Benedryl too - but check with pharmacist for drug interactions first... GET OFF REFINED SUGARS!!! These feed the disease...so you are arming it with food while trying to kill it...not a good combo... Lyme is made to survive - you need to starve it. Reduce acid levels (Lemon/Lime water or alkaline water/diet), and cut the sugars...you disable it. Post edited by: Bettyg, at: 11/07/2010 02:11 AM [b]Group Leader Disclaimer[/b]
First and foremost - I am NOT a doctor, anything I share is based on experience & research. I strongly encourage you to discuss any and all information that I share with a health care provider.
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"I'm not afraid to take a stand
Everybody come take my hand
We'll walk this road together, through the storm
Whatever weather, cold or warm
Just let you know that, you're not alone
Holla if you feel that you've been down the same road...
And I just can't keep living this way
So starting today, I'm breaking out of this cage
I'm standing up, Imma face my demons
I'm manning up, Imma hold my ground
I've had enough, now I'm so fed up
Time to put my life back together right now" Eminem Not Afraid |
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