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11/03/2010 07:02 PM

Lyme & Panic Attacks

Jessalynn1
Jessalynn1  
Posts: 71
Member

I've had Lyme for about a year and a half, and just started experiencing these intense panic attacks about 2 months ago.

My LLMD thinks it's Lyme-related and possibly Babesia.

I was just wondering what others experiences were in regards to panic attacks and Lyme.

Do you have them?

What are they like?

Do they cycle monthly or correlate with ur "flares"?

How long do they last?

Mine seem to correlate with my monthly Lyme flare (which is also around PMS time), and they can last any where from a few seconds to a few hours.

The short ones feel like I'm receiving shots of adrenaline every few seconds, and the longer ones cycle for hours.

(This usually lasts for a few days and then goes away for the rest of the month.)

I've had panic attacks before (rarely), but nothing like this. These are different... much scarier.

The physical symptoms (shaking, shortness of breath, etc.) are so much harder to control.

Just wondering what experiences everyone else has had. What have you found to be most helpful (if anything)?

broke up text into 1-2 sentences max paragraphs and doublespaced for neuro lyme patients like me/others. bettyg

Post edited by: Bettyg, at: 11/04/2010 02:43 AM

Reply

11/03/2010 07:29 PM
somuchpain
somuchpain  
Posts: 20
Member

Hi Jessalynn1,

I too experience severe panic attacks. I have had them in the past before Lyme ruiened my life,but they weren't as often as now.

I sometimes lie in bed at night and think i am going to have a heart attack. I say to myself "you are going to die tonight". I know this may sound dramatic but it is how i feel at the time. It is really scary i agree.

I've wondered if it is due to the meds.or a symptom of the Lyme itself,or perhaps both?

So thank you for asking this question because i now know that i am not alone and it is probably due to this horrible disease for one reason or another.

Is there anything that you have found to help you get through them? I just lay there and try to talk myself out of it.

Mine too seem to cycle for several hours. Then they will go away. But while going through, i feel as if it will last forever.

Maybe during pms hormones are causing it to be worse.Anyway, you are not alone with this feeling. It is truely awful.

My best wishes to you!

Smile


11/03/2010 09:05 PM
waxby
waxbyPosts: 4820
VIP Member

~~~Hell Jessalynn and Rosemarie(somuchpain),

~~~I have not experienced panic attacks but have experienced tachycardia(rapid heart rate),air hunger,etc, and a hundred other symptoms including feeling as though I might die many times,and also asking God to take my life,many years ago,which SHe didn't,obviously,except how do you know I am really here,hmmmmm? Instead,SHe left me here for you! I am greatful for this! SHe is a genius!

~~~Here are some thoughts for you to ponder...

````````````Getting better Before Getting Better````````````

```````by Mitchell

~~~First,let me say I know this is a controversial subject.Some will agree and some will not.Some will not even come to this site in fear or "knowledge" that simply coming here is giving permission to allow this disease to inhabit them.

~~~Making willful choices is our willful choice.Free will.Some would even argue this.Do we really have free will and is it always useful or correct or even really possible?

~~~I "choose" to look at it from only my point of view.I can't know yours.

~~~Perhaps a free will is not all it is cracked up to be.I mean how do we know that our free choices are the best choices just because they are free and ours to make and "I" made them? And who am I? The final authority?

~~~How do we know that by choosing to turn our back on something may be turning our back on a good thing?

~~~I understand that as humans we would like our lives to be pain free.Free from difficulty.Free from suffering.Happy and full of joy.Is this a dream or a reality? Is this even possible? Just what is the recipe?

Hi Mitchell,

Just wanted to send you a quick message to say thank you for keeping an eye on me and helping me to snap out of it. I'm still feeling like crap, and I'm still worried as all hell, but I'm back to being determined to get better, rather than wanting to give up.

I'm in a lot of pain this week. Still getting the sharp pains in my chest, but it's not as bad as yesterday, and I just don't want to go to the ER and have them stress me out more and tell me nothing I don't already know. So, unless I get worse, I'm just going to stick it out and see what happens. I figure if it's getting better, it's getting better, right?

I sincerely appreciate your presence here. It means a lot to me to have the support and just to know someone else understands what I'm going through.

How are YOU doing these days?

Big hugs,

Dancingwinde

~~~Thank you Dancingwinde,

~~~I know how badly you want to get better.Me too.And I know how important it is to be positive so please don't take what I am about to say as a negative but rather a different look at reality to perhaps help you cope better.

~~~I have been dealing with this(Lyme) for eleven years now.My latest experiments are with MMS,for nine months now,and in alternating days,frequencies,amounts,and combinations,teasel,samento,venus fly trap,banderol,smilax,japanese knotweed/resveratrol,andrographis,olive leaf extract,grapefruit seed extract,bromelain,systemic enzymes,oral EDTA,nattokinase, vits,mins,supps,baking soda,and of course as always a superior diet and proper rest.And "thinking." and "not thinking." And for several months now 100mg a day or every 2nd,3rd,or 4th day of minocycline.

~~~My excercise consists of getting out of bed and going up and down the steps and with extreme difficulty.And when I am very fortunate I make it into my business several times a month.I can't shop,do chores,laundry,change my bed,or take showers.Luckily I can feed myself but with difficulty.My daughter washed my hair and a friend washed my hair and cut it.

~~~I tell you these things not to elicit sympathy but to express the reality of my situation.In reality I am tickled to do even the little things I can manage.

~~~I am happy not to be completely paralyzed.That is the bright side to my situation.Of course if I were completely paralyzed,as I experienced recently with my appendicitis and apendectomy,and several months ago when I rolled out of bed and onto the floor and paralyzed,peed myself,I would have to find the bright side there.As the Monty Python song goes "always look at the bright side of life,"(whistle it).

~~~So here goes.When you experience a moment when you think you have made a turn around towards healing,only get cautiously optimistic or cautiously excited.With this disease there are many calms before a storm.In the calm we allow ourselves to think "finally a turnaround" only to be dissapointed by the next storm.Perhaps one day there will be "the" turnaround.

~~~There are many who will view this as negative thinking.My response to them is "try this." They have not been faced with a "negative" chronic persistent reality that will not go away with "proper" thinking and therefore think they have a "proper" hold on reality.I wonder.I do not know.I only know MY situation.

~~~However,my position is that I am learning priceless lessons about life,in my present reality,with this dis-ease,that otherwise I may not have.This is a gift to me.A very difficult gift.I except.

~~~Now,you may not remain with this "challenge" as long as some.I hope this will be true.And you may be dealing with this for a very long time.Only time will tell.

~~~In the meantime I feel it is of vital importance to learn whatever lessons that this challenge will provide.To see this "dis-ease" as a positive.But you must be willing to "see" through this deep fog. To get better before getting better.

~~~Acceptance is one valuable lesson.Acceptance of things we cannot change.But out of this acceptance there are lilies that will bloom from this fertile poo.Jewels.This is the positive side of this "dark" reality.The "gift" of dis-ease.This Bless-ed Curse.The gift of suffering.Simply open your "third eye" and "see."

~~~So those who only see the "negative" in my predicament fail to see my new "Jewels." The "blessing" in this "curse." I wonder who is the negative thinker? No judgement here.I do not know.I only know of my personal experience.I have grown,evolved,expanded,contracted,gained some wisdom.I am greatful.Here I have found some joy in this "pit of despair"

~~~So as your "Tea Kettle" (your challenge) whistles for you,don't get discouraged,get to work.Expand,contract,evolve,grow your lilies out of this swamp.This very difficult, golden swamp.

~~~Perhaps this is what is meant by,some have said,"You are perfect as you are,life is perfect as it is,and you could use a little improvement."

```````~~~From my straight jacket~~~out on a limb~~~lookin like a cocoon~~~hangin by a golden thread~~~waitin for a butterfly~~~under the moon~~~laughin at life from this "pit of despair" ~~~Lovey-Dovey,Mitchell~~~


11/04/2010 02:46 AM
Bettyg
 
Posts: 32283
VIP Member
I'm an Advocate

welcome Smile check out the link on ANXIETY that is found in LYME TREATMENTS. if it is NOT a sticky that is visible as you look from the top down, go to CMANY's post where she combined around 30 of my posts together in 1 link.

they are clearly marked as ANXIETY; studies/articles.

***********************************************

Welcome to MD JUNCTION!! I'm so glad you found us! You've come to the right place for education and support! File this in ARCHIVE, upper right hand corner! PMs deleted in 30 days!

PLEASE DO NOT POST YOUR GIVEN NAME!

http://www.mdjunction.com/index.php?option=com_joomlaboard& Itemid=217&func=view&catid=3260&id=1345278

The following are some links that may be helpful to you:

Seeking a lyme literate md; start YOUR OWN POST on this new forum; do NOT just add it to the introduction post only.

http://www.mdjunction.com/forums/lyme-disease-support- forums/llmd-info/1181374-lyme-literate-md-requests#1181957

(applies ONLY to those who posted elsewhere already ok.  )

NEW FORUM, SEEKING LLMDS, the last forum

start a NEW DISCUSSION by clicking on that at bottom of the page, copy your text to the body of message as you posted above read my detailed instructions in christine's 1st post explaining how to use this new forum; big thanks! Hugs; example below

subject: 4 yr. old needs KIDS LLMD IN MD, VA, DC area

http://www.mdjunction.com/forums/lyme-disease-support- forums/llmd-info

Lyme Disease and Co-Infection Symptoms

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research/318635-lyme-and-co-infections- symptoms

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/81386

Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" http://www.ilads.org/lyme_disease/treatment_guidelines.html

Pages 17-19 discuss Adult and Kids Treatments

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research/1173561-08-kids-lyme-guidelines-of- dr-burrascano

Dr. B's Supplement List

http://www.lymepa.org/Nutritional_Supplements.pdf

Making the most of your LLMD visit

http://flash.lymenet.org/scripts/ultimatebb.cgi? ubb=get_topic&f=1&t=020605#000005

Herxheimer “herx” side effects to antibiotics & supplements; Symptoms, treatments

http://betterhealthguy.com/joomla/blog/216-ilads-2010- conference-takeaways

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research/1186591-jarischherxheimer-reaction- symptomstreatment

Herxing Reactions:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/89322

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic; f=1;t=041517

CHECK OUT THE “LYME FACTS” forum; lots of good, accurate info there for your lyme journey.

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research

print off BUT YOU LOOK GOOD article on page 2 of this post where I broke it up for others to read easier; we neuro lymies!

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/1275535-feeling-guilty-for-being- sick/limitstart/10#1279159

Suggestions for When You Need Treatment and Funds Are Low plus Financial Burdens post towards bottom; extremely detailed by Melanie Reber

http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/22281

WHAT IS LYME DISEASE? as quoted by Dr. Burrascano

http://www.mdjunction.com/forums/lyme-disease-support- forums/studies-research/1123178-a-must-read-for-new- members#1124851

Link to Turn the Corner Foundation: Good info and contacts for finding a good LLMD.

http://turnthecorner.org/lyme-disease-quick-facts.htm

LYME YAHOO GROUP BOARD FOR EACH STATE FOUND HERE!

People seeking doctors might be able to get help from their state online information and support group. The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.

To find your state group, go to

http://health.groups.yahoo.com/group/statenamelyme

example: http://health.groups.yahoo.com/group/newyorklyme

South Carolina is the only state that needs a hyphen between the statename and lyme, e.g. http://health.groups.yahoo.com/group/southcarolina-lyme

http://www.lymenet.org/SupportGroups/

This explains the MEDICAL “POLITICS” AROUND LYME and why you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs, naturopathic doctors:

www.clinicaladvisor.com/Controversy-continues-to-fuel-the- Lyme-War/article/117160/

You should also be evaluated for co-infections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing.

www.igenex.com; http://www.frylabs.com; http://www.clongen.com; http://focusdx.com

For the Igenex Western blot IgM and IgG blood test drawn on M, T, or Wed am. Check current$ 3 wks. for results!

Call 1-800.832.3200 for current prices.

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/ 78648?#000003

They will also send you a free “test kit” with their required form, all the test vials, & box to ship it in with return postage!

Be sure to download Igenex's required form IF you haven't called for Igenex to send you THEIR test kids!

MD, DO, ND, AC, DC are all fine** must sign, date, and show diagnosis code on there why he's ordering the test.

Optional tests include: co-infection panel for your area of country and PCR whole blood

Igenex is pre-pay/out of network for most insurances. If you are on medicare, Igenex will file the paperwork & it's free to you.

Get copies of all of your special bloodwork.

Overseas instructions for sending to Igenex/Fry Labs 2-23-08

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic; f=1;t=063751

Dr C's Western Blot explanation is discussed here:

http://www.mdjunction.com/forums/lyme-disease-support- forums/tips/1092391-missouri-drcs-western-blot-explanations- of-nos#1093495

http://www.mdjunction.com/forums/lyme-disease-support- forums/tips/3683-igenex-calif-western-blot-igmigg-testing-

ILADS - The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. www.ilads.org

Call ILADS they are happy to refer to LLMd's around the country. Here is the contact link, scroll down beyond the email form for their phone number:

http://www.ilads.org/contact/contact_ilads.html

Under Our Skin Lyme Disease documentary www.lymediseasefilm.com

American Museum of Natural History 2 SLIDE SHOWS

http://www.amnh.org/sciencebulletins/index.php? sid=h.s.lyme_brain.20100125

when you get to the site go to upper right hand corner and type in LYME DISEASE hit enter and it brings you to this very well-done slide show on LYME disease! it shows ”brain lesions” too. 1st one is DATED JAN. 25, 2010.

Betty, Minoucat, & Connie Mc's SSDI, SSI, & LTD DISABILITY RECOURCES FOR Disability, Insurance, Dealing with HMOs

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/3118-bettygs-disability-info-25- pages

http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/13935

Success Stories

http://www.mdjunction.com/forums/lyme-disease-support- forums/general-support/57269-post-your-success-story-here

http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/15820

Distinct Pattern of Cognitive Impairment Noted in Study of Lyme Patients …..MUST READ!! EXPLAINS EVERYTHING !!

written by Marian Rissenberg PhD & Susan Chambers MD,

The Lyme Times, Vol. 20, Jan-Mar 1998, pp. 29-32

http://www.anapsid.org/cnd/diffdx/rissenberg.html

NEURO-COGNITIVE LYME DISEASE links from cheryl's site 1.10

http://www.lymeinfo.net/neuropsych.html

Porphyria (including KPU)

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/ 87840?

cardiac symptoms please read!

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/77325

SUICIDE HOTLINE PHONE NO. & PREVENTION TIPS

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic; f=1;t=058059

http://www.mdjunction.com/forums/lyme-disease-support- forums/medicine-treatments/1275497-national-suicide- prevention-lifeline-tips

DIZZINESS - many details at this thread

http://www.mdjunction.com/forums/lyme-disease-support- forums/medicine-treatments/Itemid=217/func=post/do=reply

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/ 65801?

TREEPATROL'S New Member Learning links: this can wait! There are OVER 1,000 LINKS here but treepatrol has organized it as best as he could

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/29917

NEED A LAUGH, READ HERE & ADD YOUR OWN

http://www.mdjunction.com/forums/lyme-disease-support- forums/lounge/1041725-looking-for-my-need-a-laugh-post- bettyg-started

you tubes, post your FUNNY or INSPIRATIONAL ones here http://www.mdjunction.com/forums/lyme-disease-support- forums/lounge/1114416-you-tubes-post-your- funnyinspirational-ones-here

Betty's suggested posting guidelines:

Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend; example, me, 40 yrs. neuro chronic lyme, so we are able to comprehend and read. Then we can assist and guide you ok.

please post in short paragraphs like you see below or look at a few other posts, but we neuro folks need them short.

1-2 sentences MAX and hit ENTER TWICE to doublespace between each paragraph. hugs DO NOT BREAK UP THE SENTENCE THOUGH…we neuros lose our train of thought if it is broken up in the middle unless it goes on FOREVER!

For easier reading, please edit your post. You can break up your longer paragraphs into smaller paragraphs. Please hit “enter” key twice after each paragraph, also.

Go to left hand corner; mark box to receive all replies and click edit send.

Thank you for posting in a manner that makes it easier for all to read and help others.

in future, please break up your posts/replies using my guidelines above so neuro lyme folks like me/others can read/comprehend. we thank you.


11/04/2010 04:40 AM
VicMac
VicMac  
Posts: 1659
Senior Member

Smile Jessalynn,

Welcome and thankyou for sharing your experience with anxiety.

I have definately had this as a huge part of my symptoms, and can become easily overwhelmed by normal things in life.

And Somuchpain, like you it happens mostly at night. I can't count how many times I thought I would die and God would take my life.

Don't know why night is so much worse. I think because I also have a seizure disorder from a Bartonella coinfection.

Remember "I dream of Jeannie"? I often wish I could just blink my eyes and everyone of us would be healed instantly.


11/04/2010 08:02 AM
happymom3
 
Posts: 428
Member

keep in mind that anxiety and psychological symptoms are hallmark symptoms of bartonella one of the coinfections..my daughter had lyme,bart,and babs..i saw the anxiety up close and she suffered greatly..read up about bartonella and see if you have the other symptoms...hang in there..you will get better..keep the faith

11/04/2010 03:15 PM
Jessalynn1
Jessalynn1  
Posts: 71
Member

It's interesting that some of you mentioned that your anxiety is primarily at night- that is pretty much the only time I experience the panic attacks (with one or two exceptions). Hmmmm.. I wonder if that is common with panic attacks in general or more of a Lyme/co-infection thing....

11/04/2010 04:38 PM
somuchpain
somuchpain  
Posts: 20
Member

Mitchell,

What can i say? You are truely AMAZING!! I wish i could put words together like that. You are here to keep all of our spirits HIGH. I know that you are helping me with your amazing wisdom,and courage. Bless your beautiful heart my friendSmile Rosemarie

Post edited by: somuchpain, at: 11/04/2010 04:39 PM


11/04/2010 10:00 PM
VicMac
VicMac  
Posts: 1659
Senior Member

Jessalynn,

There really is something connected to the nighttime with this ( Bartonella? ) anxiety. I don't understand it either. I just know that for me it is like looking through a window into some other reality, and one that I would rather not know about.

I reported this on another post, that early on, my nighttimes became so dreadful I actually looked into finding an exorcist to help me. LOL! What I eventually ended up with, was a Greek Orthodox priest who came to my house in his full robes, and walked around loudly chanting stuff and waving incense for a good half hour or so.

Truth is, it actually seemed to so something! The (hallucinations) I was having alongside the anxiety greatly decreased. So go figure, because I had thought that a little tick was the only one to blame for the whole nightmare. And I still do tend to think this when the night anxiety attacks come.

So I haven't had a hallucination for a long time ( which seem very real to me, and like they occur outside my body. )

I would like to know how many Lyme sufferers have had this kind of thing.

I hope you don't experience hallucinations with your anxiety, they are awful! But I have to tell you, if you do, don't isolate yourself like I used to.

You will need to keep in touch with those of us who have had this. It can really play havoc with the brain!

God bless you!

Post edited by: Bettyg, at: 11/05/2010 01:17 AM


11/05/2010 02:59 PM
Jessalynn1
Jessalynn1  
Posts: 71
Member

Wow VicMac- so sorry to hear about how severe your anxiety was (i.e. the hallucinations). Glad to hear that isn't something you experience any more, no matter how it was that you got it to go away! Luckily I do not have hallucinations, and I hope that it stays that way. Panic attacks are scary enough on their own!!

As for the night time/anxiety connection, it is quite bizarre. Any other lymies out there that have panic attacks primarily at night? Or does anyone know if panic attacks generally just occur more (for every one) at night?

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