Why wear a ribbon?

"Lyme Awareness" (karazon)

MDJunction to me

"MD junction is a place for us to share our experiences both good and bad it is a safe haven from the ignorant and the doubters a place to vent ask advice or just get away from it all.
I am shell I am a parent with aspergers syndrome.
Four of my six children are autistic also.
I hope to give an insight from an autistic view.
" (spectrummum)
We comply with the HONcode standard for trustworthy health information:
verify here.
Lyme Disease Support Group
A community of patients, family members and friends dedicated to dealing with lyme disease, together.
Join This Group
Group Home   Forums   Articles   Members (752)   Diaries   Leaders   Guidelines
Related discussions:


<< Start < Prev 1 2 3 Next > End >>
07/11/2007 08:35
StrictlyTopSecret
Lime Green Ribbon
Posts: 13
New Member

Send a PM
Give a Hug
Perpetrating the "our LLMDs are under attack" NONSENSE is no more than patient paranoia. LEGITIMATE practitioners (be they "lyme literate" or otherwise) have no more to fear than any other potential target of lawsuits in today's litigious society. The "LLMD" doing muscle testing, for example, would have nothing to fear if her practice was legitimate. The fact that she was engaging in "muscle testing" (of the applied kineseiology version) is what will hopefully cost her her licesse: not the fact that she also engages in some legitimate practices (e.g., prescribing long term antibiotics).

We must be VIGILANT, but not paranoid. We must be willing to "call a spade a spade", so to speak: regardless of whether of not that "spade" is an LLMD. The TRUTH will set you free. Blind "protection" of LLMDs only serves to fuel the non existant flames of this "controversy" and allows CHARLATANS to happily continue in their successful efforts to separate us from our money.

Reply  


07/11/2007 09:28
jaime1978
Lime Green Ribbon
Posts: 1094
Group Leader

Send a PM
Give a Hug
there are many people who believe in muscle testing. it's a very interesting phenomenon. I , for one, think it's fantastic that some doctors go above and beyond. and I'm quite sure she doesn't base her entire dx on muscle testing, but using it as yet another "tool" in her toolbox of knowledge.
Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
Reply  


07/11/2007 10:50
StrictlyTopSecret
Lime Green Ribbon
Posts: 13
New Member

Send a PM
Give a Hug
It is most assuredly the case that many patients have succumbed to "muscle testing" and similar scams, and that they truly believe it "works". Classic cons are a dime a dozen. Countless callers have invested money in "psychic hotline" advice, and genuinely believe that it is valid, as well. Belief and reality, however, do not always coincide. "Muscle testing" (not EMG - the "applied kinesiology" version) is a classic con. No more, no less. "Going above and beyond" should not include the application of fraudulent diagnostic technique(s) or treatment regimens. Lyme sufferers need to be aware that these scam artists are quite willing to separate victims from their money, and offer nothing but "fairy dust and sparkles" in return.

p.s. The physician in question also sells the herbs she prescribes, and is in the practice of prescribing "raindrop therapy". It is a dangerous place out there for Lyme sufferers. Charlatans calling themselves "LLMDs" tarnish the reputations of the legitimate practitioners who fight every day to get us the REAL treatments we so desperately need.

Reply  


07/11/2007 11:08
jaime1978
Lime Green Ribbon
Posts: 1094
Group Leader

Send a PM
Give a Hug
it does not hurt to have an open mind when you are dealing with lyme.

I have had this type of muscle testing done by a chiro a couple years ago. found it very accurate and interesting. it is not a con. have you researched this at all?

i'm not going to get into point counter point here. you have a valid point, there are a lot of people being taken advantage of out there. But what works for one may not work for another. Just as I know several people whom abx haven't worked for, and they did supplements of sorts and have been well. I also know people for whom the opposite is true.

I don't agree with a doctor insisting that someone takes the products they sell....but I do believe that there is much we don't know or understand about this disease, and there are many different avenues to pursue. and it does not hurt to have an open mind. not to be ignorant to things but to have an open mind. everyone needs to do thier own research, even when thier docs tell them something, and make up thier minds for themselves.

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
Reply  


07/11/2007 11:19
StrictlyTopSecret
Lime Green Ribbon
Posts: 13
New Member

Send a PM
Give a Hug
In answer to your question, yes, I am quite familiar with applied kinesiology and "muscle testing".

I, too, agree that antibiotics are not effective for everyone. I, too, agree that there is great merit in keeping an open mind. We must be careful to refuse to be taken in by nonsense in the name of that "open mindedness", however. It is a fine line, but an important one.

Reply  


07/11/2007 22:36
roy
Green-Orange Ribbon
Posts: 2809
Admin

Send a PM
Give a Hug
Hi Friends,

Very interesting thread !! (I have to say that the Lyme conversations are almost always more interesting than the one we have in other groups – but don’t tell anyone :: )

jaime1978 my friend, I have to agree with you (as a general rule in my life) it does not hurt to have an open mind when you are dealing with ANYTHING.

StrictlyTopSecret welcome to our community – happy to have you. I think you are right about the importance of being careful when "open mindedness" is needed, but its also important to let some bad experiences fade away and give room for new ones.

Keep up these interesting conversations.

Roy

first they ignore you
then they laugh at you
then they fight you
then you win.
- Ghandi
Reply  


07/12/2007 05:01
StrictlyTopSecret
Lime Green Ribbon
Posts: 13
New Member

Send a PM
Give a Hug
How refreshing to come across a Lyme advocate who is not in the habit of censoring others!

Frighteningly, when I brought up this issue on two well-known Lyme forums, I was ushered out in a hurry (after being verbally "attacked" by a number of members). In their zeal to "protect" (and I do believe that these folks genuinely believe that LLMDs are in need of protection), they felt compelled to use censor opinions with which they did not agree. For good or ill, the "powers that be" on various Lyme forums are frequently the same folks from forum to forum, and use the same tactics to silence others. They even went to far as to falsely accuse me of a number of things. On one forum, for example, the daughter of the family to whom the site was dedicated also saw the physician whose methods I was challenging ...you can imagine how that went over. LOL! I was accused of everything from "not having Lyme" to "being an IDSA plant".

At any rate, I appreciate the fact that the "powers that be" on this forum shun the idea of censorship. Although it is most assuredly within the rights of any owner of a private forum owner to do so, it certainly does NOT contribute to an atmosphere of open discussion. Rather, it perpetuates paranoia and a metaphorically "incestuous" group dynamics.

Reply  


07/12/2007 06:11
jaime1978
Lime Green Ribbon
Posts: 1094
Group Leader

Send a PM
Give a Hug
this is a rather new site, or forum I believe. it is still growing. I have found that the people here can have adult conversation and debate without it getting too out of hand. a very nice place.
Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
Reply  


07/12/2007 06:13
jaime1978
Lime Green Ribbon
Posts: 1094
Group Leader

Send a PM
Give a Hug
one thing to add would be for everyone reading, just because one person says one thing and another says another does not mean anything....these are just our OWN opinions. when you are seeking treatment, be it for lyme or anything else, YOU need to follow YOUR OWN heart and do YOUR OWN research and find what works for YOU.
Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
Reply  


07/12/2007 06:24
Nadina
White Ribbon
Posts: 111
Moderator

Send a PM
Give a Hug
Thank you for your kind and motivating words, StrictlyTopSecret and Jaime. We love the feedback (especially positive one ), and we aim at creating a place for people to come and be as they are, with no restraints or reticence.

Freedom of speech and unrestricted access to information are fundamental rights - we abide by that.

We also like to think of ourselves as an open-minded team, therefore creating an open-minded place came only naturally.

We're doing our best, and we're growing. I'm glad you enjoy yourselves here. It's your space as well, and I'm so happy to see you're making the best of it.

Reply  


<< Start < Prev 1 2 3 Next > End >>

Start a New Discussion

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice. Read more.
Contact Us | Bookmark Us | Add a Doctor | For Doctors | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | Advertise
Copyright (c) 2008 MDJunction.com All Rights Reserved