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Lyme Disease Support Group
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12/03/2007 08:41
sierra_rain
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Hi. I'm new to the group. I am looking for information about IV treatment for Lyme. I was diagnosed with Chronic Lyme two years ago and have been going through treatment ever since. I have been on many different treatments, but have had several allergic reactions to many of the treatments. I am now looking into IV treatment. If anyone has any experience with the IV treatment I would love some insight. Many thanks

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12/03/2007 08:57
Julie4848
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Hi:

Welcome

I am also new to this so I can't comment on the IV treatment, I'm sure Jamie will come on and discuss this with you.

What treatments have you tried? Like you I'm allergic to almost all meds, makes this so much harder to deal with.

Hang in there....

Julie

Lyme will not win, we will and we WILL…

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12/03/2007 09:10
sierra_rain
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I've been on so many...Doxycycline, Zithromax, Biaxin, Bicillan just to name a few. I am also taking Samento which I have been able to tolerate without the harsh side effects of the antibiotics.

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12/03/2007 09:43
Julie4848
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WOW you are like me..I just can't take much...Doxy makes my hands and legs numb and my face tingle. Zithrom, ended up in the ER thinking I was having a heart attack. Biaxin, make my hand and leg joints hurt so much I can't move them. Plus all the hives I get...

Hopefully something new will come out that we can take...You would think with all the drugs out there, there would be something we could take...Makes me wonder sometimes...

Keep the faith!!!

Julie

Lyme will not win, we will and we WILL…

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12/03/2007 10:16
sierra_rain
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Yes! Its been tough. I know there are a lot of alternative treatments out there which may be helpful. Samento has been helping along with Artemisinin. I know there are other's out there, but I dont have any experience with them

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12/03/2007 10:18
Julie4848
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What is Samento?
Lyme will not win, we will and we WILL…

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12/03/2007 10:52
sierra_rain
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Samento is an herbal supplement. It is similar to Cat's Claw. I can't remember the difference, but I know they are similar. I used to be on Cat's Claw and my doctor switched me to Samento because it is a higher concentration. I started very slowly with only one drop a day and have now worked my way up to 15 drops twice a day. I haven't had any adverse affects other than the expected die off.

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12/04/2007 08:25
jaime1978
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Hello, and sorry it's taken so long to get to this post. My computer crashed on me IV treatments, they are a great option. But curious as to if you have done injectable bicillin yet? Did you have a reaction to that? I'm concerned because you have had reactions to so many drugs, that IV is so strong, I'd be afraid of the reaction. What are you currently on?

there are many alternative therapies, rife machines, far infared suana's, hyperbaric o2 chambers, on and on ... a great thing to remember is to keep building up your immune system, our systems are so stressed. So making sure to take a GOOD multi vitamin, b vitamin complex, and other herbs and vits and minerals to help build it up. One doc has gone so far as to say, if you take care of the most part of the lyme and your immune system is strong enough, it can take over and start to kill co infections by itself. (please do not take anything I say as medical advice, I am not a doctor)

Samento is pretty much cat's claw, and it's a great alternative to be adding to medicinal drug therapy, as well as art. for co infection.

The TOA free form of cat’s claw (Samento) may have three direct beneficial effects in humans with LD:

Immune modulation (correcting immune dysfunction)

Direct broad spectrum anti-microbial effect on spirochetes. Quinovic acid glycosides found in TAO-free cat’s claw are similar to the quinilones widely used as antibiotics.

Blocking the adverse neurotoxic effects on cells, enzymes, and hormones

Whether the serious lack of energy and fatigue seen in LD are similar to the cyanate[7] induced damage to the mitochondria’s ability to produce energy in the motor neurone found in amyotrophic lateral sclerosis or is due to failure of proper calcium channel function is not clear.

Immune suppression is common in Lyme patients. Dr. Raphael Stricker has found that most Lyme patients have low activity of a subset of natural killer cells. Immune function can be boosted via proper nutrition, herbs and supplements such as transfer factor and medicinal mushrooms. Intravenous vitamins, acupuncture, homeopathy and mind-body techniques can also boost immunity.

Many practitioners have found herbs to be as effective as antibiotics in treating Lyme. Cat’s Claw has been getting lots of publicity based on a recent research study suggesting that a special variety free of tetracyclic oxindone alkaloids works better than antibiotics. Artemesia, long used in Chinese medicine, and garlic are also helpful. Practitioners are also finding success with colloidal silver, given orally and intravenously.

Bee venom therapy is another powerful weapon against Lyme. Bee venom contains mellitin, a chemical that inhibits the growth of the Lyme bacteria at a concentration lower than any known drug. Bee venom is also a powerful anti-inflammatory agent which can ameliorate painful joints and muscles common in Lyme patients. Some Lyme patients experience tremendous long-lasting relief after as little as two injections.

Homeopathy can be another powerful therapy for LYme. Patients who took antibiotics for years with only limited improvement have hade their symptoms totally resolved by using classical homeopathy.

Many practitioners are also finding hyperbaric oxygen therapy to be a useful adjunct in treating Lyme. This is not yet readily available in all areas.

One challenge to Lyme treatment is Herxheimer, or “die-off” reactions, which are a flare of symptoms such as fatigue, headaches and joint pains as a result of toxins produced as the Lyme bacteria die. Supporting the liver and other organs of detoxification with herbs, homeopathics, acupuncture and nutrients can ameliorate these symptoms.

Having Lyme Disease can be very stressful. Stress reduction, psychosocial support and mind-body therapies are also an important part of a holistic approach to treatment. Useful links to more information are available at www.drrandy.org.

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
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12/20/2007 13:06
s66a
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I'm confused. If a Pic line is in your arm, then what does it have to do with your heart? I've heard of Ceftrioxine, but how is it different from Rocephin? Brand name vs. generic?

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12/20/2007 14:15
KendraM
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Hey sal66 I had a picc line last Jan and recieved Rocephin and vitamin C. I am pretty sure Rocephin and Ceftrioxine are the same thing, and you are right in that one is generic. The only thing I know with it doing something with your heart is the line goes up your arm and the line ends right above your heart. So sometimes you can feel a gushing feeling when the meds go in. Hope this helped.
I am not a doctor. I can only give my opinion.

"Never give up. Never, never give up!. We shall go on to the end." Winston Churchill
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