Lyme Disease Support Group

He said his waiting list is about 2-3 weeks. This is fine. After all I have to fly overseas to see him, if I choose to, and this will cost money.

I'm weighing up my options. I can stay here and continue taking Samento and garlic and hope that my symptoms will resolve with time (it's been 4 months since infection, 3 months since the end of my 30 day Doxy treatment) or I can fly overseas before Christmas, see what treatment he wants to give me, and hope that my aches, pains and popping disappear.

What's everyone's opinion?

I'm also concerned about my partner. Her joints have started popping a lot but she says there's no pain. Once or twice in the last month she woke up with neck pain but I don't think it's constant. We haven't had sex yet and if she has lyme, the only answer is that she got it through my saliva. Any thoughts?

The only good thing I can see about your previous treatment is that you seemed to have started tx pretty fast. THAT may be in your favor.

But 30 days of doxy? Not very long, in my opinion. But---- you're male, probably young and you may get lucky with that little of treatment. (Although I like Burrascano and his guidelines, there are people thatneed much more and even he will admit need more tx.)

You said:

****I can stay here and continue taking Samento and garlic and hope that my symptoms will resolve with time*****

Yes, you could hope. I wouldn't.

www.ilads.org

wsw.lymeinfo.net

google Tom Grier

My only real concern is that there's no way I can afford to go abroad for repeated treatments. Just isn't possible. Which means if I go over there and he prescribes me a regimen of abx that just aren't working, then that's it.

That will have been my last shot.

Some input here would be really appreciated.

Julie

*****My only real concern is that there's no way I can afford to go abroad for repeated treatments. Just isn't possible. Which means if I go over there and he prescribes me a regimen of abx that just aren't working, then that's it.*****

I think I know the doctor you're talking about (I'm a member of Eurolyme------not to be confused with LymenetEurope, although that's good too, just not UK based.)

----- and although I'm not very active there, I have read extensively there.

You might join that group and see if there are others in your position.

Some llmds will coordinate treatment with another doctor. It's been done.

I started about a month ago and I've been working up slowly from 1 drop to as high as 9 (I've only gotten this far because I suspect it's been making my leg and joint pains, and possibly my chest pains, worse... can this happen?) and then taking a few days off before starting the regimen again, though I don't tend to start from 1 drop. If I work up to 9 and then take a few days off, then I tend to come back and start on 5 drops a day and work back up again... if that makes sense.

I guess altogether I've only been taking it for a couple of weeks when you take into account the breaks that I've been taking. I take it in conjunction with garlic and also olive leaf oil (when I can remember to take the latter... tastes like crap) capsules.

The pain makes me miserable but the hardest part is the nagging feeling that my girlfriend may now also have lyme, given that her joints are popping a lot and she had a headcold a few weeks ago which is rare enough for her.

This whole thing has ruined my life. Honestly.

My doctor is in United States. He is a biological MD and you may be interested in this info. If you are, just pm me and I will be happy to answer your questions and share the info with you. I am recovered...symptom free. There are others on this site who see this doc,too.....they are getting well,too. If you're interested in alternative but want the 'safety ' of an MD, I can help you with that.

Samento is a great natural antibiotic. It really helped me. However, I don't believe it is a 'magic bullet.' the regimen of homoepathics , herbals, and nutritional suppements including samento is what cured me. All of these were 'prescribed' for me by my physician. I also did hbot, fir sauna, acupuncture and had regular chiropractic adjustments.

We can get better from this disseae. We really can. I was once miserable ,too. I had Lyme for over ten years.....I 'missed' a lot of my thirties. Now, I have enough energy that I feel like I can make up for all that lost time. Hang in there....there really is hope to be free from this disease.

Just pm if you want his info.

Connie

Post edited by: ConnieD, at: 10/27/2008 10:52

hang in there and treat it...

Like Cave said sometimes LLMD's will coordinate with other doc's. I know that now, if and when we need it, my LLMD in NJ is willing to consult with my doc here in CO...

Other things to help - what is your diet like. I know that when you are feeling miserable and going through treatment, that food can be a big comfort...BUT gluten products can add to the aches and inflammation...high amts of fresh fruits/veggies (raw when possible) can also help too...

There are many things that many people here have done. Ya gotta find what works well for you...

Good Luck

Christine