MDJunction - People Helping People
 

Why wear a ribbon?

 
"Gastroparesis" (Mary74)

MDJunction to me

Amanda78"MDJunction to me has been the helping friends of understanding that I have needed. I feel now as if someone else it the world understands the things that I am going through. I feel less alone and happier. Here I can let out all my emotions and get support from many people who have been in similar situations. It really has been a life saver for me!" (Amanda78)

more testimonials
Lyme Disease Support Group
A community of patients, family members and friends dedicated to dealing with lyme disease, together.
Join This Group
Group Home   Forums   Articles   Members (7845)   Diaries   Leaders   Guidelines
Lyme Group RSS Feed
Lyme Disease ForumsGeneral & SupportThe CD-57 Test
10/12/2010 06:46 PM
Natsmom
Posts: 100
Member

Hi,

I had the CD-57 test done. My doc expected it to be in the crapper, but it was actually very elevated. I think the range was 30-360 ( with < 60 being indicative of chronic Lyme ), but my test results were 410!!!!

He said my natural killer cells were in overdrive, but that usually they are depressed with Lyme. He said I have this high count "on my side", as my body is clearly trying to fight like hell.

Is he right? Or is he feeding me a line of bull?

Has anybody else had Lyme and a high CD-57?

I tested positive for Lyme through IgeneX last July, but I've been sick for over 5 years.

Thanks!!!!

Reply

10/13/2010 12:33 AM  Top
Supermom2
 
Posts: 269
Member

My LLMD said something about a high CD57 was indicative of a severe coinfection or strep infection.

10/13/2010 12:59 AM  Top
Bettyg
 
Posts: 26651
VIP Member
I'm an Advocate

CD 57 is an INFLAMMATION MARKER in your body.

go to SEARCH in upper right hand corner, type in

cd57 results in LYME forum click search, read thru summary.

someone posted a complete explanation of that.

also when you use search, after the brief comments you type wanting info ALWAYS TYPE LYME FORUM before clicking search.

mdj has over 700 OTHER boards ok Smile

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

10/13/2010 06:44 AM  Top
Natsmom
Posts: 100
Member

Thank you. I do have lots of inflammation....my SED rate is pretty high.

Previous discussions I participated in:
Igenex and Insurance

10/13/2010 06:50 PM  Top
ChuckG
Posts: 76
Member

Lyme doc on CD-57 test.

However, in my opinion and experience, this marker has not been clinically useful.

http://lymemd.blogspot.com/2009/01/cd57.html


10/14/2010 04:06 PM  Top
cmany
cmany
 
Posts: 6205
Group Leader
I'm an Advocate

No unfortunately it is not clinically Reliable...however, an educated LLMD will use it as a marker - a test that gives them an idea of the scope of the problem...
[b]Group Leader Disclaimer[/b]
First and foremost - I am NOT a doctor, anything I share is based on experience & research. I strongly encourage you to discuss any and all information that I share with a health care provider.
************************
"I'm not afraid to take a stand
Everybody come take my hand
We'll walk this road together, through the storm
Whatever weather, cold or warm
Just let you know that, you're not alone
Holla if you feel that you've been down the same road...
And I just can't keep living this way
So starting today, I'm breaking out of this cage
I'm standing up, Imma face my demons
I'm manning up, Imma hold my ground
I've had enough, now I'm so fed up
Time to put my life back together right now" Eminem Not Afraid

10/14/2010 04:12 PM  Top
Natsmom
Posts: 100
Member

Has anybody else ever had a number this high ( 410 )? The highest one I've seen was in the upper 100's. Most were below 100.

I can't help it. This does worry me alot.

Post edited by: Natsmom, at: 10/14/2010 04:14 PM


Previous discussions I participated in:
Igenex and Insurance

12/19/2010 07:42 PM  Top
Zophiel
Posts: 4
New Member

I just got my test results & my absolute CD57 is 486, so I win! (Just kidding.)

My new doc is having me get a Igenix Western Blot done next since he said he did have one pt that had a high CD57 and still tested positive for lymes.

This is the first lymes testing I've ever had done.

Honestly, I'm kind of glad that something is finally showing up since my wierd but worsening symptoms have often left me (& probably my old MD) thinking I was just getting old & being a crazy wimpy woman! (The usual inflammatory markers had all been negative.)

If anyone else has any extra info, let me know. Now I'm anxious to see what the Igenix test will show.


12/20/2010 01:05 AM  Top
Bettyg
 
Posts: 26651
VIP Member
I'm an Advocate

welcome zophie Smile wow, high no.

make sure you have your blood tested either MON. OR TUES; make out promptly for overnight shipping.

if it sits in post offices over weekends, it will NOT BE ACCURATE. for prices paid, you want accurate results!

see my welcome letter i'm sending you by private message; read igenex info NOW!

bettyg, iowa leader Smile

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

12/20/2010 04:53 AM  Top
kristielyme25
kristielyme25
 
Posts: 473
Member

Another good test to run for immune function is the C4a test. It is a complement protein that indicated toxicity and inflammation.

This test takes a couple of weeks since it requires a frozen blood specimen and some pretty advanced testing techniques. My insurance paid for it, even though LabCorp had to send it out to Cambridge Labs.

My CD-57 was also at a really good level. However, my c4a, which is supposed to be at 358-1883, was 10600 (and this was after a freaking year of treatment). Sad Super toxic, anyone?!?

Hope this helps...and good luck!

I am not a medical doctor YET...my opinions are not approved by the FDA! ;)

“If you will call your troubles experiences, and remember that every experience develops some latent force within you, you will grow vigorous and happy, however adverse your circumstances may seem to be.”
-John Heywood

"Between you and every goal that you wish to achieve, there is a series of obstacles, and the bigger the goal, the bigger the obstacles. Your decision to be, have and do something out of the ordinary entails facing difficulties and challenges that are out of the ordinary as well. Sometimes your greatest asset is simply your ability to stay with it longer than anyone else."
~ Brian Tracy

~k~
Reply

Share this discussion with your friends:
Members who viewed this page also read:
<< Start < Prev 1 2 Next > End >>

LymeLyme Disease ForumsGeneral & SupportThe CD-57 Test

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved