Lyme Disease Support Group

I keep getting terrible vertigo, I've tried meclizine, tried dramaine and the only thing that I have found to even take the edge off the vertigo is immitrex. Has anyone else found that immetrex takes the edge off of the vertigo. There is times I look like a dang drunk trying to walk around......so embarrassing and find myself not wanting to get out because you never know when these dizzy spells are gonna hit. I tend to get very disoriented when they occur.

Sorry I have no knowledge of immetrex being used for vertigo

Tammy K

I found this for you

Pls. take in mind what is around you and what have you eaten.. Eg.. watch out for artificial sweetners.. and also energy saving flourescent lighting can do this. It may also be a medication causing this for e.g. prilosec. but chances are this remedy will help you .

Let me know if it doesn't and I will find another natural remedy for you ok..

Read remedy below the line and feel better soon.. that has to be horrible living like that.

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GINGER ROOT

1 YEA

[YEA] 02/11/2009: Ron from Emporia, Kansas writes: "About 1984 I woke up and got out of bed. When my feet hit the floor, my body dropped like a rock. I slowly got up and the room was spinning. It was the most strange experience I've ever had. It was like I was standing still and the world was moving. I found out it was Vertigo. I went to the doctor and he said "I don't know what to do about it...let me know if you figure it out." The Vertigo lasted for several days and slowly got better.

Every winter I would get Vertigo and over several days or weeks it would slowly get better and then go away.

I moved to Las Vegas in 1991. I was fine for a couple of years. But, then one winter, it hit me hard. It was so bad I couldn't lay down to sleep. I had to sit up and set my body up against the corner of the room. I slept horribly for days. This happened each winter for a few more years.

One night in 1996 when the vertigo was so bad that I couldn't even sleep sitting up, I was thinking about my experiences with vertigo and realized that when I got vertigo, my stomach also seemed upset. I remembered that Ginger Root was used by travelers to settle their stomachs after getting stomach upset from the local food or drink. I wondered if stomach upset might be causing the Vertigo. (Please remember that my condition always took several days or weeks to get better.) I got up and went to the kitchen and took 6 capsules of health food store Ginger Root. Within 30 minutes my stomach seemed to feel more settled. I decided to try going back to bed.

Normally when I have the Vertigo, if I'm laying down and turn my head right or left, the room starts spinning. This time...NO Vertigo! I turned my head left to right and even did is faster than normal, but no Vertigo. I slept well the whole night

and woke up with no Vertigo.

I started taking 6 capsules of Ginger Root every night after that. After a few weeks I reduced the dosage to 3 capsules before bed. This is now 2009 and I still take 3 capsules Ginger Root every night and haven't had Vertigo since 1996.

Ron"

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WOW, Thanks

I'm going to go get some ginger root first thing tomorrow as that is exactly what I'm going through. Thanks for the suggestion. Praying it works.

Tammy

Post edited by: TammyK, at: 09/24/2010 02:22 AM

Have you tried physical therapy with "vestibular nerve re-training"? My child did. After about 6 weeks she started to feel better. At 8 weeks, she did not have motion problems. Also, she was in the 7th month of llmd protocols and getting better (Borrelia, Babesia, Bartonella). Headache, Hyperacusis, tinnitus, vertigo->motion sick were debilitating.

It's a specialized area, be sure to find someone who knows what they're doing. Watch out for quacks.

there's a web site wwww.vestibular.org

We went to "Union Memorial Sports Medicine at Bel Air", ask for Steve or Chrisie. Chrisie is the PT who taught the vestibular nerve re-training exercises. She said it doens't work for everyone, but it certainly helped my child.

Here's the contact info:

658 Boulton Street, Suite A

Bel Air MD 21014

410.638.9400

410.638.9061 (fax)

Hours of Operation

MW 7:30am-8pm, TTH 7am-8pm, F 7am-5pm,

Best Wishes!!

Ohhhh, to have relief from the dizzyness, hyperacusis, headache's......wow. I will definately chek out the website. They initially sent me to physcial therapy and tried teaching me the equilbrium exercises which didn't help at all but they they taught me that when I have a dizzy spell that if I can lay flat on a floor with all extremities and head in contact with the floor that will reset the brain. It does help, but hard to do when your at Walmart or church. Who's that crazy lady laying in the floor??? HA

I wonder if it would reset you if you backed up to a wall and did the spread eagle thing to put everything in contact with the wall...It MIGHT be something you could do in the rest room or someplace private when you are in a public place.

I used to have this happen to me ALL the time and it was full on the world spinning and me standing still..It would make me crawl and laying on the bed was like being on a merrygoround...I used to clutch the sides of the bed whatever I could get my hands on because i felt like I was going to be flung off of the bed even then..

It comes and goes for me too but I've not noticed a cycle. I haven't been SEVERELY dizzy like that for a few years now but still get the waves where it is like that for a few seconds and then resets immediately...

Or just the swim head where I feel off balance...but I would like to try the ginger too...maybe it will help with the cognitive fuzzy head feeling?

That's it to to a T....Tara. I always thought I could just lay in bed and it would go away. NO-worse. So I find myself laying in the floor alot around the house these days. Hoping since its been 1 1/2 years already that this symptom will start to ease up at some point.

I told my husband yesterday that it feels like I have mush for a brain. I can't even think of how to do the simpliest tasks when i get this way. I went from a lifestyle as most of you did that was extremely active. Thats probably what put us here to begin with.

I've went from somebody that took very little meds to having my nice basket of meds now. BLAH!!!

I honestly think he has it too. He was bit a year ago. Nothing.....then about 3 months ago he developed sharp shouder joint pain followed by the inability to use his 3 little fingers. Diagnosed with brachial neuropathy (only 1/100,000 diagnosed) guess what its related too? Also he acts like he is confused but won't admit that too me. But he's said that he is really tired and the bottom of his feet feel bruised. He also has tinnitus. We had him IGENEX tested but he only had band 41 come up positive and 23 Indeterminate (he only needed that second band to show CDC positive) now he has completely convinced himself that its not lyme. Just a bunch of bizarre symptoms.

He should be told that an IND on that igenex test by a LLMD would be seen as a POSITIVE BAND! he really needs to be treated before he gets so down that he can't work/provide etc!!!

OMG I wish I was close! I'd run right over and sit him down! *pointing my finger*

I know Tara...but I think they get so afraid because they have seen how bad we are that they try to convince themselves that they don't have it. I am actually going to send Bills test results out to my LLMD and have him take a look at them.

I had a infectious disease doctor run all the appropriate panels for co-infections and he told me they were all negative, until my LLMD asked to see my results which I got and was looking at them and if the ID guy would have read, I actually had two of the co-infections. And I'm in modern medicine......this has totally changed my perspective as a nurse, that the patient has to be there own self advocate.

Holly recommended I get the ginger root tabs for the dizziness. I just went to Walmart and got them.....by the way am I the only one that hates shopping these days. I can feel almost normal and walk into a store with all the people moving around, voices and thousands of little items everywhere to stimulate the senses......my senses are on overload anyway. I always come out dizzy and disoriented.

When Bill's shoulder was hurting he said how do you stand this in all your joints daily. I said "thats why I'm soaking in epsom salt all day and rubbing down with tiger balm" its the only way I get some sort of relief. And winter is terrible on my joints and Illinois winters are not fun.