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"I have Chronic Lyme Disease - 1992" (tarkioglenn)

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Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv
" (Macv)

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Lyme Disease ForumsGeneral & SupportHas anyone tried this?
09/13/2010 12:37 PM
Renae610
 
Posts: 242
Member

UV Light or photoluminescence therapy?

You can get the invasive treatment, where they draw out the blood, treat, and put it back in the body. Or I just heard that there is an at-home noninvasive sublingual unit now for $3000.

I would like to know if anyone has experienced improvement as you treated your Lyme condition. Thanks!

Renae

Reply

09/13/2010 01:25 PM  Top
waxby
waxbyPosts: 4134
VIP Member

~~~Hello Renae,

~~~Seems to me what the Lyme can evade inside the body,can evade what is outside the body at least in the sense that unless all the lyme is taken out of the body,and even if what is taken out can be destroyed,what of the remaining Lyme left to proliferate?

~~~More treatments?... For years?... Sound familiar?...

~~~If you have $3000 to burn and are confident that this treatment is safe,burn it.

~~~Be wary of every treatment coming down the pike,and there are many,which are bogus snake oil non-treatments.

~~~What is the so called success rate.Even snake oil has a success rate.

~~~You can bet when something comes along that has a proven high success rate we will know about it and this Lyme Disease Forum will become the Lyme Cure Forum.

```````~~~in my straight jacket~~~out on a limb~~~lookin like a cocoon

~~~hangin by a thread~~~waitin for a butterfly~~~under the moon~~~Mitchell~~~

~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell

09/14/2010 09:27 AM  Top
Renae610
 
Posts: 242
Member

Waxby, your points are clearly understood. The older machines are in the $12,000 to $20,000 range, so when I saw $3,000 and do it at home, I want to check if it could work. Right, we don't have thousands of dollars to burn!! If we were going to do a fund-raiser, I think $3,000 might be do-able.

I had heard that it (PT or UV) works great on viruses and bacteria, even antibiotic-resistant ones.

Yes, mutopian, that was my question too, if it would only clean the blood. Does it kill Lyme in the tissues? So I asked a leader of a nonprofit foundation (not sellng the machines) who tells me it does work on tissues and at the cellular level. He said one of the UV light machines was even created by a lyme patient. He recommended taking Covalent Silver along with the PT or UV. This silver is nano-size like a gas so absorbs better than the old Colloidal products that were parts-per-million.

I called clinics in another state and they claim too that the PT or UV works for Lyme.

I'm just trying to check with different sources and see what I learn. Just had to check with you all here on MDJunction! Thanks!Wink

Post edited by: Renae610, at: 09/14/2010 09:39 AM


09/14/2010 10:03 AM  Top
Renae610
 
Posts: 242
Member

Another healthcare facility I checked online, I saw a statement that if you are light sensitive, this may not be an option for you. That would make sense. Don't know if it is exactly true, though.

09/14/2010 10:44 AM  Top
waxby
waxbyPosts: 4134
VIP Member

~~~Right Renae,

~~~Investigate,investigate,investigate,educate,educate,educa te,question,question,

question question,question!!!.

~~~Be sure to get a hold of the actual people who have found success with it

in the long run.Many things work in the short run.

~~~The deeper question are what is the success rate in the long run.Temporary relief? Long term remission? The people selling the product are not necessarily reliable as they will give you pseudoscientific answers to lead you to the sale.Speak with real people getting real results.Where are they.They are not here at this site and we try everything.

```````~~~in my straight jacket~~~out on a limb~~~lookin like a cocoon

~~~hangin by a thread~~~waitin for a butterfly~~~under the moon~~~Mitchell~~~

~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell

09/15/2010 11:54 AM  Top
Renae610
 
Posts: 242
Member

That is good wisdom, waxby. Thank you. I sent you some info. I'll let you know what happens as I hope to try this for my daughter. She is 23 and has been ill since early 1999, missed high school, and is in poor shape right now with few options for treatment because she is drug-resistant, tolerates few supplements, and her food options have been decreasing. I need to talk to her father to see if he is willing to sponsor these natural treatments, whether we buy the at-home unit or travel out of state to a doctor's office.

A doctor in another state told me that a combination of ozone and PT can be very effective. She also recommended Colorpuncture, which I am going to try here locally on Saturday...

Keep hope!!

~Renae


08/25/2012 01:10 AM  Top
newmexicogal
 
Posts: 1
New Member

Hi, I am trying the bpt along with hyperbaric oxygen. I am hoping for the best. I am also wishing you guys the very best as well.

Smile

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