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Lyme Disease ForumsGeneral & SupportLLMD at Johns Hopkins
09/11/2010 08:08 AM
docallegra
 
Posts: 5
New Member

Anyone know of a reputable LLMD at Johns Hopkins?
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09/11/2010 09:34 AM  Top
Snickers
Snickers
 
Posts: 181
Member

Unfortunately Johns Hopkins does not have a very good reputation for Lyme Disease. I doubt they have any LLMD's there. They tend to follow the Infectious Disease Society views on Lyme. I went there when I first got sick and didn't know what was wrong with me and was told I had post viral fatigue syndrome. 7 years later my new general practitioner tested me for Lyme Disease and I was positive.

09/12/2010 01:07 AM  Top
Bettyg
 
Posts: 26579
VIP Member
I'm an Advocate

jeanne,

yes, HOPKINS & MAYO CLINIC ARE SUPER BAD! they have INFECTIOUS drs. only practicing idsa 06 lyme treatment guidelines.

save yourself thousands of dollars and go to our llmds.

if i haven't sent you anything, please post in LLMD REQUEST FORUM, it's 1st forum on home page.

mayo...i have many friends charged over 100,000; got no lyme/co-infection diagnosis, NOTHING, and NO treatment after being there 1 week each!

hopkins has idsa drs. who were on idsa committee writing their guidelines EXCLUDING OUR ILADS/LLMDS TREATMENTS!!

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.
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