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My family dr thinks I have lyme disease



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11/22/2007 13:05
baileygirl
Posts: 1
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Around halloween of this year, I noticed that my ankle was swollen. I thought I had been bit by something, but figured that it would go down after a while. After about a week it didn't. So, I left work and went to a nurse practitioner...they took my temperature and I was about 99.2 not bad eough to really feel bad. but I had been having headaches and it was getting worse. She asked me if I remembered being bit, and I said no, so she concluded that I must have sprained my ankle and gave me antibiotics. I didn't think I sprained my ankle, but I figured taking the antibiotics would be good because the area my ankle was warm and would burn. and I started feeling pain in other parts of my foot. so I just figured the antibiotic would help that.

about a week later, I woke up and could barely get out of bed. I'm in my early 30s, and I was aching EVERYWHERE. in every joint. so my first worry was rheumatoid arthritis. I was afraid it would get worse, so I went to my family doctor. I still had a red rash on my ankle. It was swollen, and would just burn. i had been having headaches, neckaches and then started waking up with joint pain. When I went in to the DR, I just told him about my joint pain. then I asked him if he thought I had sprained my ankle. He thought it looked like I had been bit. he asked if it itched (which it doesn't) then he asked if it burned (which it does). then he said my symptoms sounded like lyme disease. that's when I found out that headaches and neck pain goes along with the disease. He seemed to think it was caught early and prescribed for Doxycycline (?) for about a week. and gave me a steriod shot.

Initially I felt better for a couple of days, but after taking the antibiotics for a week, I still hadn't seen much improvement. My ankle was getting bigger and still warm to the touch, the rash was spreading to another area on my ankle and it burned too! plus, i was still having to take motrin to just move around in the morning!

So I went back a week afte that. and now he decided to run some tests on me to rule out arthritis, lupus and few other things. he also got a blood sample to test for LD. cause he still seems to think I have taht. and now he's put me on 500mg of Levaquin. and gave me another steriod shot. Of course I felt better a couple of days after the steriod shot. But, this time I think the antibiotic is working cause my ankle is going down. and its not as warm to the touch anymore. now it just looks like one big dark red bruise.

they said they would call me if they had any abnormal results on the arthritis tests and there was no word from them so I assume it's ok.

now I have about another week to find out my results on the LD.

all I know is that I"m ready to get this thing over and done with. I haven't been able to walk that well for a month now, and I cant even get my foot in a regular shoe it's been so swollen. and hte joint pain! ugh!

I never know how I'm going to feel from day to day.

it's tiresome!

and to top it off, I don't understand how I got it! i asked the nurse if they had a lot of cases and she said they dont. i live in arkansas & i really dont know anyone that has it!

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11/23/2007 10:15
cooley420
Lime Green Ribbon
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I just wanted to say, if you think you have Lyme DO NOT GET STERIOD SHOT!!!!! That is the worst thing you can do for it. It lowers you immunity system and allows the LYme to spread more quickly. If you think you have LYme you need to get a LLMD. PM if you have questions

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11/23/2007 11:04
Bettyg
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[b]

hi there,

when posting, please have shorter paragraphs for those of us with neuro lyme who can't read long solid block texts that are NOT SHORT. ok; god bless you for your thoughtfulness.

what specific blood test was done for lyme? what LAB did the testing?

you need IGENEX western blot igm and igg from calif. they test all 16 protein bands. look in another area for it; i have detailed comments there ok.

all 50 states have lyme!

IMPORTANT!! Below!!

2005, top 20 states in CDC STATS; fyi, IOWA no. 15%

http://flash.lymenet.org/scripts/ultimatebb.cgi? ubb=get_topic&f=1&t=049305#000004

LYMEDAD sorted the numbers for 2005 plus 2006 (through 12/23/06.

1. New York 9754

2. Pennsylvania 7642

3. New Jersey 5281

4. Connecticut 3497

5. Wisconsin 2786

6. Massachusetts 2369

7. Maryland 2177

8. Minnesota 1646

9. Delaware 1111

10. New Hampshire 823

11. Virginia 589

12. Maine 534

13. Rhode Island 274

14. California 264

15. Iowa 176

16. Vermont 157

17. Illinois 127

18. Michigan 116

19. Florida 106

20. Ohio 100

21. Texas 88

22. North Carolina 79

23. West Virginia 75

24. DC 69

25. Indiana 54

26. South Carolina 33

27. Missouri 27

28. Tennessee 20

29. Alabama 19

30. Oregon 18

31. Arizona 17

32. Washington 16

33. Nebraska 13

34. Georgia 13

35. Kentucky 12

36. Idaho 9

37. Utah 8

38. Kansas 8

39. Alaska 7

40. Nevada 6

41. New Mexico 5

42. Wyoming 4

43. South Dakota 3

44. Louisiana 3

45. North Dakota 3

46. Colorado 1

47. Mississippi 1

48. Arkansas 0

49. Guam 0

50. Hawaii 0

51. Oklahoma 0

52. Puerto Rico 0

Check out the new map 1990--2006 of Lyme cases on the LDA website. LDA wants to make it difficult for anyone to continue to deny the impact of this disease nationwide.

LDA Map of Lyme Disease Case Numbers

http://lymediseaseassociation.org/Maps/usa_total.gif

The small print at the bottom says:

"Note CDC says Lyme disease is under reported and that only about 10% of cases that meet CDC surveillance criteria are actually reported to CDC. (For example, Oklahoma 362 reported cases = 3,620 probable cases meeting CDC criteria.)"

From Truthfinder/Tracy:

2003 CDC Incidence map

http://www.cdc.gov/ncidod/dvbid/lyme/ distribution_density.htm

or this “risk map”:

http://www.aldf.com/usmap.shtml

Now compare that to this map that shows the incidence of positive Lyme test results in dogs in the USA:

http://www.idexx.com/animalhealth/testkits/3dx/lymemap.htm

MELANIE REBER’S 186 LIST OF SYMPTOMS BY REGION AREA:

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic; f=1;t=021063#000000

CO-INFECTION SYMPTOM LIST 9-07

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic; f=1;t=058264

i just glimpsed at map; it showed ZERO for that year, but you have it there; just NOT A LOT like other states above yours!

how i was biten? a tick off my folks LIVE XMAS TREE in 1969! never saw it, NO BLLS-EYE RASH; just dx with mono/epstein barr virus in jan. 70!



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