I think i have lyme for many years. western blot shows i do. now i have enlarged spleen and kidneys. nodules on thyroid. have history of panic, anxiety, rashes, tick bites, pressure in ear, skipped heartbeats. took 10 days doxy twice years after being bitten. have not had money to go to llmd.would like to know of one near huntsville, alabama. the spleen area feels full, no pain yet. sore bones though. many weird symptoms over the years. have been on 1/2 10 mg paxil since 1997. also 1/2 0.5 klonopin morn and nite. was put on this for nervousness, depression, panic by MVP doc. dont know how to get off. afraid of seizures. thinking maybe is going against my spleen or kidneys. am very depressed about all this now. any help appredciated. iam going to see hemotologist and gastro doc. my ins will pay for that. i am on disability for panic disorder. thanks in advance. rose
(applies ONLY to those who posted elsewhere already ok.  )
NEW FORUM, SEEKING LLMDS, the 1st forum
start a NEW DISCUSSION by clicking on that at bottom of the page, copy your text to the body of message as you posted above read my detailed instructions in christine's 1st post explaining how to use this new forum; big thanks! Hugs; example below
subject: 4 yr. old needs KIDS LLMD IN MD, VA, DC area
LYME YAHOO GROUP BOARD FOR EACH STATE FOUND HERE! People seeking doctors might be able to get help from their state online information and support group. The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
ILADS - The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. www.ilads.org
Call ILADS they are happy to refer to LLMd's around the country. Here is the contact link, scroll down beyond the email form for their phone number:
when you get to the site go to upper right hand corner and type in LYME DISEASE hit enter and it brings you to this very well-done slide show on LYME disease! it shows ”brain lesions” too. 1st one is DATED JAN. 25, 2010.
Betty, Minoucat, & Connie Mc's SSDI, SSI, & LTD DISABILITY RECOURCES FOR Disability, Insurance, Dealing with HMOs
Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend; example, me, 40 yrs. neuro chronic lyme, so we are able to comprehend and read. Then we can assist and guide you ok.
please post in short paragraphs like you see below or look at a few other posts, but we neuro folks need them short.
1-2 sentences MAX and hit ENTER TWICE to doublespace between each paragraph. Hugs
DO NOT BREAK UP THE SENTENCE THOUGH…we neuros lose our train of thought if it is broken up in the middle unless it goes on FOREVER!
For easier reading, please edit your post. You can break up your longer paragraphs into smaller paragraphs. Please hit “enter” key twice after each paragraph, also. Click EDIT send when done. 
Go to LOWER BOTTOM MIDDLE; SUBSCRIBE TO THIS DISCUSSION to receive all replies.
Thank you for posting in a manner that makes it easier for all to read and help others.
rose, please break up your above post into 1 SENTENCE PARAGRAPHS; hitting enter TWICE after each short paragraph for us severely neuro lyme patients, like me..40 yrs., so we may comprehend and read this.
does anyone have enlarged spleen. thrombocytopenia? from lyme or co-infections? is there treatment?
08/24/2010 09:19 PM
Posts: 1659 Senior Member
I don't know if I do. Have always wondered if my spleen has been affected by Lyme. I am pretty sure my kidneys have been, so I take a raw kidney glandular and it seem to have cleared up my urine.
So I have considered trying a raw spleen supplement to see if it boosts the immune system.
Alot of the things you mention, I can relate to. I have a seizure disorder from Lyme. I Am chained to my supplements to keep me from having a full blown seizure. But I still have night tremors and mini seizures in bed at night and lose alot of sleep because of it.
I am also having the skipped heart beats for the first time in my history of having Lyme. This scares me more than anything!
In many ways, the mental illness aspect of Lyme is a blessing for some of us, as it is often times the only way we qualify for disability benefits when our lab tests don't show positive.
I took Paxil for a while for the panic attacks and depression I got from Lyme. But it had a weird affect on the Lyme it seems, and made it shift into a position where it appeared to block impulses to my lower intestine. I could not eliminate no matter what. I had to go off the Paxil.
Basically I have found that Lyme reacts badly in my system to alot of chemical drugs. So I have mostly chosen the natural alternative root. ( This is not advice to do the same however, I believe each person needs to choose for him/herself. ) I am not a doctor, and don't want to give advice - only share my own experience.
I do hope and pray you feel better and find some solutions! Welcome to this forum!
Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.