Lyme Disease Support Group

I was the host (between me and my fiancé) and was bitten over the course of a month probably 30-40 times before we realized it was bed bugs and not just mosquito bites.

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In June 2010, I was clinically diagnosed with Lyme Disease based on my symptoms from a MD (Georgetown University graduate with 30+ years of Tick Borne Disease experience) who also has Lyme himself and has dedicated his life to treating others.

It’s been almost exactly one year since my bites but my symptoms only really started back in January 2010.

My family doctor had me on Paxil with a diagnosis of something between Panic and Generalized Anxiety, but then put me on Zoloft due to side effects.

My symptoms have been night sweats, cognitive confusion, memory difficulty, muscle aches in my thighs, weakness in my legs/knees, joint-"popping," minor ear aches and ringing, fatigue, high blood pressure, anxiety, and aching in my scrotum.

I have also had two scrotal cellulitis infections within the last 1.5 months, with the first putting me in the ER on IV treatment for pain and Cipro antibiotic (which my body did not handle very well).

In the last few weeks, my typing skills and memory recall have worsened and I feel just completely unlike myself. Also, I did go camping back in September, but as mentioned above, don’t remember any tick bites and have never had a rash.

Just this week I have tested positive for WA-1 Babesia (through Focus Diagnostics Labs) but have not had a positive test for Lyme as of yet (through LapCorp), but did have two non-specific bands show up in my Western Blot (IgG P41 and IgG P66).

I paid extra to have the Western Blot done based on my parent's recommendation (they're doctors), so that's they why they ran it, even though the first two antibodies were negative, which normally triggers the lab to then the Western Blot when one antibody comes back positive?

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I'm currently being treated for Lyme Disease with Doxycycline and taking supplements and eating a healthy diet and exercising.

My Lyme Doctor does not want to currently treat me with the Babesia medicine (Atovaquone) because he wants to treat the Lyme first. I'm one week in and already feel a *little* better!

Question #1

Any thoughts on my doctor's recommendation to NOT treat the Babesia currently? I'm assuming his decision is because of the conflict in taking Doxycycline and the Atovaquone?

Question #2

Can I transmit Babesia to my fiance through sexual intercourse, the doctor said that Lyme can be sexually transmitted. My fiance and I have been together for 5 years now and are getting married next year, but don't plan to have kids for several years after that. Does anyone know what precautions (if any) should be taken regarding this topic?

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My family doctor wants me to see their practice's Infectious Disease Doc on July 6th, so I am going, but I'm not too optimistic from what I've read about their impressions of Lyme Disease, especially chronic neuro Lyme, which my Lyme doctor believes I have.

Post edited by: dukedog17, at: 06/24/2010 08:15 AM

~~~Find a new Dr.A LLDr(Lyme Literate Dr). Forget about the IDDr.unles SHe is LL or you're just going to go in circles chasing your tail and banging your head against the wall while your disease goes deeper and becomes more aggressive and you become sicker.

~~~Common LLDr's knowledge dictates treating coinfections first or at least along with Lyme.I don't understand why your "experienced" Dr does not know this or is ignoring it if he does.

```````~~~From my straight jacket~~out on a limb~~~lookin like a cocoon~~hangin by a thread~~~waitin for a butterfly~~~under the moon~~~Mitchell~~~

i don't have co-infections so can't address that personally ok; i'll let those w/those illnesses give you their 1st hand experiences/knowledge

please send me a private message, below my name, the full name, city/state of the infectious dr. your parents want to send you to ok

we have less than 12 on our lyme literate nationwide list fyi. i'll check for their name to see if you might be BLESSED having 1 in your area.

yes, USE PROTECTION ALWAYS! i feel it is sexually transmitted; many opinions & books written addressing that.

BETTER BE SAFE THAN NOT!

order UNDER OUR SKIN lyme documentary for your dr. parents:

http://www.underourskin.com/store.html

community one is where you can show to a GROUP of folks in auditorium setting $101.00 total cost including S/H

home copy is $40.95 w/s/h for HOME setting showing it to family friends there.

at their site, you can arrange to have a LOCAL showing and let them know date/time/place; they will advertise it on their site for you.

My daughter was treated for lyme and never knew she had babs for 15 yrs.

My doctor said you can't take atovaquone with Doxycycline.

If I can take the Spiro (which cmany said treats Bab & Lyme), do I also need to do that like Artemisin? 2-3 days on 2 weeks off?

Thanks for your help, I love this support group SOO much!

Well Wishes,

John

I was on doxy and malarone first which worked well then switched to mepron and Zithromax and still took doxy! I believe you have to treat coinfections first not the other way around...

Good luck xxxx