Lyme Disease Support Group

En route to trying to figure out what was wrong with me, I also had a brain MRI to rule out a pituitary tumor. I also had white matter lesions and my internal medicine MD couldn't shoo me out the door fast enough to a neurologist. The neurologist was very puzzled by my symptoms. She SO wanted to go with the MD dx but could also tell I just didn't have those symptoms. I had a repeat brain MRI along with spine MRI, was completely ignored by the neurologist after that. I had to go to the imaging center and get a copy of my scan and send it to a family member who is an MD. It was a friend who suggested I may have Lyme, to which I responded pffft. Then she sent me links and info and I broke down and cried. I knew this is what I had. I found an MD, was tested by Igenex, and although I've probably had this for 40 years I managed to have a positive IFA. My lyme MD says the brain lesions can absolutely can disappear with treatment. I did NOT do the spinal tap. My choice was to get a Lyme workup first and I am glad I did it that way.

Mostly everyone that has neuro-lyme has brain lesions (they just have to look for them by having a MRI done). Many patients don't do the MRI.

@shortangle2

Brain lesions in neither MS or Lyme, they don't get smaller.

Lesions only become inactive. (remission) but they never get smaller.

Alex

Lesions in MS not only can get smaller they can go away. Lesions in MS come and go depending how how active the disease is. I used have three lesions in my brain, and second MRI showed none (just had one area of scar tissue from an old lesion.)

Hi, just curious, what specific word for the lesions was used in the results of your MRI, mine was without contrast and basically uses the word : "moderate atrophy...". Also did EEG and said ABNORMAL. This was around 2-3 years ago.

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