Lyme Disease Support Group

I did some brief research on Bartonella, but there just wasn't much out there. But one of the things that has always bothered me about my Lyme diagnosis was that muscle weakness is not listed on the ILADS symptom list.

Plenty of anecdotal evidence though. Seems lot's of people with Lyme have muscle weakness. I'm not suggesting I don't have Lyme. I have a CDC Positive Igenex. But I was negative for all Eastern Co-infections.

I do have achy calves, sometimes sore soles in the morning and muscle fatigue. Meaning, I can lift something heavy - once. Muscles rapidly reach the point of exaustion. Then I feel like crap for a few days.

Turns out my lovely, supportive wife has done some research on a yahoo group and came across "Bartonella Rage". That's me. I can fly off the handle in a split second. Seems I lose that "self edit" function and my reactions are way overblown.

Two weeks ago I dealt with an unreasonable customer by telling them to get the hell out of my shop and go see the idiots at Best Buy...

The more I learn about Bartonella the more I'm inclined to agree with the person on this board who suggested Bartonella. It would "perhaps" explain the rapid relapse off of Rocephin. It would also explain the hot flashes I have without fever. And it might explain the muscle weakness that comes and goes.

Anyone have any thoughts? I would appreciate some input from people who have had a definitive diagnosis of Bartonella. Perhaps some success stories?

http://www.sciencedaily.com/releases/2009/01/ 090106145006.htm

Testing for co infections are just as tricky as lyme so a negative doesn't really mean much.

Speak to ur doctor. Bartonella is usually treated with the same drugs as lyme.

I got my best results on biaxin....I'm starting to get some symptoms back so its possible I needed a longer course

Make sure you talk with your new LLMD about your concern for bartonella, it seems it may be harder to get rid of than lyme.

If I can get over the Bart, if that's what this is, perhaps I can start exercising again and get some quality of life back. Then hopefully I can work on the Lyme.

New LLMD appointment is coming up soon, two weeks. I have high hopes with this guy.

Wish me luck...

Bill

Additionally, other factors too...other infections - even a mild yeast infection can render abx useless...

Then other things such as diet are a factor too...

Have you tried Rifampin? It works for both Lyme and Bart...

Some just don't respond to certain drugs...and it may not be because of not having the disease - rather a multitude of factors...

My family (in NJ) LLMD had to do muscle testing on my sis - as when she first got hit hard, Rifampin was the best choice for her. 4 years later, when she relapsed hard, the only abx that worked with/for her, was tetracycline...

So our bodies change as we take this journey...and we have to find the right med that works best for us....

Couple that with Lyme Rage - EESH!!! Which for me is Temper tantrum on overload...

By themselves they are aweful - together they are a disaster....

...curiouser and curiouser