Why wear a ribbon?

"I wear this ribbon because someone i know has Lyme disease." (lullabyrose)

MDJunction to me

"All I can say is that this has been the best place ever. It has been six to seven months since I joined, and I have learned so much. I now believe in myself and accept myself on a completely different level. The people on MDJunction has been so supportive and accepting that I have been able to adopt it into my personal life. That has reduced a lot of stress in my life. Thanks to all." (bunnyfly)
We comply with the HONcode standard for trustworthy health information:
verify here.
Lyme Disease Support Group
A community of patients, family members and friends dedicated to dealing with lyme disease, together.
Join This Group
Group Home   Forums   Articles   Members (752)   Diaries   Leaders   Guidelines
Related discussions:
08/22/2008 11:49
buckron

I am on Samento probably everyone knows that by now but i have a question that may be difficult to answer.I am outdoors all the time in good weather in the woods cutting firewood.Yesterday on a piece of rotten wood i saw a tick..i just about freaked and got the heeby jeebies..but i thought ..dont worry Samento is in your veins.Do you think i am protected against those SOBs while on Samento? I love the woods and dont want Ticks to ruin it for me.I am very cautious now and make a spray up of clove oil and water and spray my clothes before i head for the woods.Clove is a super bug repellent..very effective.
Reply  


08/22/2008 12:35
Clayton72
Lime Green Ribbon
Posts: 500
Member

Send a PM
Give a Hug
Good info - I better by some Clove Oil this weekend. I'm off to the mountains and scared too death. Don't we all feel like ticks have turned us into wussies? haha. I'm having my dogs shaved today so I can carefully inspect them each day. I'm not going to be hiking b/c the ticks literally fall out of the trees onto people and horses. I'm freaked out by that now.

My parents bought the tick removal kits and 4 bottles of Samento for guests out there - I'll add the Clove oil to the arsenal - thank you!

Reply  


08/22/2008 13:16
buckron

Give a Hug
Hey Clayton72....This what i do, Take a decent spray bottle like a plant sprayer that holds roughly 1 lirre water and take 4 or 5 eye droppers full of pure oil of cloves add and shake...spray all over your clothes even your shoes boots and have a helper spray your back side.Be very careful close your eyes when your helper is spraying you.Sure beats DEET!
Reply  


08/24/2008 08:21
Sunnisideup
Lime Green Ribbon
Posts: 16
New Member

Send a PM
Give a Hug
GEEE, Clayton, your parents want to adopt adult female # of kids? They bought Samento & tick removal kits for guests? Lovely folks. I can NOT bring myself to STOP hiking in the woods. The only exercise I can even FORCE myself to do anymore & I was into many sports before I was crushed by this illness. BTW, I don't dare tell my family I have been diagnosed and self medicating. No support here, from anyone. For my family/friends Lyme is like depression used to be a generation ago--not real problem, illness, just and excuse. I felt & fought those same feelings until reading here & other places for about a year convinced me otherwise (of course blood tests as well). Lucky folks who have support. I do ok though. Nvrgiveup.

Popular posts by Sunnisideup
    anyone with neck pain
Reply  


08/24/2008 15:41
jaime1978
Lime Green Ribbon
Posts: 1094
Group Leader

Send a PM
Give a Hug
I'm sure the samento is a good thing to have going on , but I don't think it will make it that you never get lyme again. I had asked my doc a long time ago, before I knew I had lyme, I was on abx for pneumonia, and I asked if it would keep me from getting sick with something or another, and he said it didn't work that way. But certainly we shouldn't let the ticks rule our lives. It's not in our hands really. If we're going to get it again, we're going to get it again. We just need to use the knowledge we've gained to help ourselves. ie don't go walking naked thru the woods is a good start, lol

Sunnisideup- I'm sorry to hear you don't have any support. It was like that for me too when I was first diagnosed. In fact, my first herx, I had to go to a family reunion, last thing I wanted to do, it was increadibly hot and yucky here, and I just wanted to die really. One of my aunts had the audacity to LOUDLY say SEVERAL times, "you look like you're overdosing" she and many others in my family knew that I had been on various narcotic meds for the previous 3 years, now if I was going to overdose I think i would have done it long before 3 years, second it was totally embarasing. I went home and sent an email full of info I found about lyme to my friends and family. She changed her tune when I was hosting thanksgiving, she asked my mom if I should really be doing it that I didn't sound good on the phone, and offered to bring a dish. THen on mothers day this year she made some off comment again.

with my family , if it's not cancer, it's not anything. It took a long time for the SMALL bit of 3D support that I have. Really, my hubby and my 6 and 5 year old are my biggest cheerleading section. Pretty sad that my kids are more sympathetic than most of my extended family. My in laws and aunts are the worst. It's a shame. all I know is what goes around comes around.

if you ever need anything, we're all here. That's why I love this place. People understand exactly what you're going thru. I've been on other support sites, and even there people critisize for one thing or another. it's ridiculous. pm me anytime honey.

Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns
Reply  


08/26/2008 03:32
ConnieD
Lime Green Ribbon
Posts: 716
Group Leader

Send a PM
Give a Hug
Hi Sunnisideup,

Geez, I am so sorry you have zero 3D support. The good news is that you have us. We all know EXACTLY how you feel.

And Jaime, what an awful thing to go through at your family reunion....yes, what goes around ,comes around..

I think it's fairly common for people who have not been affected by this directly to discount our pain and suffering. My own brothers and sister were not very concerned. It's so frustrating. Thank God I have this group. I discounted my pain for so many years. Talking with other people who have gone through the same pain has validated the suffering. The pain is real and so are we . I've said this before...... we are all in this together and we can get better. We really can. Hang in there.

Oh and about the orginial question.....I was on and off samento in the Spring and I still got reinfected. However, because my immune system was a lot stronger this time around, the signs and symptoms of the new Lyme, babs, and RMSF were mild and short-lived. So, it's my experience it will not prevent you from getting reinfected.

Peace,

Connie

Peace,

Connie

Please do not take anything I say as medical advice. I am not a doctor.

Open your mind to the possibilities available to you.

An attitude of gratitude is good 'medicine,' too.

~Lyme Disease Support Group Leader~
Reply  



Start a New Discussion

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice. Read more.
Contact Us | Bookmark Us | Add a Doctor | For Doctors | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | Advertise
Copyright (c) 2008 MDJunction.com All Rights Reserved