Lyme Disease Support Group

Thank you so much

Bridget

It is hard to notice the improvements in treatment. It wasn't until I started keeping track of everything on a daily basis that I was able to see that they were getting better. I was finally able to see that they weren't as frequent as before and the intensity was less.

My husband also has lyme and was on oral and finally on the IV like you. It took about 4-5 months on the IV before he started noticing improvement with his symptoms. He now feels much better and has been able to stop the IV and go on a natural treatment that helps support his immune system. He should be able to reduce that soon.

It just takes time. Hang in there. You are not alone and you will get through this. It is definately one of those one day at a time things.

I hope this has helped. I think we all get tired of fighting this disease. I am one of three family members that have lyme and we are all doing much better.

My sister has gotten her life back and is doing good. My husband is able to continue working full time+ and is feeling great. I am doing real good. I have many more good days than bad and am looking forward to getting off the anti-biotics soon as I am doing so well. There is hope and you can get better.

Hang in there.

God Bless,

Kathy

I have been on oral ABX for 1 1/2 years or so and seen very little improvement, but it IS there.

I don't have migraines all the time.

I don't have pools of sweat in the middle of the night.

I don't wake with burning sensations on the bottoms of my feet.

My muscular pain is a little bit better. I'm told the neuro part is usually the last to go away, that may be why you are having the reaction you are having.

I haven't been on IV yet and probably wont because my insurance doesn't cover it so it's oral ABX for me.

Did you make a list of your symptoms when you first started out with treatment?

If you see an LLMD he/she should have asked you those questions.

If you can look at the answers to the questions then and now, it can give you a look at the small leaps that you may be taking that you may not otherwise see.

That's what my doctor did with me.

Dr. Burrascano is a name you can plug into Google and get his article which has a list of symptoms in it.

Maybe you could go through that (print it out) and rate yourself at the beginning and then now and see if you see any improvement.

You might be surprised.

No matter what, you're welcome to keep posting here and share how you're doing with us.

Cindy

i sent you my welcome letter earlier; but click on the link in it for SUCCESS STORIES; you'll learn alot there, and read it often when you are down, hit bottom, and need INSPIRATION to pick yourself off the ground and go on for a FUTURE OF REMISSION IN SITE.

hugs, bettyg, iowa leader/activist

But having been around here on MDJ since they opened, I have heard many success stories...

My mom used to tell me something when I was little "the turtle wins the race" and with lyme, nothing could be truer.

Just remember you are not alone, and we are all here for you.

I know so many of us don't have real support in our real lives...so this forum is like family to us, we all care deeply about eachother, we all understand what eachother is going thru.

xoxo

Not been around much due to many problems from my surgery in March...

There is HOPE....I have/had lyme since 2007. Was at deaths door (read my profile when you have time).

Going on a year I can say I am back to 100% of myself again. Cured, remission, whatever we call it, I'm back to "JULIE"...

It was a very tuff road to travel getting where I am at today...It can take time and sometimes lots of time. I was lucky to have found the tick on me, got sick within days and my Dr. acted on it ASAP, he did not play around like many do....

I wish you the best of luck and remember you will and can get better with time.

Julie

Thank you again and I look forward to all of the advice and support offered here

Bridget

I have done the abx, short stint with IV - 12 long years of orals - then nothing for a few (not by choice but by finances), a few years on and off strong abx...

What I have learned through all the ups and downs, is that you honestly have to educate yourself...learn about the disease...right now it could be a bit scary - so dont worry too much about that - plus retaining so much info may be hard...

Focus on you...Diet and supplements can be a huge help - especially for those of us who have had this long term...

Removing foods that feed the disease, and increase symptoms is important. For many this is Gluten Free, some need to be dairy free too...also no refined sugars (they really feed the disease) and no processed foods...and others have gone much farther - you will be amazed at what so many here have learned in order to improve their lives...

Veggies - colorful veggies can really help - especially if you can juice them...fruit in moderation...

Supplementing, especially focusing on your immune system and adrenals and liver...the stronger you can make these the easier it is for your body to jump on board and fight along side the abx...

Detoxing is critical - half your weight in ounces of water daily - plain or quality mineral water...also 1-3 cups of water with lemon and/or lime juice - this will reduce the acidity in your body - this disease thrives on high acid levels...

Its a lot to take in - but if you feed your body as it was designed to eat - you will be stronger and more able to fight this...

TOns of info on this..

Christine

Post edited by: cmany, at: 05/03/2010 06:59 PM