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Lyme Disease Forums › General & Support › Pain in Hands and Feet Fibromyalgia or Lyme?
08/21/2008 11:25 AM
Pain in Hands and Feet Fibromyalgia or Lyme?
buckron
I have a lot of pain in my hands and feet.Its always at its worst when i get tired.I stumbled onto the fibromyalgia support group and a lot of those members have the same symptoms.I am confused do you other Lyme members have tingling numbness and pain in your hands and feet?Maybe a lot of the Fibro group members have Lyme?
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08/21/2008 12:19 PM  Top
grammyt6
grammyt6  
Posts: 24
Member
Hi, I have the super weird stabbing pain around the outside of my heels, radiating up the back of my feet. My LLDR tells me this is definitely one of the many symptoms of Lyme. Before i started treatment i had weird stabbing pains all over and also numbness and tingling.

Before I finally found this Dr, I made three trips to Mayo Clinic where no one had a clue once the ELISA and Western Blot came back negative. One of the 'experts' I saw there was a rheumatolgist and he not only ruled out Fibro but told me many Drs diagnosis cases as being that because the truth is they have absolutely no idea what the real disease is that is causing the symptoms or no name for it. Makes sense to me.

The really difficult part is getting a traditional medicine person to actually be brave enough to dig deeper and/or treat based on the history of symptoms or send off the WB to IgeneX.

Hope you find answers to your situation soon.

08/21/2008 01:33 PM  Top
jaime1978
jaime1978  
Posts: 2399
VIP Member
I'm an Advocate
in all honesty, I think fibro is a SYMPTOM of something else, NOT a SYNDROME, so yeah, I think it's more likely lyme. In Buhners book I believe it was, they tested some outrageous amount of people with "fibro" and all but 2 I think had lyme, were treated and got better. A lot of fibro people don't like to hear that, and are usually pretty "sure" about thier dx, but I carry that dx too, even way back in the 90's they were saying docs thought fibro was caused by virus or bacteria, but they seem to have stopped the boat there. HELLOOOOOO, bacteria=lyme Smile
Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns

08/21/2008 01:34 PM  Top
jaime1978
jaime1978  
Posts: 2399
VIP Member
I'm an Advocate
btw, I have caught a few fibro folks here, and they just sounded so lyme like, I talked to them, got them to get tested, and they were a big fat POSITIVE!
Please do not take anything I say as medical advice. I am not a doctor.

~lyme disease support group leader~
please pm me with any special concerns

06/21/2009 07:50 PM  Top
SarahRN
SarahRNPosts: 12
Member
Hello,

I have not been officially diagnosed with lyme, but I am being treated based on symptoms. I believe that the diagnosis of Lyme is correct. I have been evaluated for fibromyalgia several times and have not met any of the criteria.

I have pain in my hands and terrible pain on the bottom of my feet. (I have flat feet and have been told that I may have plantar fascitis, but I noticed that once I started the abx the pain in my feet started to feel better).

I hope I have been some help.

Sarah

06/21/2009 08:27 PM  Top
cmal
cmal  
Posts: 372
Member
I was diagnosed with fibro in 1999, I kind of rolled my eyes and kept looking for answers....10 yrs later I got the lyme diagnosed. Very frustrating. All the while my feet have felt like they were going to just crumble beneath my steps at times. Excruciating pain, also told plantar fascitis. It's just weird though that it can be so intense and then sometimes not even there. Anything that I have been told I have that does not progress like it should or respond to meds properly I blame it on lyme. I think its a pretty safe bet! lol

Christi

Christi

The only Zen you find on the tops of mountains is the Zen you bring there.

06/22/2009 04:58 AM  Top
toothfairy55
toothfairy55  
Posts: 3856
Senior Member
Some co infections I think BART will cause the soles of your feet to hurt.
Carol

I am NOT a doctor, anything I share is based on my experience & research. I encourage you to discuss any and all information that I share with a health care provider.

06/22/2009 05:45 AM  Top
SarahRN
SarahRNPosts: 12
Member
What is Bart?

Sarah

06/22/2009 09:30 AM  Top
Ramilin
Ramilin  
Posts: 442
Member
I got tingling in my hands and feet 7 months after my first sign of lyme. Neurologist said it was just a symptom of migraines (even I'm not that stupid) and that I was developing fibro... nope, it was the lyme. Since getting on ABX's no more tingling.
24/7 headache started: 7-14-08
Dx myself -Lyme Disease- treatment started: March 2009
24/7 Headache resolved: June 2009
Treatment ended June 2010 (about 15-1/2 months)

Lyme Disease, Bartonella, and BLO's. Son confirmed with Bartonella and Lyme at 14 months old (he is now 3yrs old).

06/23/2009 06:10 AM  Top
cmany
cmany  
Posts: 6253
Group Leader
I'm an Advocate
Sarah...

bart = Bartonella - or "cat scratch disease"

A very common co-infection when it comes to Lyme...

[b]Group Leader Disclaimer[/b]
First and foremost - I am NOT a doctor, anything I share is based on experience & research. I strongly encourage you to discuss any and all information that I share with a health care provider.
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