Lyme Disease Support Group

It's really a major pain because I am, or at least used to be, an advid book reader.

Like putting the words in the wrong order.

Like "please hand me my water of bottle". Rather than please hand me my bottle of water".

I was doing this at work talking to the owner of the company. I told my mom and she laughed so hard about it...he must have thought I was a real loony toon.

How long has this been happening?

I just went through about a month of this. It has subsided for now, but a lot of times I just can't find words at all anymore. That makes me frustrated.

I made a post one time about it. And all the funny things we say and do because we have Lyme Brains--LOL

But lately, I can't seem to read anything all the way through. I feel like I am going through some kind of temporary ADD or something.

I am in a major flare right now that is affecting just about every system right now. I think it's stress induced because we are moving etc....I hope it clears up soon....

At least I caught myself (and it's debatable that it's funnier the way I said it! LOL). I think everyone does it a bit, but man, my head was REALLY messed up before I started on my meds.

I used to feel so stupid trying to talk to other people.

I was like Sabado ... I got words mixed up in sentences a LOT. I could type okay, most of the time, but saying words out loud, and getting confused, were big problems for me. It was hard for me to answer phones at my job because I would say the words in the greeting in the wrong order, or use the wrong company name (OOPS)....

All I can say is I had to cringe a bit when I read about the hose and the rubber nose. Oh golly, I tightened up a bit with that.

Yeah, the word exchange stuff can be downright crazy sometimes. When I was at my sickest last spring, I can't believe how I thought I was talking correctly and people would ask "what did you just say?" I must admit that I began to get a bit self-conscious about speaking because it was happening so often.

that, or I'd be midway through a sentence and then not remember what in the heck I was saying to begin with (but maybe that's just a MAN thing, right?!?!)...

I am happy that is behind me. things have been going really well and my last LLD appt on Wed was one full of high fives. She stopped the tx! My exam was terrific.

But that doesn't mean I won't keep taking care or checking in here when I am able. I am glad this forum exists!

Much love to all,

Garret

>>All I can say is I had to cringe a bit when I read about the hose and the rubber nose. Oh golly, I tightened up a bit with that. >>

So sorry, Garret!

JerseyBug, are there any LLMDs in your area? Not an I-D doc, but an LLMD? You can PM one of the leaders or post in the section on the main forum. Left untreated, Lyme flares can come or go or the bacteria can go dormant - or get progressively worse over time until you are disabled.

My first symptoms were mostly joint pain and fatigue related - then came the brain/mind problems and panic and rage attacks and twitching and nerve pain YEARS later because I wasn't diagnosed and treated properly from the beginning.

Zoemajik, it is my understanding that there are no LLMD's in the state of Alaska. Travel is not an option for me at this time either. I know I need to get treatment; I'm just not sure where exactly to turn...