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From the way I know it, herxes should be like a roller coaster with hills that get smaller as the ride goes on. When you first start treatments, and get herxes, they can be big ones. But as you continue treatment, they should be less and less severe and further apart. At some point, the symptoms should be few and far between, and that's when you have it under control and only need maintenance treatment for flare-ups. This is how it should be, but I'm sure it's not the way it always goes. Another possibility is that if you keep feeling really bad and are not getting better, you could have co-infections that are hindering your Lyme treatment. Make sure of where you stand on that. I understand the pain, believe me I do. I have not been one single day without pain since early 2006, nor have I had more than 5 minutes without air hunger. It is VERY frustrating (pretend you hear my teeth grinding together as I write this, because it gets to me too). But here's the thing...we can't give in. We do that, we feel worse. We fight thru it, we endure it, we get better...you will get better. Last Friday was the one year anniversary of my diagnosis and the beginning of my treatment. In truth, I don't feel a whole lot better, physically. But knowing what's wrong with me was 75% of the battle, because I knew then there was hope. I hurt still, but I'm more hopeful than ever. Stick with it, write to me here on the boards or send me a PM. We'll buddy-up and kick this thing in the butt, if you want. In the meantime, don't give it the satisfaction of bringing you down. Be well. Tom I am not a doctor, and nothing I say here should be taken as medical advice of any kind. |
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