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Lyme Disease ForumsGeneral & SupportMuscle atrophy and tremors
11/04/2007 09:32 AM
Equine_gal
Posts: 2
New Member

Hi all,

I have had CFS since 1994, but recently I believe my doctor may have misdiagnosed me. That is, just two months prior to getting my CFS symptoms (rapid heart rate, heart palpitations, fatigue, muscle weakness, etc.), I was up hiking in the wilderness area in NE Oregon. Over the last two years now (2005-2007) my fatigue has worsened and in March I ended up having a tremor episode at work (hands shaking, teeth chattering if I was cold, but wasn't and body shaking, blurred vision) that sent me home. Now, since mid April I have a muscle atrophy problem in my legs that has baffled all of my doctors. I'm now being sent to OHSU in Portland, OR. I have also applied for disability since I have been unable to work since the end of May. Even when I was working, it was for only two days a week, 6 hours a day due to my unrelenting fatigue. Does anyone here have a muscle atrophy problem or tremors? My neurologist gave me a blood test to test for Lyme disease, but I found after researching onine that it's not very accurate, especially when a lot of time has past, and in my instance, 13 years.

Thanks!

Equine_gal

Reply

11/04/2007 05:01 PM  Top
Jenn56
Jenn56
 
Posts: 449
Member

Hi,i tested neg 4 lyme five times in local labs.U need to be tested threw igenex lab.CA..A few months later i tested pos threw igenex..I now have lymedisease,fibro and cfs..A few weeks ago i had to have a few arrythmais removed from my heart do to the palpitations.. Blurred vision was one of my first symptoms of lyme,i also go threw very bad episodes of shaking,my hands teeth and legs..I think u should be tested threw igenex...If u need to talk im here.. JENN

11/05/2007 04:16 PM  Top
cooley420
cooley420
 
Posts: 34
Member

Hi I also live in Oregon and was bite 17 years ago and am just being diagnosed. I've had muscle atrophy in my legs since 5th grade ,muscle tremors since I was 20, and pretty much every other Lyme symptom there is. I'm going to San Francisco this Thursday to See a LLMD and will probably start a pic line IV. I have been tested for Lyme at least 6 times and all negitive. I'm having the Western blot at Igenex on thursday which I hear is the most accurate. I have been diagnosed with Lyme symptomaticly at this point. You should definatly look into seeing a LLMD. Good Luck!!

Erin


11/05/2007 04:46 PM  Top
Equine_gal
Posts: 2
New Member

Thank you for letting me know about Igenex. I spoke to my neurologist's assistant this morning and sounds like they will use the lab.
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