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Lyme Disease Support Group
A community of patients, family members and friends dedicated to dealing with lyme disease, together.
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07/15/2008 06:09
lisamom23
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Posts: 12
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Hi. I am new to the group. my name is Lisa. I am a 39 year old happily married Mom of 3 boys and I am from MA. I was diagnosed after almost a month of being very ill and being in and out of the hospital when not one doctor could figure out what was wrong with me! I am sure many of you have had the same experience. I am beginning to realize how much of a struggle it is dealing with Lyme Disease. Most days I cant even make it out of bed. If I do it doesnt last very long I also have had Arthritis since i was little. I can feel the toll of the Lyme Disease on that too!! It has been getting more painful I am hoping to make some friends who can relate to me and what I am feeling. Like any other disease it is hard for other people to know how it feels not only to have a disease but to understand what you go through. Thank for being here and listening :O)

Post edited by: lisamom23, at: 07/15/2008 06:11

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07/15/2008 07:04
rigley21
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Posts: 19
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Hey Lisa. You came to the right spot. I am sorry to hear that you are suffering so. I believe this Lyme magnifies your current and existing diseases. I suffere from migraines and have long before Lyme. They are the far worse now than they were in the past. Lyme is awful and you will feel worse before you feel better. If you can stay in bed.. do so!! Your body is fighting a war and you need all of the strength you can get.

How are your boys doing? Have you had them checked? What treatment are you on?

I never saw a bite on me. I infact only went to the MD for an annual blood workup. I asked for a lyme test becuase I have two dogs who are in the woods. AS it turns out, not only do I have lyme, I have chronic lyme. I had had the flu like symptoms a long time ago but thought it was the flu! now I have neurological symptoms of lyme.

anyway. hang tough!

I was recently diagonosed and couldnt be more happy. Things seem like they are heading in the right direction.
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07/15/2008 18:33
denise17
Lime Green Ribbon
Posts: 255
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Helo Lisa and welcome!

I am happy that you found this site. It is a wonderful outlet for all of us lyme sufferers. I hope you have a good Dr. and are on treatment. Let us know how it's going and read as much as you can about lyme.

God luck and take care, Denise

Denise
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07/15/2008 19:51
darlabrown1
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Posts: 20
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Welcome to the site. I have struggled with mis/un diagnosis for 3 years and have found comfort in this site. I used to think support groups were a bunch of sharing of "feelings" and I didn't care to participate...I just wanted to fight to get well. It's very comforting to know you are not alone and it's wonderful to share ideas and knowledge with others.

I hope you find the support I've found in this site. Take care

Darla
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07/15/2008 23:50
DaisyDenHaag

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Sorry to hear your long suffering, I know exactly how you feel as I have had lyme for 26 years and not long been diagnosed but 1 months of antibiotics only worked for a while and the doc cannot help me any more. I am new here to and you will find many friendly people here and lots of useful info too. I wish you well.
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