my poor 7 year old has many of the lyme symptoms (20 of them); and I do recall the bulls eye rash, although my husband shrugged it off as just a bruise -- several months ago.

She has been ill all year (well 10 months). She just got a "borderline positive" result from her lyme test. this was from the neurologist. I already have a phone call in with an internist in my town who has a lot of experience w/ lyme (just waiting to see if he will see someone as young as 7 yrs old).

HOw many blood tests did you go through to reveal that you do indeed have lyme disease? Her neurologist wants her to wait another month to test again, then another 2 months to meet with her. I find that awful; adn I want answers now and get her on medicatiron as soon as possible if needed (since this has been going on for about 10-11 months now!!)

Thanks

I read all of your posts and you sound very frustrated as you should be. Try to find out from your MD what borderline means. Find out if they did a western blot and if they did ask what bands were positive because the regular MDs go by CDC standards requiring more positive bands to be considered lyme and LLMDs require usually only one lyme specific band. Don't be afraid to tell your Dr. what you have learned from your own research and explain to him that you don't want this bacteria to continue untreated in your child's body.

I really suggest that you find a LLMD as others have already stated but sometimes that takes time to get to see one. Therefore you might want to try to see what your current Dr. can do for you now. Sometimes you just have to be more demanding. If it were there child don't you think they would be wanting answers?

Good luck and take care, Denise

Keep pushing and pushing. You have rights! Hang in there.

Becky