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Lyme Disease Forums › General & Support › Will postive igenex test be reported to the CDC
02/06/2010 11:55 AM
Will postive igenex test be reported to the CDC
lovemy2boys
 
Posts: 46
Member
Just wondering if anyone knows if my positive igenex test, which said cdc positive on it, will be reported to the cdc and counted as a case in my state. I am wondering if the state will give proper recognition to an igenex test..Also did any of you get your general pcp docs to ever come on board so to speak, and support you with your lyme treatments. Thanks guys..
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02/06/2010 01:15 PM  Top
Julie4848
No it does not...

02/06/2010 01:16 PM  Top
Julie4848
However my Dr. did report mine to the Health Department, and they came out and spoke to me and called me for months on end to see how I was doing. They also put traps in my back yard to catch them and test them

02/06/2010 01:17 PM  Top
Julie4848
Yes my GP was OUTSTANDING in my treatment regarding my lyme, without him I have no idea where I would be today..

At 1st he did not know that much about lyme except what the CDC would say about lyme, like he said to me, one shoe does not fit everyone and everyone is different...He was great and still is when I start to feel crappy...(which thank god is not often regarding my lyme)

02/06/2010 03:04 PM  Top
toothfairy55
toothfairy55  
Posts: 3856
Senior Member
Hi Julie,

I thought if it said it was CDC positive that it did get reported. The ones that arent CDC positive but are positive buy Igenex are not reported.

Carol

I am NOT a doctor, anything I share is based on my experience & research. I encourage you to discuss any and all information that I share with a health care provider.

02/06/2010 03:29 PM  Top
cmany
cmany  
Posts: 6253
Group Leader
I'm an Advocate
I would still take the chance of reporting to the health dept...any awareness is some awareness
[b]Group Leader Disclaimer[/b]
First and foremost - I am NOT a doctor, anything I share is based on experience & research. I strongly encourage you to discuss any and all information that I share with a health care provider.
************************
"I'm not afraid to take a stand
Everybody come take my hand
We'll walk this road together, through the storm
Whatever weather, cold or warm
Just let you know that, you're not alone
Holla if you feel that you've been down the same road...
And I just can't keep living this way
So starting today, I'm breaking out of this cage
I'm standing up, Imma face my demons
I'm manning up, Imma hold my ground
I've had enough, now I'm so fed up
Time to put my life back together right now" Eminem Not Afraid

02/06/2010 04:13 PM  Top
Julie4848
I was told because it was Igenex (and the CDC does not believe in it) they don't go by it. So my Dr. called himself....

02/06/2010 04:25 PM  Top
Julie4848
I agree with Cmany, call them yourself and explain the test results to them....Can't hurt...However they won't do anything about it...Sad All they did was call me numerous times and my dr. to see what treatment I was getting...And then to call and see how I was feeling..That went on for a few months.

02/06/2010 05:04 PM  Top
toothfairy55
toothfairy55  
Posts: 3856
Senior Member
Mine was CDC postitive with a commercial lab and they did report. I got a letter from the health department but not much else. The info they sent me was basic and vague.

I would report it as well if you think the lab wont.

Carol

I am NOT a doctor, anything I share is based on my experience & research. I encourage you to discuss any and all information that I share with a health care provider.

02/06/2010 05:51 PM  Top
lindaca
 
Posts: 1009
Member
The lab who tested me CDC positive apparently reported it. The CDC then called the doc who ordered the test (idiotic neurologist who only ordered the test because I asked him to), but nothing else happened. Not sure what the neuro told them.
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