IgeneX results back!

I finally got my IgeneX results back from my ID Dr. He said all the co-infections were negative, which I don't get because my other Dr. says I have at least three. The IgM WB had bands 34,41,83 and 93 positive. The IgG WB had only band 41 positive. I know from reading LLMD articles that the IgM of lyme can be present for years after being infected it does'nt mean a recent infection like it does with other diseases. What makes sense to me is that the IgM shows up when the bacteria re-activates as it cycles every four weeks. If anyone has more info on this let me know.

Even with the positive WB tests he was'nt ready to diagnosis me with lyme. He said that he read that elevated EBV titers can cross react with lyme titers. I am not exactly sure what all that means again if anyone knows please inform me. I had elevated EBV titers in April of this year.

So I asked him about diagnosing me on my clinical symptoms. He said it's obvious that I had some sort of chronic infection that could be lyme. I said ,okay are you going to treat me for it? He said yes let's try doxycycline for three weeks. Is anyone surprised? I need to let you all know I have been trying to educate this Dr. as much as possible on lyme with some info from me and giving him the lyme advocate websites. I don't think he read a dang thing.

I respectively informed him that I had located a Dr. in Atlanta that has had great success treating lyme patients and that even though it was out of pocket I was going to get treatment thru him. He asked me what they were doing for treatment and I told him natural antibiotics, homeopathic medicines to help support my compromised systems, hyperbaric oxygen treatments and far-infared sauna txs.

I also asked him to support the HR 741 bill and asked him if he understood why the IDAS does not want this bill to be passed. He said he had no idea and that he could'nt understand why they would'nt want research for this disease. I also told him about the conversation that Dawn had with the IDAS spokesperson and how he said that the ILADS and the specialty labs for lyme were all lying to her and other lyme patients. He of course had no commment but I hope it gave him something to think about.

My next move is to have a person to person meeting with the chief medical director of the Kaiser branch and inform him of my roller coaster ride to getting a diagnosis in the faint hope of getting him to better educate his Dr.s on this disease. I want him to know all the heck I went through even though these were all well meaning Dr.s. Thank goodness I was'nt told I was crazy or given a crappy fibro diagnosis ,but the ID Dr. I have been refering to did want to diagnois me with CFS before I begged him for the IgeneX tests.

At least now I can get past this and just focus on with my txs at the clinic where I WILL GET WELL!! I am just so thankful to all you forum members who have helped me get through all of this and help me find good treatment options. Without all of you I would still be sick without answers.

I will be on vacation from Fri. to Mon. I'm looking forward to relaxing.

Good luck to all of you and your treatments,

Denise

You need a LLMD! This is your life. Your health and wellness are critical to you and your family. 3 Weeks of Doxy is a prescription for an incomplete recovery. Wether it you use conventional ABX, alternative treatments, or a combination of the two, you deserve a better standard of care. I hope you obtain it.

Regards

Kim

You have 4 IGM Bands positive. You would be considered positive by the Dr. that is treating me right now!! IGM bands are active moving infections going on. You have LYME!! What is this Dr. thinking??? Dr. Schaller, and Dr. Jones would both consider that the bands that you have showing would be considered more than enough for you to be treated for Lyme Disease. These bands are specific to Lyme Disease. Just think about it. If you are showing these, they are specific only for the Lyme Bacteria. I am sorry to hear this Dr. say this to you. You need to get him to read Western Blots Made Easy by Dr. Schaller and Dr. Jones. They both would treat you with only 1 specific IGM band present. This is my opinion. I am sorry to hear that he is not on the same page. I agree with Kim. You are going to have to either get him to listen to you or you are going to have to find another Dr. that is a LLMD. I can't believe how Dr.'s don't get the testing results. Denise, you are definitely positive for it. Dawn.

I've read that elevated EBV titers can cross react with lyme titers. I am not exactly sure what all that means again if anyone knows please inform me. I had elevated EBV titers in April of this year.

Denise

me too, my ebv levels were high and also igg level was pos for rmsf. Good Luck!

Just wanted you and eveyone else that doesn't know this to check out publichealthalert.org web site. This is where you'll find this article Western Blots Made Easy and you can see what these 2 Dr.'s say about the testing. Go and check out previous articles written. It is down a ways, and it is not dated when it was written. This is where you can take this to your Dr. and show him this info. Also to everyone there is a lot of great articles that have been written on this newspaper. Anybody can get this sent to them and distribute them for people to read. They will send you so many copies for a small fee. Anybody that is interested, should check this out. Dawn.

Thank you for your kind responses to my post. However I feel I may have confused some of you. I am going to a LLMD that has great success treating lyme disease, I'm in good hands. I'm going to the same clinic as Connie and many others on this site.

I discovered the clinic after joining this forum and after I had already had my initial appt. with the ID Dr. I mentioned. The only reason that I persued the IgeneX tests through the ID Dr. was to get proof to Kaiser that I have had this disease all along. I have been on my lyme treatment protocol since June 16th under the care of this great clinic.

What I do need is amunition to bring to the chief medical director. Thank you Dawn for the tip on the "western blots made easy" reference.

Thanks again, Denise

I can really tell a difference in how I feel after getting the treatment. I don't feel 'Lymie' anymore. I still have a way to go to fight the disease but at least I'm feeling 80-90% better.

Glad you are taking it upon yourself to educate the docs, Denise! There are non-profits who's goal is to educate Docs on this disease. I will see if I can find the info for you.