Why wear a ribbon?

"I just found out my 13 year old had lyme disease," (awhaley)

MDJunction to me

"All I can say is that this has been the best place ever. It has been six to seven months since I joined, and I have learned so much. I now believe in myself and accept myself on a completely different level. The people on MDJunction has been so supportive and accepting that I have been able to adopt it into my personal life. That has reduced a lot of stress in my life. Thanks to all." (bunnyfly)
We comply with the HONcode standard for trustworthy health information:
verify here.
Lyme Disease Support Group
A community of patients, family members and friends dedicated to dealing with lyme disease, together.
Join This Group
Group Home   Forums   Articles   Members (752)   Diaries   Leaders   Guidelines
Lyme Community Lyme Disease Support Forums General & Support Dr. Jones, profiled in "Under Our Skin" needs Help
Related discussions:
07/09/2008 17:50
synergyman
Lime Green Ribbon
Posts: 120
Member

Send a PM
Give a Hug
I know a lot of us on this forum have seen or heard about the "Under Our Skin" documentary. If you have had the good fortune to see the video you know the good work Dr Jones has done for children suffering with Lymes. I received this email today from a local Lyme patient and advocate. I felt it warranted immediate attention by this audience. As you all know he is a gentleman who deserves our support so he can continue his fight on behalf of children affected by lymes and all of us on this forum.

Warmest Regards

Kim and Suzie

Dr. Jones is in dire straits and needs help with his legal fees immediately!!! He needs to have $90K in 7 days to cover past attorney costs and $200K by Sept 1st otherwise he will be forced to retire and stop seeing patients as of September of this year. Please send funds to his legal site at:

Make Donations payable to " Pullman & Comley Trust Account-for Dr. Charles Jones"

Mail to:

Elliott Pollack

c/o Pullman & Comley, LLC

90 State House Square

Hartford, CT 06103-3702

Note "gift" in the memo field

No amount is too small!

There was a little 5 year old girl who saved all of her money to give to him to help raise the legal fees.

If he retired 5 years ago there would be 3000 kids suffering from Lyme, including my kids.

Dr. XXXXXX has never put out a personal appeal to her patients for money, but she is asking for help for Dr. Jones now!!!

Please forward this on to anyone else you can think of who would be willing to contribute.

Please please help!!!

Thank you!

Leslie

Reply  


07/09/2008 18:36
denise17
Lime Green Ribbon
Posts: 255
Member

Send a PM
Give a Hug
Thanks Kim and Suzie, I'll send a check out tommorrow.

Denise

Denise
Reply  


07/09/2008 18:59
synergyman
Lime Green Ribbon
Posts: 120
Member

Send a PM
Give a Hug
THanks Denise. Our check goes out Tomorrow also.

I also passed the message onto the MLASG (Minnesota Lymes Action Support Group). If other members on this forum belong to local groups please pass this message onto them also.

Thanks

Kim

Reply  


07/11/2008 14:23
Bettyg
Green Ribbon
Posts: 187
Member

Send a PM
Give a Hug
[size=5][/size]

leslie,

thank you so much for posting this about our beloved dr. jones URGENT need for $90,000 BY JULY 14 !!

*****************************

if he doesn't receive that amount by then, lawyers are done

***************************

since it will be $110,000 for the next month bill for their services....

andy wilson, director of under our skin, made a special video of dr. jones from the DVD they have completed recently.

i can't access lymenet.org; board must be down so i can't post it.

but in my HOME file, i found 3-18=08 letter from dr. jones to ALL OF US.

this talks about the NEW CHARGES FILED AGAINST HIM, and he is specific about it all!!

Refresh your memories as to why we must keep dr. jones to continue treating lyme kids!!! 10,000+ to date!

********************

or until HE CHOSES TO RETIRE OF HIS OWN FREE WILL!!

on lymenet last night, 2 members mentioned his mom and her mom-in-law each wrote checks for $300 EACH for jones defense fund!

ask your family/friends for donations especially if you are parents of KIDS WITH LYME!

thank you all for whatever amount you can send; for sending all the CURRENT news to all on YOUR LYME GROUP LISTS, for going to any lyme site and make sure all of the above is posted to get folks involved fast.

REMEMBER, CHECKS ONLY; prior penpal NOT acceptable .... that person is on VACATION!! NO WAY TO ACCESS FUNDS SUBMITTED!~!~

CHARLES RAY JONES, M.D.

Madison Towers

111 Park Street, 1st Floor

New Haven, Connecticut 06511

Tel (203) 772-1123 Fax (203) 772-0682

March 17, 2008

*******************

Dear Friends,

I am writing once again to update you regarding the status of the charges which have been brought against me by the Connecticut Department of Public Health (CT DPH).

As most of you know, on December 18, 2007, the hearing panel made recommendations for sanctions that would have severely restricted my ability to treat Lyme patients, and would have set a dangerous precedent for other Lyme-treating physicians.

Those of you who were fortunate enough to hear Attorney Pollack’s oral argument in response to the hearing panel’s proposed decisions and sanctions (“Proposed Memorandum of Decision”), or who read the transcript published in the Lyme Times (Winter Edition), can speak to his professionalism and keen grasp of key issues pertaining to Lyme disease and the controversy which surrounds it.

Although the Connecticut Medical Examining Board (CME went on to adopt the recommendations of the hearing panel with little change, I remain confident and extremely grateful to my legal defense team, headed by Attorney Pollack, and assisted by his associate Christine Collyer, Lorraine Johnson and others.

They have been engaged in a flurry of critical legal activity since December 18 to prevent the CMEB’s determination from becoming final.

For example:

1. With the help of a skilled appellate lawyer from his firm, Attorney Pollack has filed an appeal and an Application to Stay the Connecticut Medical Examining Board’s Decision in the Superior Court.

This was successful, because it resulted in a Court decision to stay, or stop, the application of a four part standard for the diagnosis of Lyme disease, pending appeal.

Although the Court did not remove the requirement for a monitor, this means that I cannot be penalized for treating Lyme if:

1) there is low risk of exposure,

2) the symptoms are what some call “non-specific,”

3) the history is “non-specific,” and

4) the Lyme test is negative.

This change resulted from one ground in the appeal, which pertained to the fact that the hearing panel imposed this standard AFTER the trial, so that we had no opportunity to defend against it during the hearing, which most lawyers would consider a breach of due process.

2. Another ground for appeal filed by my attorneys pertained to the inconsistent position taken by the CT DPH Commissioner Galvin.

In a hearing on Lyme disease held in CT in 2004, as well as in other public statements, the Commissioner has stated that there are two standards of care for Lyme disease and that it is too early to “call the science.”

He then contradicted these statements by bringing action against me predicated on the IDSA standard of care. In so doing, Galvin denied me due process and fair notice.

3. Yet another ground for appeal was based on the question of bias of one of the three panel members, Dr. Senechal.

Following the December 18 hearing, two parents who had not attended previous hearings came forward and expressed horror that Dr. Senechal had expressed extremely biased views regarding physicians who treat Lyme, referring to them as “quacks.”

Dr. Senechal’s remarks, documented in their affidavit, formed the basis for a motion to

reconsider, filed with the CMEB. The CMEB denied this motion, but Dr. Senechal’s bias

provided another element which strengthened our appeal.

4. My legal team also was successful in getting the Connecticut Superior Court to stay the reprimand and the two years probation ordered by the CMEB.

Also, the civil penalty, $10,000, was placed in a trust account pending appeal.

It is very important to note that, although the monitoring factor remains in place, the monitor’s scope has been limited with regard to the 4 part standard of care (see above) – very good news not only for my practice, but also for that of other physicians who treat Lyme disease comprehensively, and for the patients who seek their care.

5. My attorneys have had to become involved in defending my failure to obtain a monitor by the deadline set by the CMEB, in order to prevent them from holding me in contempt, a finding which, at the worst, could result in an automatic suspension of my CT medical license.

Here are some of the circumstances which led to their involvement in this matter:

The CMEB order stipulates that I must find (and pay for) a board certified pediatrician licensed in Connecticut.

The monitor must be willing to review thirty patients’ charts every three months, for a period of two years.

I have had a great deal of difficulty finding a monitor in the allotted time, particularly one who understands how to treat Lyme disease comprehensively.

Some are too busy with their practices to take the time to serve in this capacity.

Many are involved in group practices which often object, because of the time and resources this activity would divert from the collective work of the partners.

Some may not want to take on this role due to the controversial nature of my case.

The CMEB has refrained from providing a monitor; perhaps as a strategy to avoid the accusation that they have installed someone who is hostile.

They have, however, threatened to hold me in contempt, asserting that I have not

exhibited sufficient effort with this matter.

My office continues to aggressively search for a monitor, while my attorneys are dealing with the legal issues involved.

6. As you may have heard, the DPH has brought additional charges against me pertaining to three new cases.

Initially, they intended to introduce these cases into the prior, ongoing hearing, but my attorneys were successful in preventing these cases from being joined with the case already being heard.

New hearings on these three cases will be scheduled in the near future at the

Legislative Office Building in Hartford, CT (watch for future announcements with more details).

These are expected to be scheduled over a period of at least several months, which my attorneys already have begun to prepare for by

contacting potential experts, compiling legal research and drafting legal pleadings.

Two out of three of these cases, much like the previous case,

involve divorced parents engaged in custody and other marital/parental disputes.

One case in particular has ominous implications for the Lyme community, if the DPH charge is allowed to prevail:

I am accused of falsifying an illness in a child in order to justify his absences from school, essentially colluding with the mother, who has been accused of Munchausen’s Syndrome by Proxy.

******************************

This charge, if upheld, could set a dangerous precedent for the Lyme community, endangering parents and their sick children who are accused of truancy. It must be defeated.

******************

We have some reason to hope, based on the merits of the appeal, that the CMEB and the CT DPH could decide against prosecuting these new charges.

Once again, my legal team has been extremely busy, attending CMEB meetings, drafting motions, writing memos, conferencing with both the DPH prosecutor and the Assistant Attorney General and more.

I continue to be impressed by their commitment to my case, as well as their sincere concern for what it represents for the children, who are so ill with Lyme disease.

All of this, unfortunately, also has been quite costly, which leads me, with some apology, to the second part of my message to you.

Without the support of the Lyme community, it would not have been possible for me to engage this top-notch legal team and to fight these charges.

I have thought long and hard about the wisdom of continuing this fight, in part because I hesitate to impose any further hardship on so many of you who already have contributed so much, and who are contending with stressed resources.

I have decided, however, that it is essential to continue to oppose the charges brought against me and want to explain why:

1. I am dedicated to the principle of providing appropriate treatment to the children of Lyme, and to training other physicians to treat pediatric patients through the various preceptor programs currently available.

2. I am gravely concerned that an easy, unchallenged “defeat” will send a dangerous message, and that those physicians who depart from the IDSA guidelines in their treatment of Lyme disease will be left more vulnerable.

3. I am strongly opposed to the ominous precedents that will be set if the current charges against me are allowed to prevail.

The two cases that I mentioned above exemplify this danger: namely, the imposition of a restrictive standard of care, as well as the unfounded persecution of families whose children are ill, with accusations of Munchausen’s Syndrome by Proxy, malingering and truancy.

4. Because fundraising efforts were suspended over the holidays, when my legal team was engaged in an intensive flurry of activity, the defense fund is in dire straights: currently, we owe more than $80,000 in legal fees.

All outstanding bills for services rendered must be paid immediately in order for me to retain my legal counsel, and we also must demonstrate that funds will continue to be forthcoming as needed.

With all of this in mind, I must ask you once again to consider making a financial contribution to my legal defense fund, in whatever amount your circumstances will allow.

If you are able to contribute, I hope you will do so as soon as possible. Instructions for making donations to the legal defense fund are provided at the bottom of this letter.

Additionally, many of you have suggested ideas for fundraising, some of which could draw on resources outside of the Lyme community (e.g., a concert).

I welcome and deeply appreciate this kind of creative effort to raise money for the legal defense fund.

On Friday, March 14, I reached my 79th birthday.

***************

Someone asked me recently if I ever dreamed that I would find myself in this position at this stage of my life.

I replied that, no, I didn’t, but if I had the chance to do it over, I would do it all again.

It is largely because of the considerable support and concern that so many of you have conveyed in so many ways that I have been able to maintain my determination to see these charges through to a successful resolution.

Please accept my heartfelt appreciation for your ongoing support.

With very best regards,

Dr. Jones

Charles Ray Jones, M.D.

************************

BettyG, Iowa activist

Post edited by: Bettyg, at: 07/11/2008 14:28

Reply  


07/11/2008 21:43
synergyman
Lime Green Ribbon
Posts: 120
Member

Send a PM
Give a Hug
Dear Lyme Family,

Please use the following web link to view a You Tube excerpt from the "Under Our Skin" documentary. This segment is focused on Dr. Jones exclusively.

http://www.youtube.com/watch?v=sk-yXquT3lw

Just a few minutes ago the LLMD that treats Suzie, our Son, and Myself called to check up on how we were doing. This LLMD is in CT this week studying under Dr Jones. During the phone call we discussed Dr Jones' case. Bottom line he needs our financial help NOW! Our LLMD stated that Andy the producer of "Under our Skin" has compiled and is going to release video of Dr Shapiro testifying to the effect "it does not matter if patients are getting better. They are not following appropriate standard of care."

These LLMD's are truly wonderful people. Totally dedicated to our well being. We must protect them. Most importantly we all must step up and help the good doctors fight for all of us.

BettyG thank you for posting Dr Jones' letter. Denise Thank You for your donation. Every bit helps fight this injustice and threat to right to appropriate treatment as our LLMD and other health professionals deem necessary.

Kim

Reply  



Start a New Discussion

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice. Read more.
Contact Us | Bookmark Us | Add a Doctor | For Doctors | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | Advertise
Copyright (c) 2008 MDJunction.com All Rights Reserved