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Lyme Disease ForumsGeneral & SupportNeed a doctor asap....lyme disease
01/26/2010 01:24 PM
lynnlahm
Posts: 1
New Member

Sad I really need a lyme literate doctor that is in md,pa, dc or pa. I was diagnosed with lymes about a yr ago. I tested postive for all but 2 bands. My igm was neg, igg postive. I was put on a PICC line asap, started feeling better about 8 weeks after intial treatment. I relapsed about 2 months ago, severly fatigued, brain foggy, heart palpitations, dizzy, nauseated ect... I feel like I am losing my mind. I have been to 3 ID doctors, they all say I have post lymes syndrome. recent test showed I am postive for all bands, they keep treating my symptoms and say that it is unlikely I have a recurrent infection and that there is no evidence for long term antibiotics beeing effective. What is wrong with there people?? Please help!!!
Reply

01/26/2010 01:48 PM  Top
waxby
waxbyPosts: 4129
VIP Member

~~~Hello lynnlahm.Re "What is wrong with these people?" What is wrong with these peole indeed?

~~~Go to the top of this page and click forums and then click on Dr LLMD requests.There you will find what you need.

``````````````~~~Love to you,Mitchell~~~

~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell

Previous discussions I participated in:
Sulfuric Acid
Dry Under Tongue??
Lyme or Fibromyalgia?

01/26/2010 02:17 PM  Top
krispv
krispvPosts: 56
Member

I'd go the route of trying to bs them into a "I believe I have been re-infected route" if you can't find a proper LLMD. I started treatment with Ceftin last April and was on it right through the Christmas holiday. The doctor tried to switch me to Biaxin and it made me very ill.(That class of drugs has never been my friend.) Then my son got sick with C.Diff and landed in the hospital. I stopped all of my medication out of fear. Within a week the symptoms started again. I stayed off of meds for 3 weeks and just got sicker. Here is my argument- if it is a "syndrome" how can your body actually get better on the drug when resumed? I emailed my LLMD and told her of my fears and she told me to go back on the Ceftin. Things are slowly getting better again. It's hard not to get fed up when you know you're sick and they don't listen. Find that LLMD - you deserve it.

01/26/2010 03:22 PM  Top
Bettyg
 
Posts: 26648
VIP Member
I'm an Advocate

welcome lynn Smile

check your private messages for MARYLAND LLMDS; you have almost 2 dozen in your state so you won't need the other states you asked for ok.

i sent you my welcome letter earlier as i didn't know you had posted; that will help you too. will send those names before i forget Smile lol hugs

bettyg, iowa

BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

Previous discussions I participated in:
Crazy News
Flagyl
Dry Under Tongue??

01/26/2010 03:32 PM  Top
Ini29
Ini29
 
Posts: 51
Member

I heard about something call lyme clear , they said is better than everything but im not sure . What ya think????

01/27/2010 12:28 AM  Top
Bettyg
 
Posts: 26648
VIP Member
I'm an Advocate

ini, please expand on that; i have no idea what you are talking about....big thanks Smile
BettyG, IOWA ACTIVIST
RETIRED llmd coordinator of 6 yrs; group leader

NOTE: I DO "NOT" USE CHAT thanks!
**************************************

NO INFORMATION SHOULD BE CONSIDERED MEDICAL ADVICE.
please see my WELCOME LETTER/BEGINNER'S LINKS with important links/info galore :)

http://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/2356916-bettygs-welcome-letter-wgood-beginner-links-

Any information provided should not be used to take the place of advice from your personal physician or other professional.

Information on those sites is the opinion of those who publish the sites and is NOT necessarily that of BettyG.

43 yrs. chronic lyme; 35 yrs. misdiagnosed by 40-50 drs. unacceptable; see my profile for more.

Previous discussions I participated in:
Crazy News
Flagyl
Dry Under Tongue??

01/27/2010 04:41 AM  Top
Tennesseemom7
Tennesseemom7
 
Posts: 1050
Member

Ini,

I googled Lyme Clear and can't find any products called that.

If you post the maker maybe we could do some research on it...

******Group Leader Disclaimer******
******Lyme and Fibro group leader******
I am not a doctor, just trying to get through this crazy Lyme mess together.
Brenda

Previous discussions I participated in:
Crazy News
biaxin?
Anyone been on tindmax+ amox combo?
Reply

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