Hello. I'm Jen. I am 31 yrs old and just recently found out that I have Lyme disease. The doctors also told me I have a severe case of fibromyalgia and R.S.D.I'm also having SVT's in my heart, so this has been a bit scary. My husband and I have been so frustrated and confused as to how to go about this situation. As I'm sure most of you know, it is so controversial.
After seeing many local drs. and ending up at the Mayo Clinic, I finally found a LLMD locally, who is willing and capable of helping me. I wasted time and money at the Mayo clinic. Left there more frustrated than before.
Today, however, I say the LLMD. She was so patient and compassionate. She litterally spent five full hours with me and my husband. She explained everything to me. From natural supplements to antibiotics and much much more. She is a homeopathic/holistic doctor who is lyme literate. Thank God I found her. Actually, ILADS gave me her phone number.
Needless to say, I am so glad I am now getting the proper treatment. My body was and is just wasting away, physically, and emotionally. This is the hardest medical issue we have ever had to deal with. I have central nervous system involvement, heart problems now, and all over head to toe severe pain, arthritis. I have just about every symptom you can imagine in regards to lyme disease.
I finally feel there is hope. Now that I have found a very thourogh doctor, who is more into natural healing, but yet very knowledgeable about the proper antibiotics, who is willing to help me fight this, I just have been so happy today!!
I would love to share my experience, and make new friends on here. I would love to learn as much as I can about this disease and what has worked and hasn't worked for others.
I have three children and my husband, and our litle dog marley in the home. We are very concerned that my husband and my oldest may have Lyme as well. My daughter has already been diagnosed with fibromyalgia, and my husband has recently started to have some of the same symptoms that I have.
My husband has been my rock. He works full time, takes care of me, and our children. I sometimes am unable to walk or function on my own, so he litterally carries me, pushes me in the wheelchair, dresses, bathes, brushes my teeth, and has had to litterally feed me at times. My Lyme is always very bad, intense pain, but then I get "flare ups" where the pain is just about unbearable. Without my husband, and having the Lord in my life, I just don't know if I'd make it.
I pray for all of you who are suffering like I am. I never knew Lyme Disease was like this. I just pray that soon, very soon, there will be more research and education for these so called speacialists to learn. I have lost so much faith in the medical field. We feel like we had to be our own doctor to get to the bottom of this ordeal.
My husband and I believe that things happen for a reason. We feel that god is allowing this situation for some kind of greater good. Though it is pure hell going through this, we feel that God will not give us more than we can handle.
Our goal is that when I start getting better, we start doing anything and everything we can to help others out there who are going through this. Lyme is a terrible disease, but there is hope. We will fight this and we will win!!
Thank you all for reading and I look forward to talking with you!
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. www.ilads.org
Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
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