Lyme Disease Support Group

Hi, I wrote on here last week about my 9 year old daughter testing + for Lyme. I have been doing alot of research, and have found that the illness can "percolate" in the body for years, coming out one symptom at a time. Well now I think my husband may have this horrible disease as well. For about 8 years the doctors have been telling him he has Meniere's Syndrome. However he has never responded to treatment or surgery for this and has slowly gotten worse over the years, to the point where he does not work now. We could never figure out why he was not getting better, this morning I sat down and made a list of his symptoms that coincide with Lyme and they are as follows:

Headaches, head pressure, sore throat, horseness, runny nose, blurry vision, increased floating spots in front of his eyes, hearing loss, buzzing in ears, ear pain, oversensitivity to sound, ringing in hear, diahreah, GURD, shortness of breath, chest pain, feeling like you cannot swallow, fatigue, poor balance, difficulty walking, increased motion sickness, lightheadedness, wooziness, depression, panic attacks, disorientation, sleep disorders, loss of sex drive and testicular pain. .

Now I have been out of my mind with him, sometimes thinking he is a hypochondriac, wondering how someone can have so many things wrong with him. Now I find myself wondering if he has had Lyme for all these years. He was big on being in the woods, and had many ticks on him over the years. Does this sound like a possibility, because it does to me. I told him I think he should see a LLMD and be tested. This problem whatever it is has ruined our life, and now my daughter has it, and I do not want her to go thru the same problems. If anyone has any ideas or comments I would love to hear them, and thank you for all the support I have gotten about my daughter

Thank You

Tawnya

Your husband needs to be evaluated by a lyme literate MD. You just described the perfect storm of undiagnosed Lymes Disease. If it turns out to be Lymes and potentially co-infections he will get better with proper treatment. However, you should also be evaluated for Lymes.

There have been many posts about the recent film documentary titled "Under Our Skin, the Untold Story of Lymes Disease." Check it out.

Best wishes for better health.

Hey Tawnya,

That does seem right on for lyme disease symptoms. The more you know the angrier you get. That's why I'm so glad that I found this forum. The advice is the same, find a LLMD and get proper testing. At least you have a possible (highly probable) answer. Good luck in your search and vent anytime you want.

Take care, Denise

My advice is the same, too. Find an LLMD and have your husband tested for Lyme. You can PM Jaime and she will help you find an LLMD in your area.

When you first posted about your husband's illness, I suspeted Lyme, too. The good news is that if it's Lyme, he can get better. If my memory serves me correctly, you live in an endemic area. You mentioned he has had lots of ticks...hmmmmm. I would say the chances are pretty good. Lyme is a great impostor and can mimic many diseases. That is why I would like for Lyme to be a 'rule out' diagnosis in the future. As common as Lyme is these days, it should be ruled out immediately.

Vent anytime . I really feel for you. How are you feeling? Do you have any signs or symptoms of Lyme, too?

Peace,

Connie

Tawnya,

You are on the right track, for sure.

I have read a lot about Meniere's Syndrome in the past, because one of my favorite historical persons was stricken with it. Alan Sheperd, the first American in space, was hit with it one morning when he woke up and promptly fell on the floor. In order to not get released from the space program, he took a long leave and got treatment (surgical procedure) far away from the prying eyes of the space program. Miraculously, he was cured and then went on to walk on the moon.

When you mentioned that your husband was disabled, I couldn't figure out why he hasn't been treated to control the situation. But with your latest description of his condition, hey, you can bet your bottom dollar that all of his symptoms are CLASSIC Lyme!

Dizziness, light-headedness, feeling unbalanced, chronic sinusitis, ringing in the ears, sound sensitivity, neck pain, chest pain and shortness of breath are all some of my top-most troubling symptoms. You are describing the neurological form of Lyme disease.

Listen to all of your friends out here and get both your daughter and husband to an LLMD as soon as you can...and keep us informed! We care!

Good luck.

Tom

I just want to say thank you to all of you who have responded and given me information on this site. We have never been able to figure out why my husband has not responded to the meniere's treatment, but only gotten worse. My daughter and husband both have appointment with an LLMD on August 8th. Thanks to the people on this site my family may have a chance to return to normal, if I can remember what that is. I myself may get tested as well, as I have also had quite a few symptoms that have not made sense. I will keep you posted and let you know how we all make out. Thank you all so much.

Tawnya

Tawnya,

Was your husband ever given steroids for his Meniere's treatment?

Tom

Tom,

I know he was on this Med, injected into his ear, and now reading this I'm wondering why

Gentamicin can cause severe hearing and kidney problems. Before administering gentamicin, tell your doctor and pharmacist what prescription and nonprescription medications you are taking, especially diuretics ('water pills'), cisplatin (Platinol), amphotericin (Amphotec, Fungizone), other antibiotics, and vitamins.

If you experience any of the following symptoms, call your health care provider immediately: dizziness, vertigo, ringing in the ears, hearing loss, numbness, muscle twitching or weakness, difficulty breathing, decreased urination, rash, itching, or sore throat.

That's what was happening to him before they gave him the med, and after, it did nothing for him except it seemed to make him worse after each injection.

Other than that I don't think he took any steroids. I will look into that. This Gentimicin is an antibiotic, you have any info on that.

They have him on hydrochlorothiazide, a water pill I guess, Meclazine, and some nausea pill.

Tom,

I believe my husband has been given steroids for his back. Not sure, but I think so.

Tawnya, your husbands symptoms are almost exactly like mine. it's a living nightmare. I can hardly type right now I'm shakeing so badly, but I just want to let you know I'm pretty sure it's lyme. LIke Everyone has said, lyme mimics so many things. It's like getting a diagnosis of fibromyalgia. That is a SYMPTOM not a SYNDROME. fibro is BULL. I was dx with it 5 years ago, along with lupus, RA, and scleroderma, at the age of 25 my life was falling apart, and I progressivly got worse, I didn't accept that I had these problems, and kept searching for an answer. NONE of my tests were positive for any of my diagnosis. Then I found someones story about lyme disease. OMG, finally an answer. I could go on and on about it, but I can't type anymore, lol. I would get him tested through Igenix labs, and get on treatment ASAP. and remember about herxing too. People probably get worse before better, it's the norm. You are a strong woman, and you will get them thru this. I know you will. We're here anytime to vent. you need to . you can pm me anytime. I miss alot of posts because I'm usually pming.

hugs

j