Neck pain

Kewa

I wish there was more that could be offered (maybe someone else out there has something), but pain has to be dealt with as best as you can. Meds, balms, moist heat or cold...whatever works for you. I have intense neck pain too, but all I can take for it is Ibuprofen, and that hardly touches it. Unfortunately, my stomach is a mess, so I have to be careful with what I take. Try different things and see what helps.

My opinion, and it is just an opinion, is that you should not see any more doctors until you see the LLMD. Whoever you see can order all those tests too, and may want different versions...and will want to get you on treatment right away.

Believe it or not, a clinical "symptom" of Lyme disease is "...have you been to many specialists, only to be told there is nothing wrong with you?". Again, my opinion is you save your money and wait for the LLMD. Of course, if any of your current doctors can help you manage your neck pain, then go for it.

I know my suggestions may seem useless, but I have been exactly where you are, so believe me when I tell you I know what you are going through.

Feel free to send me a PM if you have any more questions. Otherwise, I will see you out here on the boards.

Good luck.

Tom

So glad to hear that you have an appointment with an LLMD. As for the neck pain, don't be afraid to ask for pain pills, if you need them. Most doctors won't just offer them, you have to ask. Of course, I would try other measures first, like Tom suggested...but if that fails, there's nothing wrong with taking a pain pill to get through the day. I lived on Lorset Plus and Ultram for about 4 years to take the edge off of my pain. I didn't get addicted and I didn't get high off of the lorset. It did help me to function and to carry on with my activities of daily living. Otherwise, the pain was just plain paralyzing.

Kewa

You might have to 'experiment' with lorset to see if it works for you. Lorset Plus was the narcotic that I used. However, it wasn't enough by itself for me. I used to take one Lorset Plus and two Ultram in combination to take the edge off. That was just what worked for me. I took that combo twice a day...sometimes three...for about 4 years. That was back when I thought I 'just had FM.' Hopefully, you will get into an LLMD very soon and not have to 'live' on narcotics for very long.

In the meantime, eat as healthy as you can....take a good multivitamin and mineral supplement....and I would go ahead and start taking probiotics, too. You can find these at a good health food store.

Keep asking questions and stay ahead of your doctors...you have to.

Peace,

connie

For the pain I put rice into a sock, put it into the freezer and then put it around my neck after it gets nice and cold. My husband made me 12 of them and I use them everyday for the neck and knee pain I still have once in a while. I LOVE THEM...Or you can heat them up also if you want heat instead...They will last for years and years

Julie

Be careful of pain meds. They work great at first but then you have to keep uping your dose to get the same relief. You know you can only go so high until you have taken the highest dose...the pain cycle gets worse. I sleep with a travel neck pillow ontop of a down pillow with a heating pad on the pillow.

Stress also makes it worse!!!

Hope that helps!

Post edited by: ldsucs, at: 06/27/2008 15:17