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Support Group in the DFW area



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06/24/2008 09:31
43inTexas
Posts: 2
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I am inquiring as to whether there is an actual Lyme Disease Support Group in the Dallas/Fort Worth area? After 15 years of Chronic Lyme, I would like to discuss this debilitating life issue with people who understand. Is there such a place to go?
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06/24/2008 13:04
ConnieD
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I don't know of any, but you could probably google it and see if there's something going on in your area. Also,you could start one yourself...I'm thinking about doing that in my area (even though there is no Lyme in Tennessee..ha,ha). I don't know how to start a support group, but I'll research it and figure it out.

Of course, we'll give you lots of support in this group. I know it's not the same as LIVE. However, it has really helped me feel like I'm not such an oddball, hypochondriac whiner. Your pain is real and all of us on this site know exactly how you feel. Please feel free to ask any questions, vent, offter your successes, whatever you feel like...we're all in this together.

Peace,

Connie

Please do not take anything I say as medical advice. I am not a doctor

~Lyme Disease Support Group Leader~
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06/24/2008 13:51
43inTexas
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Thanks so much Connie for taking the time to reply. I have never done a forum/group like this and still not sure what is kosher for discussion I have looked for a support group in my area without success as of yet. I am a newbie at trying to realize that it is okay to say how I feel physically/mentally after keeping it to myself for so many years.

Respectfully,

Denise



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06/25/2008 05:30
ConnieD
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Hello Denise,

Well, that's a good question...I never considered that. Honestly, I just jumped right in.. You can look at past threads and see that just about anything is up for discussion as Lyme and coinfections can manifest themselves everywhere in the body.

You could start by telling us your 'story.' Are you seeing an LLMD? What have you done for treatment? How long have you known you have Lyme? Do you have lingering symptoms?

I think there are some common sense guidelines posted somewhere...like no swearing (the occasional slip happens, but we try ). the main thing is to be respectful of each other...no personal attacks. Oh and no listing of our doctors on the posts. We need to protect our doctors' privacy and choice to treat us.

So, come on in, the 'water' is just fine

Peace,

Connie

Please do not take anything I say as medical advice. I am not a doctor

~Lyme Disease Support Group Leader~
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