Lyme Disease Support Group

This whole thing about paying out of pocket does not make sense to me and I am trying to learn. My ID doc gave me Doxy for 90 days . He is re ferring me to the pain clinic for cortisone . The pain clinic Dr told me that cortisone and Lyme is not true . I am always hearing something different . He also told me dont worry so much . I think this is the fifth doc todl me not to worry. Easier said than done. is this all a bad dream or is this really true ?

Thanks to the group leader that has been helping me . I want some feedback on this please. I have been on this vicious journey for three yrs now non stop. Big bills just piling up .

You already feel horrible, why would you do anything that would make you feel worst? I know this gets overwhelming at times.

We are not only battling the disease but sometimes our own doctors. I hope you get a good doctor to treat you properly so that you can start getting better soon.

God Bless,

Kathy

It seems unfathomable that one just can't walk into any damn doctor that takes the insurance that already costs an arm and a leg and treat us "properly" for lyme disease.

I had a CDC, IgM, IgG positive test in my hand and refused to believe that mainstream medicine would not heal me. It made no sense. I had a positive test! No brainer right?

I came to this site for help and i thought...these people are really nice, but they are nuts if they think I can't be helped by a regualr insurance taking doc. I have a positive test!

I went from dr to dr and had horribly maddening experiences with each. And I would come back to this site and they would say, yes we have been through the same thing, do yourself a favor and see a lyme literate dr.

They were right. The mainstream medical establishment is a joke when it comes to lyme.

I have family physicians that have treated myself and husband and children for years that will call and tell me I have a positive tests for someone in my family, and do I have somewhere I can take them for treatment? They refuse to treat us! They know their treatment is useless, but will not risk their licenses by treating outside of the guidelines that so desperately need to be changed.

I am treating 5 people right now, all out of pocket. Plus paying 1600.00 a month for insurance that is all but useless. I am furious about this mess.

BUT, it is what it is. I will heal myself and my family and hopefully not lose our house in the process. We will get better and this so far has brought us closer and is making us stronger.

I feel your pain and frustration, but it will not help you. You will spend just as much money chasing answers and help from mainstream medicine. Save yourself some time....I've been down that road.

I wish you the best. Sorry for rantng but it makes me every bit as crazy as it is making you. So much contradiction. All i know is I am finally getting real answers and getting better. It should not have taken so long for that to happen!

thank u

i went to the pain clinic thinking maybe these cortisones will work because I do have a herniated disk but it seems since I had the Lyme its attacking that area. The doc told me not to worry to come back in another few weeks to get more cortisones. Should i just go back to him and not get the cortisone or am I wasting my time. i am in pain and the ID doc wont help and if I stop going to pain clinic I dont know where to go? i dont have all this money to be seeing a LLMD i WISH i DID

I went thru this with my daughter. Her pediatrician would have put her on 6 weeks of doxy but her LLMD figured out she also has bartonella so she's on two totally different medicines (for a lot longer than 6 weeks). The doxy wouldn't have worked. Hope this helps.