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Bubblerific
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Does anyone find that they have good days and bad days? I was feeling better, and exerted a lot of energy this morning, when I woke up this morning, I could not even sit up by myself. My girlfriend had to help me do everything today, and I have a sorority meeting tonight that she gets to take me to. I hate this. I feel so awful, and I feel really bad for her. She didn't sign up for this, then again, no one does, but here she is taking care of me, even though she's feeling ick right now. Then there's the fact that I need to take a blood test, since apparently, because I live in Texas, 2 out of the 3 docs I've seen/talked to, say its impossible for me to have lime. The first doc was the ER doc and he's the one that called my mom and told her it's Lyme's, though I wasn't tested, whihc I suspected... Okay, done ranting. The point is, do you have good days and bad days? And if so, how do they differentiate? When life gives you Lyme's, break out the salt and tequila. |
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dannyacro9
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hey, man i know how you feel! wow im so glad i signed up on here. (im new) ya!! i know exactly what you mean! ill have an ok day where i can walk and talk and ill be doing okay. and then the next day or like an hour will go by and like last night it happend i was fine and then i got so bad that i couldnt do anything! i was with my bf so he had to like carry me every where and pick me up etc. He's been amazing thru this whole thing but we had a huge huge talk when we first started dating. I laid it all out how sick i was and how theres alot of luggage that comes with dating me because of this disease. And he said he was ready for it and to bring it on lol *shake in bake* is what we say. but he knew before we even started dating what my life was like, we were great friends for a long time. I feel awful tho the things he does. Theres been times where ive blacked out and we've been at restraunts or stores.. awful. But he keeps tuggin along. I do find myself tho getting depressed on what he has to deal with, its not fair. But he loves me and he reminds me that every day. So i have no choice but to trust him. Im so sorry your going thru this. I hurt for you. jen |
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Bubblerific
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I wasn't sick when Jennifer (she's on the right of my pic, I'm on the left), and I started dating, I was infected in July while working at summer camp. When I started getting sick, she was worried, then I got sicker. She deals with the bad days and is happy for the good ones. Maybe the topic of this should be "Significant Others and how they cope" or something. I haven't blacked out in public yet, almost fell down a few times at work. They don't know just how sick I am. When life gives you Lyme's, break out the salt and tequila.
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dannyacro9
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well she must care for you if shes sticking by you girl! ya know... man im so sorry.. i hate that tic that bit you! Ya thats a good title. you need to let your work know. if somethings happens to you at work, and your un able to communicate with them on whats happening, its just.. its safer they know. |
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Julie4848
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I got this in July also, was planning my wedding...Still got married 9-15-07. My husband is great about all this, he said "We will fight this together".... Julie |
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dannyacro9
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congrats on the wedding! man, you never know when things will get so messed up in ur life.. im so sorry. stupid timing for that stupid tic! i hope he got caught in a rain storm and died!  *hug* jen |
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jaime1978
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I know how you feel. My poor hubby, he only knew me somewhat normal for a short time. I've actually been infected for 20 years...when I was in texas... then got very ill around age 21, and that triggered it to come out. we got married, had kids and my health still goes downhill, and fast. was dx with fibromyalgia, lupus, RA, scleroderma, and I still thought there was more to it, so kept pushing for answers, we came up with lyme, I have 62 out of 70 some symtpoms.... I have to say, that if 2 docs you saw actaully mentioned lyme your LUCKY. most mainstream docs have no clue regarding this. My doc laughed at me. I travel to another state each month to see a lyme literate doc. welcome, and ask away  Please do not take anything I say as medical advice. I am not a doctor.
~lyme disease support group leader~
please pm me with any special concerns
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Bubblerific
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Thanks very much. Yes, I have about 50 or so of the symptoms. I am on Doxycyclin right now, but not sure. Mom thinks I need to go to the ER to do blood testing (meh, she's cheap). It'll depend. Jen only knew me healthy for about two months, and then I got sick in July. She worried about me while I was at camp, I came home, she worried about me more, she still worries, but she's so good about this whole thing. She still tells me everyday that she still wants to be with me, marry me, have kids, etc. And Julie, congrats on the wedding! When life gives you Lyme's, break out the salt and tequila. |
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Julie4848
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Thank you it was a great wedding. Just got all my photos back...An understanding partner makes a hugh difference when sick. I'm very luck that Jim trys vary hard to understand what I'm going through. I was not going to spend the $1020 to send my blood into Ignex, but he said its a small price to pay to find out what is really wrong with me. I try vary hard when he is home to act as if I'm OK, but he knows me all to well...lol Julie |
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dannyacro9
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same here with my bf. We have been very close friends for 3 years, and dating 19 months. I try so hard to act like im fine. i always end up crying though, i have alot of pain. or i try and test him like normal answers to just avoid my feelings so he wont know, but its like he has a little camera he watches or something lol he just knows.( jk no cameras.. i hope) im so happy that you have your husband to go thru this with, im sorry again though that it happend. ooo wedding photos!! lol i cant wait for the day i get to go thru all that jenn, |
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