Lyme Disease Support Group

Hello everyone, I suspect that I may have Lyme Disease. I went on a camping trip two years ago and have never been the same unfortunately. I've seen about 8 different doctors and have had many tests done (blood, urine, colonoscopy, x-rays, ultra sounds etc.) all have been normal and the doctors say these symptoms are in my head. It's getting ridiculous and life has been hell and nobody will believe me. I live in southern California (LA county/antelope valley) and I don't have any health insurance. I'm 19 years old and am a college student, obviously not very wealthy . Does anyone have any ideas for me, any info is highly appreciated!

Also heres a symptom list from what I can recall (some come and go often): constipation, hair loss, unbalanced feeling as I walk and turn corners, numbness in feet/ankles, strange sleep patterns at times, muscle pain (comes/goes), muscles twitching randomly, swollen lymph nodes on neck, eyes will burn randomly for minutes and finally stop with tears coming down my face, stomach pain, incredibly fast heart rate especially at night. Many other smaller ones that I have forgotten that come and go.

Thanks,

Anthony

You can google the California Lyme Disease Association - CLDA they are very active in California. They may know of LLMD's. This is a wonderful support group. Jamie and others on shortly to will give you much better advice as to the best path you should follow to get appropriate treatment. So hang in there.

My wife is reading this over my shoulder as I type and she states "man it sure sounds like lymes. All the symptoms sound like mine."

Best wishes.

Kim

Hi Anthony,

It does sound lymie to me and maybe a coinfection of babesia, too (heart racing at night)...I had the same problem with my heart racing at night. Do you have chills, sweats at night, too?

Have you had any Lyme tests done???

Jaime has the list of LLMDs. That would be the next course of action to get a diagnosis or rule out of Lyme. I'll have a list soon, too.

Stay in touch

Connie

Def. get a Lyme test - preferably through Igenex in California. www.igenex.com

Your symptoms sound lymish to me as well. Most doctors are going to tell you it's in your head - it's unfortunate! Most of us were all misdiagnosed for many years. Infectious Disease Docs are the worst about Lyme - get a list of LLMD's and start there! (Lyme Literate MD's).

Best of luck - we are all here to help.

Thank you all for the replies. I have not had any lyme tests done, I tell my doctors of my suspicions but they always try to find another source of my problems and throw mine out the window. The last doctor I went to didn't even give me a blood test, just some fiber medicine for my gastro problems... It's really getting annoying and I feel helpless now.

I've contacted Igenix before in the past but it seems I can't get anywhere without approval from a physician which seems impossible for me , does anyone know a better way to get tests from there? thanks!

Yes you do need a Dr. to sign off on the test. You should first look for an LLMD that will work with you.

Best of luck, Denise

Yes, find an LLMD. My doctors wouldn't test me , either. One of mine just looked at me and said there's no way I had Lyme. He said it's only in the North. Well, Lyme is in all 50 states.

Find an LLMD, just pm Jaime and she will help you find one.