I'm new here. I live in central Texas, have been sick for 13 years, diagnosed last spring by a naturopath who used a dark-field microscope to look at my blood, so there is no doubt I have Lyme. I'm guessing at least two different strains as I was bitten by chiggers near Houston and then by a deer tick in Connecticut. I have neuroborrelliosis and finally found a doc in Austin who will tell my local MD what to do. I'm supposed to start a 10 week course of Rocephin IV, but both docs told me to find a home nurse to infuse the meds 5 days a week. I'm fully disabled; on Medicare and Medicaid. My problem is that it turns out the meds won't be covered if they are given at home. Has anyone figured out how to do this? What about a pump? I am so lost and getting ready to just give up. Help!

First of all, let me apologize for not welcoming you when you first joined. I have no idea how we all missed it. I hope you haven't given up on us and check the site once in awhile. THis group has been amazing for me. There is so much knowledge being shared and genuine concern for one another.

I have no idea how to get your meds covered. However, there are lots of members on here who may be able to help you.

I saw a biological MD in the south. I just had to pay out of pocket. I never took IV antibiotics or any conventional antibiotics for that matter. My treatment consisted of homeopathics, herbals, and nutritional sups (mostly). I did other things , too....like acupuncture, FIR sauna, hyperbaric oxygen chamber, etc.

I am now a recovered Lymie and have my life back. I joined this group to share my message of hope for recovery. During my sickest moments, I did pray for an end to this devastating disease,(I would have even welcomed death as an end). However, my prayers were answered in a much different way....I found a doc who led me out of Lyme h*&%.

So, please don't give up. We are all here to help each other and you can get better, you really can. You've got to hang in there and keep reading and researching and looking for answers.

Are you seeing and LLMD? Jaime has a list and will help you find one in your area. Please pm her and she will be happy to help you. I do hope you are checking the boards for a response to your plea.

Peace,

Connie

If the meds are not covered through home nursing therapy, then try to find out if they are covered if you receive your infusions at a local hospital. Medicare may even have a list of clinics or hospitals that will do it for you.

If they are covered, then you will have to make arrangements to get to the hospital. This may be easier than paying for the home services.

If you do not have personal transportation, the county or state may provide a bus service that can pick you up and take you home afterwards.

I'm crossing my fingers you find a good answer. Please let us know if any of these things are possible, so that we can refer anyone in the future who may have similar difficulties to yours.

We help here by learning what works for others. Thank you for coming to us.

Take care and be well.

Tom

Thanks for your support. Turns out the doc backed out anyway....I got my local MD to start Doxy. Thank you, Connie, about LLMD info, I will email her.

Best wishes to all.

e

So glad to hear from you. The doc 'backed out'???? Is he/she 'scared'? I'm always amazed at what happens in 'lyme world.'

Are you taking probiotics now, too? It's a good idea to take probiotics , especially when you're on antibiotics for a lengthy period of time.

Feel free to ask any questions.

peace,

Connie

Sorry it took so long for me to get back to you, I can't manage the computer some days...

The first time I heard of doctors getting in trouble for treating us I thought it was just some conspiracy nut stuff. Little did I know that there is a big conspiracy, and doctors do hide; making it very difficult to get help. I'm in Texas, so finding a doctor has been darn nrear impossible. I'm still trying to find one near Austin, San Angelo, or Abilene. It's hard for me to go to Dallas, I'm hoping I hear of someone soon.

It took me a year to find my last one, and I don't know what happened, he just stopped calling me back...

I do take acidophilus, it helps with my yeast sensitivity, which I had before I got Lyme.

Thanks for your support!

hugs,

e