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balance vertigo etc can all be from Lyme OR Bart, a good neuro can hopefully sort it out--Id get a good evaluation--so if it gets worse or changes youll have someone familiar with your case Also have them check for Chiari and dysautonomias--all related to nervous system but all neuros wont know a lot about ANY of these--we have had to seek subspecialists and superspecialists and yet its neuro for Petes sake try a Chiari website ( The Chiari Institute NY) and www.ndrf.org for dysauto for info about sx and tests and Drs its very hard if not impossible to tell what sx are from the drugs or from a temporary worsening of sx ( a good thing IF it means youre on right track--often a no response is the worst) or even that the illness is worse because the drugs not working--sigh hang in and time often sorts it out--dont be surprised if this waxes and wanes --mine gets better/worse but unfortunately hasnt totally left in a few yrs before a balance rehab can be done you have to know what it IS--can be inner ear or central ( brain) or both--tests arent fun but necessary start keeping a sx diary--what sx and when and rate them 1-10 10 being worst ever...and then over time you may see a pattern related to drug dose and timing or over time since taking a drug/treatment--this will be very helpful for the Drs. also try to have him sleep in a recliner with head wedged with pillows--in a "neck neutral" position--as if he is looking straight ahead, chin parallel to floor while standing and not jutting out or back, spine aligned with neck--if he doesnt accidentally slump down or creak his neck overnight this may ease the balance--helps me!! and eased my horrid vertigo-but it took a lot to get used to sleeping this way ( I was a side sleeper) careful with chiropractors until you know chiari status--a good chiro will admit they shouldnt touch a chiari neck at ALL!! and an "adjustment" can make balance worse if there is nerve inflammation to inner ear ( common) JESSICA: IF salt and water intake affect your balance you may have Mennierre's--an inner ear fluid balance issue that unfortunately gets worse and has no cure and few treatments-- not due to Lyme but coincidental and makes it all worse they say to diagnose--if you eat a salty snack like a bag of chips with little water and then get a "spell" of off balance or dizzies ( or even a drop attack where you lose ALL balance and feel as if youre falling or being pushed to ground--I had a few NOT fun) then its positive. good luck Finette |
