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Lyme Disease Support Group
Lyme Disease Support Group
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06/12/2008 14:29
chickiechick
Posts: 44
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 Hello everyone. This will come as no surprise to any of you I am sure: I wrote to my last infectous disease doc today about the on going fatigue and not ever being tested for the co-infections. Here was his wonderful response:

Teri-you had received doxycycline which is generally active for the bacterial co infections. Babesia is self limited and should not cause symptoms for years. I would not pursue testing for co infections. I don't think Lyme is playing a big role-maybe switch to something like cymbalta.

Can you believe it!!!! I have been on a lot of different anti depressants and they never helped the fatigue!!!

ooooo, so angry I could scream!! Hopefully the primary doctor can help me next month!!
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06/12/2008 17:22
Mizuiro
Lime Green Ribbon
Posts: 148
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 Some of the things doctors will say. When I was getting infusions the nurses at the ER told me several times to tell my doctor about my blood pressure. One day it was 90 over 50 and pulse was 220 and all my doctor says is "huh. That's weird."
Smee: I've just had an apostrophe.
Captain Hook: I think you mean an epiphany.
Smee: No... lightning has just struck my brain.
Captain Hook: Well, that must hurt.


"Hello in there Cliff. What color does the sky happen to be in your little world?"
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06/12/2008 17:36
chickiechick
Posts: 44
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 they are just amazing!! How true it would be if they themselves contracted the disease!! I would be the first to say take an antidepressant!!! I know that they help with some issues but i do not think that they are the answer for everything!!
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06/12/2008 18:45
fin24

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 may I strongly urge you find a good LLMD??? as in someone with experience with Lyme etc??? infectious disease Drs are USEless IMHO theyre all too willing to play the comopnay line of "in your head, heres another pill dearie"..cant possibly be chronic Lyme..yeah right

wher do you live--Jaime and I can find you a Dr..or google "your state Lyme support groups" obviously typing the name of your state--and then contact the groups--theyll know who to use and even better who to avoid in your area!!!

good luck and dont beleive a word of what he said--twerp and btw I was misdiagnosed over 6 months with post partum depression that supposedly started while pregnant and came with a rash and heart problems--and I am a trained scientist and finally I took the shrin k by the neck and demanded to see HIS own Dr to prove to me it was in my head--well his Dr diagnosed the Lyme---and this was after several infect disease drs dismissed my symptoms!!! that was over 18 yrs ago and Ive suffered on and off since thanks to him!!!!!

Finette
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06/12/2008 19:17
chickiechick
Posts: 44
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 I just wonder if i have the strenght or energy left to keep searching. each time i would find a new doctor i would get my hopes up only to have them shattered again!!! i have just been through so much with all the diseases that i have just am exhausted! i live in Millville PA, close to Bloomsburg, harrisburg and wilkes barre about an hour away. send ay onfo that you have. maybe someday i will be strong enough to take this on again.

thank you Finette, you're a sweetie for caring!!
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06/13/2008 14:38
fin24

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 you cant give up--ever---those of us with good drs still fire many every yr!!! I had to just fire my 4th neuro in 2 yrs!!!! the political stuff makes it harder to find any dr who properly handles Lyme--dont let that beat you or stop you from getting good care

here are 15-20 groups--im sure one can help you!!!

http://www.lymenet.org/SupportGroups/UnitedStates/ Pennsylvania/

let us know

Finette
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06/13/2008 15:17
chickiechick
Posts: 44
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 i know in my heart that i sould not give up. But seiously, how do i know if i have been given proper treatment? how do i know that what i am feeling may be one of the other illness that i have? I just want a name fo it! even if no one can do anything, just give it a name!!! still waiting to hear when my disabiliyt hearing will be ad how can you convince a judge that you have on going fatigue when no doctor or specialist will state why you have it and that it is related to a condition. I don't even care if they call it CFS, at least then disability will recgonize it!!

cannot wait till i can aford to get the Lyme movie. So excited to see it and share it with faily and friends!!

take good care and THANK YOU for caring about me!!
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06/13/2008 15:53
ConnieD
Lime Green Ribbon
Posts: 716
Group Leader

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 Believe me, Teri, I feel your anger regarding your doctor's response. Antidepressants???? Give me a break. I was referred to a psychiatrist.

Oh, by all means , don't give up. I got better with the help of my doc in the South. Is there anyway you could work that out? Please, feel free to pm me and ask me anything. Have you tried alternative medicine? My doc is a bioloical MD. He and his clinic treat the person, not the disease. I got better and I was REALLY sick. Others on this site are on their way, too.

Again, please feel free to ask me anything. You can get better. You have to find something that works for you. (and you're right, it's not cymbalta )

Please , hang in there and don't stop searching.

Peace,

Connie

Please do not take anything I say as medical advice. I am not a doctor.

Open your mind to the possibilities available to you.

An attitude of gratitude is good 'medicine,' too.

~Lyme Disease Support Group Leader~
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