1. Pulsating above left or right ear along with a headache on the opposite side of the head. Very tender where the pulsating is - reminds me of what a butterfly would feel like under my skin.
I too have the pulsating along with the headaches.
2. I get headaches on the back left part of my head. What is strange to me is that where there headaches are, I get dandruff really bad. I have NEVER had dandruff before in my life until the Lyme started taking over me.
I get headaches as if someone is squeezing my head. Sometimes they seem like someone is pulling the front part of my brain and the base of my skull towards each other. It's a hard, squeezing pain. I don't have the dandruff problem, but my skin is very dry.
3. I have a soft-tissue build-up in my neck and shoulders. So bad at times that it is difficult to hold my head up and bend my neck. I have a large bump on my upper back where my neck meets my shoulders, many people have it, but I have noticed since the Lyme has taken over it has gotten much bigger and tends to hurt a lot.
When this first happened to me I thought it was a buffalo hump related to Cushings and was tested. My tests were elevated a little but I'm pretty sure it's the lymes. The hump sometimes swells and when it does boy does it cause pain. And it's tender to touch as well.
4. My skin hurts. If someone (one of my kids usually) were to accidentally tap me wrong it HURTS terribly. Many times causes bruising and others just pain for a good period of time.
Yep, very sensitive skin. Sometimes I get a burning sensation that hurts if I touch it for no reason out of the blue. Other times it almost feels like an itch so deep I can't scratch it. And it usually happens in really odd places like a finger or toe. Sometimes it just hurts. And if I happen to scratch too hard, or someone hits me accidently, I'm hurting for a while.
5. Neurologically...I have realized that it is impossible for me to continue working full-time. I can work a full day and then get so exhausted that I have to take off a few days to recover. It is really frustrating. Any of you able to get on disability? I feel that I need to financially but I am still unsure about it.
In Canada there isn't disability for lymes, FMS, or anything like that. Fortunately for me, my community actually provides what they call a "Special needs" care that I receive because I can't work and needs someone to take care of me most of the time. It's not a lot, but it helps.
I've been seeing a homeopathic doctor for approx. 5 years now and she's been very helpful cleaning the toxins and lymes out of my system. This year I stumbled on soemthing that really helped my lymes headaches ... believe it or not it's extra strength sinus and headache Benadryl. Regular strength, and regular Benadryl doesn't help at all, the extra strength is wonderful.
It's weird seeing someone else with my symptoms. I'm still pretty new to the Lymes and blamed all my pain on the Fibromyalgia. Now I realize some of the pain is teh Lymes.
Hugs,
avalon
I am not a doctor and the advice I give is my opinion only.
Diagnosed with Lyme Disease in 2006. 36 years and counting.
Treatment that's working for me: Heilkunst Homeopathy
"The part of my recovery plan that I would say made up 80% is MDJ. I suffered a lot prior to finding MDJ, felt alone and had no one to talk to who really understood me. In the Bipolar Group I found like minded individuals who I could relate to and who offered support to me when I needed it. As I recovered, I could then offer support to them which gave me a good feeling about myself. I have met some great people here who I would class as good friends and know I would still be in the slump I was in without them. Now I am stable, I know that MDJ plays an important part in keeping me that way. Thank you MDJ for being there for us all and making us no longer feel alone." (liamacker)
Be assured, we are all out there fighting the same beast. 
