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06/04/2008 06:04 AM

Diaries

savvy
savvy  
Posts: 92
Member

I was just writing on my diary and wondered if people actually read eachothers on here? Not that I care.....I'm actually going to repost what I wrote on here because I could use the advice and general support on what happened to me last night as I feel I am still relatively new to this "Lyme Game", but I am curious about if people do go to others diaries to read about what's going on with them?

Here's how my evening went.....

Apparently....................I've been pushing it. I went totally "Lymie" last night. I have been trying to take advantage of having lots of good days in a row, getting lots of yard work and housework done and working at my office trying to sell real estate whenever I could but also being careful and resting in between each chore so I didn't push myself.

Maybe it's all the stress going on with my son and also with my friends little girl that got hit by a car (she's ok now, she just went home from the hospital last night.....I missed the call cause I was sleeping~!)

Maybe it was just time again..........whatever it was I went totally lymie yesterday and am still feeling it this morning.

It started with my neck, as usual. It still hurts so much. Well maybe it didn't start there, maybe the nausea started first. Does it really matter? Either way, I have both and have had since yesterday. Increasingly so throughout the day. By about 8ish last night, I kept pretending things were ok. I was sitting on the couch and my husband had just finished all his chores, he really was working his ass off yesterday.............I think he suspected i was hurting because he just assumed to go get the kids and run the errands and didn't even ask, that's usually my thing. On top of that, he got our pool up and running, mowed the lawn and did the weedeating around my purdy gardens. I love that man. Nothing sexier than a man who knows what I want! A nice lawn! LOL

God it's a good thing I have this sense of humor.

Anyways, he sat down, I turned on the Yankee game, he leaned over and kissed me for knowing him so well. We were both sad we'd missed Joba's first start.....but glad to have nothing else we HAD to do other than get the kids to finish homework and get them to bed.

Then it hit me. My body wasn't really working. I tried to lean forward, it hurt so much. I suddenly realized, I was exhausted and if I closed my eyes for more than two seconds I would be asleep right then and there. He tried to rub my neck for a few minutes but I could feel myself starting to crash. It was literally like I was falling down a hole.

He got me up off the couch and took me into the bedroom but turned on the game so I could listen. I was asleep in less than 2 minutes.

I woke up later, my body aching with pain as if I'd had the flu for a week. I had to pee so I went to find him and he was in the shower. He got out and came back with my motrin so I could make it through the night.

I still hurt today, but I have to force myself to go to my office as I have paperwork to turn in.

I go see the new Infectuous Disease Doc today. I wonder if all this is because I finally did as she told me and started the Doxy three times a day just a few days ago.

My stomach is killing me. I am so scared of the PICC line thing, but I still think it's the only hope I have for getting better.

My chiropractor said I need to be on medicinal garlic, it's the only way, but he doesn't have access to it. He knows a couple that got it from a chinese herbalist in Manhattan and he's going to call them for me to get his name. He's a doll, we just love him, he's become like family to me. I really only asked him to plant the seed that he needs to be LLMD and I want him to start studying it as he is the only doctor I truly trust to be honest with me. I know he'd do all he really could to help me. He tried to get me to take some acidopholus again too, but that shit makes me throw up every time and then I lose not only my stomach contents but all the meds I took that day as well......it's just not worth it.

Uhgg....time to see if I can withstand a shower. I'm still so tired.

Sick

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06/04/2008 06:38 AM
Clayton72
Clayton72  
Posts: 508
Member

That's so strange that acidopholus makes you sick! I've never heard of that. But, onions do that to me so I guess we all have our 'thing'.

I am SO sorry you have been so sick! Hopefully it's just for a short amount of time. Your body is telling you to get some sleep - so, don't have any guilt for doing that!

Let us know how your doctor appointment goes and we'll keep you in our thoughts, Savvy!


06/04/2008 07:30 AM
savvy
savvy  
Posts: 92
Member

Thank you honey! And thanks for always tryin to offer help and support, I realllllllly do appreciate it!

I managed to get through my shower without falling down, I was actually worried about that. I'm so tired and so freakin hot! I have my air conditioner going full blast! My hubby has to work the night shift tonight and I'm waiting for him to wake up and ask me why the heck the house is like an ice box! LOL I can't stand it though, I feel like I'm going through menopause!

I totally missed my morning sales meeting at my office....I still gotta make it there to turn in some paper work from an open house I did over the weekend, my processing manager is going to be PISSED that it wasn't in before the meeting!

Is that really rare with the Acidopholus? I guess since I'm the only one I ever knew that took it, I didn't think about whether other people are affected that way or not, but you know that reaction you get when you don't eat with Doxy? yeah..........same thing as soon as I take that or even a multi-vitamin except with these two it doesn't matter if I eat with it or not, I still usually throw it right back up!

As I said in my PM to you, I did try a chewable multi yesterday, seeing if I could handle it better, maybe that's what made me so sick?


06/04/2008 08:56 AM
Clayton72
Clayton72  
Posts: 508
Member

I'd say that is a possibility. Our systems are all different and Lymies are more sensitive than most. I can have acidopholus but I can't have yogurt. It makes me bloated and ill. Go figure. But, that's probably a dairy issue so who knows.

I can't take multi-vitamins at night because they give me some CRAZY dreams. I have another friend who has the same issue.

Well, I'm glad you survived the shower -- stay cool and have a better day!!! Good luck with work, I know that must suck... being on time and lyme are not a good combo some days.


06/04/2008 10:42 AM
tomro62
tomro62  
Posts: 359
Member

Savvy,

You could have a variety of things going on. You could be herxing during a reproductive cycle of the bacteria. That tends to send symptoms through the roof for me.

I have also been reading lately that women tend to have a harder time with Lyme affects than men do. So now Lyme is sexist. That's okay, there is a balance to that...men are more likely to be attacked by a shark than a woman is...so there you go.

And please listen to Clayton...sleep if your body is asking for it. Just make sure someone wakes you up to drink some water or something, if you are out for a long time.

And keep the stress down! Stress releases cortisol, cortisol weakens the immune system and gives the Lyme a wonderful playground to have all kinds of fun in.

Lastly, and most importantly, the thing that makes me feel the most sorry for you and I wish you didn't have to suffer through it...you're a Yankee fan. Unfortunately, I'm not sure there is a cure for that. The only affliction I know that is worse is being a Red Sox fan. Thank goodness I don't have either of those "co-infections".

Tom

(I live in the Baltimore area, GO Orioles, but I am originally from Washington DC, so GO Nationals! Too bad they both suck so bad....)


06/04/2008 03:04 PM
savvy
savvy  
Posts: 92
Member

Tom! No!! Orioles? UHHHG! And I liked you so much.....I'm so disappointed..LOL

Jk Jk, I'm a good sport about it unless someone attacks me, then all I have to do is say "do the math baby~"

So here's my update. I went to the Doctor today, my new Infectious Disease Specialist..Yes I have heard they are the worst when it comes to this but she really seems to be quite Lyme Literate so far.

She said I felt like crap cause she finally has me on a high enough dose that it's working and was very excited about my crappy feeling....I told her this is kinda how I felt when I started taking the Doxy again this year but this is worse, she is Russian or something so she has a thick accent and is very funny but also quite quirkie and sassy too. Sometimes she talks too fast for me, but will slow down to re-explain if I ask her to.

She re-doubled the stomach meds because my stomach still hurts so much from the doxy. She said Acidophilus is crap, so don't worry about taking that anyways and keep eating the yogurt every day and she said there is something else, a liquid that is natural but she forgot to write it down for me. She was very sympathetic about my hard night last night and offered pain killers, whatever I wanted if I had a favorite.....(she's quite helpful for that..kinda worries me a bit) but told me to STOP TAKING THE MOTRIN (she almost yelled it at me!) because of the stomach issues...I didn't know what to take, I hate all these medications so I ended up with ultracet. I know I won't take them unless I feel like I'm dying though...of course, if I hurt this much and can't go anywhere, what's the difference right? I might as well feel better.

Let's see, what else. She also checked my nodes in my neck and found one is swollen, but she said it's ok and she'll keep checking it (it hurts. *pout*) and she gave me something for my constant itching and said that was another side effect of the Doxy working at a higher dose. I'm SO ITHCY!!

She told me to count on taking a couple days off work because I won't get anything done like this but by next week I should be feeling like a new person again. (something I've been hearing since last year...) If I still feel awful and am still having a herx reaction, I should call her, otherwise she wants to check me again in two weeks.

I also asked her, if so many people test negative for lyme in their spinal taps(I've read that only 7% test positive), why do the insurance companies require it for IV treatment...she said she actually see's a lot of people test positive, but with my test the lab didn't test for the right things, she doesn't know why and she's pretty sure it's a conspiracy against doctors treating patients long term and it's ridiculous. Then she just started talking about something else as if it was so matter of fact!

So, she seems convinced that even though I feel horrible, I am getting better....KEEP YOUR FINGERS CROSSED!!!

I wish I could sleep now.....but my son has a baseball game and if he wants to be a YANKEE I have to go be there to give him Love and Support so he can be amongst THE BEST! LOL


06/04/2008 09:02 PM
tomro62
tomro62  
Posts: 359
Member

Savvy,

Motrin is a good medication, but it is bad on the stomach. The first dose you take for the day weakens the lining of the gut. Any doses you take after that start wearing little holes in the lining and can leave you open to feeling like your stomach is a battleground. Your doc is right, stay away from it if you can. Ultracet is pretty mild (reaction wise) and is a fair pain reliever.

I'm glad the doc believes you are herxing...and yes...that means you are killing them off. See, I'm an Orioles fan and I'm smart too!

I hope you continue to see a lot of improvement, but fair warning, don't get discouraged by setbacks. It does happen sometimes, so be aware of that.

The whole lymph node thing is very symptomatic, so just go with it and treat it as you feel necessary. I am considering court action to have mine evicted from my body...I've had quite enough of them, thank you.

I am going in to my third month of IV antibiotics and have never had a yeast problem, anywhere. I do eat yogurt now and then and have always believed it does a great job of warding off yeast. Of course, you ladies have a worse time of it than we men do. I hope it goes as well for you.

Talk to you soon.

Tom


06/05/2008 05:01 AM
savvy
savvy  
Posts: 92
Member

Yes well, be careful Tom because Yeast is NOT gender biased either....you've just been lucky!

I actually haven't had that bad of a time with it, only one infection, excuse my bluntness.....and after months of Doxy I think that's pretty lucky so I don't know what they're all up in arms about! I think I'll just stick with my yogurt too.

I've taken ultracet before, I just hadn't heard the name she called it before, but it's a nice vacation....I still hate taking meds. That's the thing. I am such an incredibly busy person, not that you all aren't, but I have always been so supersensitive to medications (regular tylenol can knock me out for hours!) that I hate to take them cause I miss so much of my life.

I'm also afraid of how tired it makes me for morning as well, I have to get my kids up in the morning and make their lunches and breakfast, make sure they've brushed their hair and teeth and have decent clothes on or it will never get done! yes.....I'm a micromanager, and yes, I'm trying to slowly let go. Maybe next school year I will relax a little with that stuff. My son is goign to High School and my daughter is going to 7th. I have to say, they have been very helpful and understanding when mommy is sick.......but that doesn't mean I want to miss "their stuff", ya know? Like last nights game that I mentioned... I probably could have taken pain pill and felt much better than I did and went to bed, had someone drive him home from the game since my husband took him before he went to work..but I really wanted to watch the game! My son has been having such a hard time lately and last night was one of the first times I have seen him have a good time in a long time and I am so very glad I didn't miss it! (he crushed that ball like only a YANKEE would know how! LOL)

Now, today, again I am avoiding at least three of the pills I am prescribed, including the pain meds because I have to go to my office and I won't be able to drive. Our Real Estate office takes turns doing the phone shift, and I don't like to miss mine because that's how I get new clients! Plus I already switched with someone so that I could get out early because my daughter has her last chorus concert of the year. Even though she understands, all she would "FEEL" is that I wasn't there....and I don't ever want to not be there. I love being there. It's something I've always prided myself on, I've been at nearly every event they've ever had. When you move your kids 3000 miles away from their nearest relative, I guess it just becomes more important.

Thus the reason I hate taking any meds that make me sleepy......

Sorry, tangent.....must be the lyme.

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